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Dealing with parents with alzheimer's
    #16097280 -

So the people who rasied me ( my grandparents ) are suffer from alzheimer's its in the very early stages but ive noticed it more and more.

I just dont know what to do I am not putting them in a home I will quit my job and take care of them myself before I let that happen. 
I talked to my aunt who would be better off helping them ( has more money owns her own home ect) but they are refusing to move to the south. 

I live 5 hours away right , my mom lives pretty close but she didnt take care of her kids so I dont trust her to take care of them besides emptying there bank account.


This just fucking sucks havent cried in years :sad:


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I must not fear. Fear is the mind-killer. Fear is the little-death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past I will turn the inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain.


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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097304 -

Alzheimer's disease (AD), also known in medical literature as Alzheimer disease, is the most common form of dementia. There is no cure for the disease, which worsens as it progresses, and eventually leads to death. It was first described by German psychiatrist and neuropathologist Alois Alzheimer in 1906 and was named after him.

Most often, AD is diagnosed in people over 65 years of age, although the less-prevalent early-onset Alzheimer's can occur much earlier. In 2006, there were 26.6 million sufferers worldwide. Alzheimer's is predicted to affect 1 in 85 people globally by 2050.

Although Alzheimer's disease develops differently for every individual, there are many common symptoms. Early symptoms are often mistakenly thought to be 'age-related' concerns, or manifestations of stress. In the early stages, the most common symptom is difficulty in remembering recent events. When AD is suspected, the diagnosis is usually confirmed with tests that evaluate behaviour and thinking abilities, often followed by a brain scan if available.

As the disease advances, symptoms can include confusion, irritability and aggression, mood swings, trouble with language, and long-term memory loss. As the sufferer declines they often withdraw from family and society. Gradually, bodily functions are lost, ultimately leading to death. Since the disease is different for each individual, predicting how it will affect the person is difficult. AD develops for an unknown and variable amount of time before becoming fully apparent, and it can progress undiagnosed for years. On average, the life expectancy following diagnosis is approximately seven years. Fewer than three percent of individuals live more than fourteen years after diagnosis.

The cause and progression of Alzheimer's disease are not well understood. Research indicates that the disease is associated with plaques and tangles in the brain. Current treatments only help with the symptoms of the disease. There are no available treatments that stop or reverse the progression of the disease. As of 2012, more than 1000 clinical trials have been or are being conducted to find ways to treat the disease, but it is unknown if any of the tested treatments will work. Mental stimulation, exercise, and a balanced diet have been suggested as possible ways to delay symptoms in healthy older individuals, but they have not been proven as effective.

Because AD cannot be cured and is degenerative, the sufferer relies on others for assistance. The role of the main caregiver is often taken by the spouse or a close relative. Alzheimer's disease is known for placing a great burden on caregivers; the pressures can be wide-ranging, involving social, psychological, physical, and economic elements of the caregiver's life. In developed countries, AD is one of the most costly diseases to society.

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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097305 -

Couldn't your grandparents move up with your Aunt instead of vice versa?

Yeah, I don't blame you for not wanting to send them anywhere else. Some nursing homes are despicable places that abuse the elderly and get away with it. I experienced both types. My grandmother had dementia, her first nursing home overdosed her on prescription medication and failed to notice her bruised face and broken fingers from a fall. She went to the ER and they admitted her as an "overdose". My family tried to get charges pressed through the state's AG but it went nowhere as it seems to go more often than not. After that she went to a really, really great place for the next few years until her death. Rolling hills, huge gardens, walking paths, pools, crafts, exercise machines, caring staff, etc so on

I guess it just depends. There ARE good places, there ARE bad places. Dementia is fucking terrible, though. My grandmother didn't even recognize her own kids near the end. We all (the family) got together for her birthday one year and it was like she didn't even know we were there. They just regress back to toddlers, unable to care for themselves and completely dependent on others. It's so sad.


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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097308 -

My grand mom has severe alzheimers. To the point she doesn't remember me, her kids, parents, friends.

I know that feeling. :hug:  keep your head up man. I'm sorry that I don't really have any advice.


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Re: Dealing with parents with alzheimer's [Re: trip forever]
    #16097349 -

They dont want to leave the home they built themselfs and raised 7 kids in. My grandpa built the house after the war for my grandma to get her to marry him.
Only way they would go is if my grandpa died he said he will never leave that house.


My aunt is very well off but she need to be in the south for work also I couldnt see her doing all the gross shit herself. but she has plenty of cash to hire someone

I mean its just the start, but ive noticed and that means others should have as well,  He is almost 90 and they both still walk 2 miles every day and he still plays golf.

Its just harder on me since they took care of me and since I dont have lots of money and feel like I failed them ( I havent done much with my life besides fuck it up)
I just want to give them dignity for those last years since they did so much for me.

Im gonna make some phone calls and see if I cant get some time off work for his birthday. I know I can give people some cash to work for me if i have too


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I must not fear. Fear is the mind-killer. Fear is the little-death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past I will turn the inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain.


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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097367 -

Characteristics

The disease course is divided into four stages, with progressive patterns of cognitive and functional impairments.

Pre-dementia

The first symptoms are often mistakenly attributed to ageing or stress. Detailed neuropsychological testing can reveal mild cognitive difficulties up to eight years before a person fulfils the clinical criteria for diagnosis of AD. These early symptoms can affect the most complex daily living activities. The most noticeable deficit is memory loss, which shows up as difficulty in remembering recently learned facts and inability to acquire new information.

Subtle problems with the executive functions of attentiveness, planning, flexibility, and abstract thinking, or impairments in semantic memory (memory of meanings, and concept relationships) can also be symptomatic of the early stages of AD. Apathy can be observed at this stage, and remains the most persistent neuropsychiatric symptom throughout the course of the disease. The preclinical stage of the disease has also been termed mild cognitive impairment, but whether this term corresponds to a different diagnostic stage or identifies the first step of AD is a matter of dispute.

Early

In people with AD the increasing impairment of learning and memory eventually leads to a definitive diagnosis. In a small portion of them, difficulties with language, executive functions, perception (agnosia), or execution of movements (apraxia) are more prominent than memory problems. AD does not affect all memory capacities equally. Older memories of the person's life (episodic memory), facts learned (semantic memory), and implicit memory (the memory of the body on how to do things, such as using a fork to eat) are affected to a lesser degree than new facts or memories.

Language problems are mainly characterised by a shrinking vocabulary and decreased word fluency, which lead to a general impoverishment of oral and written language. In this stage, the person with Alzheimer's is usually capable of adequately communicating basic ideas. While performing fine motor tasks such as writing, drawing or dressing, certain movement coordination and planning difficulties (apraxia) may be present but they are commonly unnoticed. As the disease progresses, people with AD can often continue to perform many tasks independently, but may need assistance or supervision with the most cognitively demanding activities.

Moderate

Progressive deterioration eventually hinders independence; with subjects being unable to perform most common activities of daily living. Speech difficulties become evident due to an inability to recall vocabulary, which leads to frequent incorrect word substitutions (paraphasias). Reading and writing skills are also progressively lost. Complex motor sequences become less coordinated as time passes and AD progresses, so the risk of falling increases. During this phase, memory problems worsen, and the person may fail to recognise close relatives. Long-term memory, which was previously intact, becomes impaired.

Behavioural and neuropsychiatric changes become more prevalent. Common manifestations are wandering, irritability and labile affect, leading to crying, outbursts of unpremeditated aggression, or resistance to caregiving. Sundowning can also appear. Approximately 30% of people with AD develop illusionary misidentifications and other delusional symptoms. Subjects also lose insight of their disease process and limitations (anosognosia). Urinary incontinence can develop. These symptoms create stress for relatives and caretakers, which can be reduced by moving the person from home care to other long-term care facilities.

Advanced

During the final stage of AD, the person is completely dependent upon caregivers. Language is reduced to simple phrases or even single words, eventually leading to complete loss of speech. Despite the loss of verbal language abilities, people can often understand and return emotional signals. Although aggressiveness can still be present, extreme apathy and exhaustion are much more common results. People with AD will ultimately not be able to perform even the simplest tasks without assistance. Muscle mass and mobility deteriorate to the point where they are bedridden, and they lose the ability to feed themselves. AD is a terminal illness, with the cause of death typically being an external factor, such as infection of pressure ulcers or pneumonia, not the disease itself.

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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097370 -

Hey give yourself credit, you're giving more of a shit right now than a lot of elderly with alzheimer's in the USA get. Hell, there is a lady at the top of my street who rambles bible verses (used to be a Sunday School teacher) as she walks up and down my street randomly with two grocery bags filled with dirt. She literally stands in the middle of the street sometime, staring, chanting bible verses.

She lives alone. She might get hit by a car soon, fall over with no help, or any other situation and her extremely well off family wont give a shit. They don't even visit her. They just put her in a house and said "fuck it". If it wasn't for my one neighbor helping where she can, this lady would probably dead right now.

My point is don't get down on yourself over the past. You are being proactive about the future and doing what's right. It might be hard but it's the right thing. You are a good person :thumbup:


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Re: Dealing with parents with alzheimer's [Re: gzuf]
    #16097380 -

Quote:
gzuf said:Why don't you fuck off with the copy pasting?


I'm just getting the rest of the Shroomery up to date in case they don't know about Alzheimer's Disease.  Geeze.  Lighten up bro.  U mad bro?

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Re: Dealing with parents with alzheimer's [Re: trip forever]
    #16097391 -

I hope I won't sound selfish.

The thing with AD is that it, in most cases, ruins the life of the caregiver. If you haven't seen it upclose for some amount of time it's hard to picture how your life would change. Even if you have thick skin. But it's hard to have thick skin with relatives and not be hurt when hearing some hard stuff.
I would recommend you to left the care to the professionals and then try to observe it so everything goes as you feel it should with their care.


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Re: Dealing with parents with alzheimer's [Re: abltsandwich]
    #16097410 -

abltsandwich said:
Quote:
gzuf said:Why don't you fuck off with the copy pasting?


I'm just getting the rest of the Shroomery up to date in case they don't know about Alzheimer's Disease.  Geeze.  Lighten up bro.  U mad bro?


:sad: I'm sorry, it was instinctual anger that I regret after I hit my bowl; hence deleting the post.

Can we make up with some dumpster sex real quick?


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Re: Dealing with parents with alzheimer's [Re: gzuf]
    #16097411 -

Only if you play catcher.

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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097414 -

trekie said:
They dont want to leave the home they built themselfs and raised 7 kids in.



you need to bring someone in that you can trust to take care of them while
you're not home, it's not cheap but in most cases it's cheaper than a home.
if they have a pension or something then that should help with the cost


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California Has Legalized Child Prostitution

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Re: Dealing with parents with alzheimer's [Re: abltsandwich]
    #16097419 -

abltsandwich said:
Quote:
gzuf said:Why don't you fuck off with the copy pasting?


I'm just getting the rest of the Shroomery up to date in case they don't know about Alzheimer's Disease.  Geeze.  Lighten up bro.  U mad bro?



most of us know what Alzheimer's is, it also help if you dont just past a
wall of text but offer an explanation beforehand as to why you're posting it


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California Has Legalized Child Prostitution

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Re: Dealing with parents with alzheimer's [Re: Prisoner#1]
    #16097434 -

get some money out of them
and buy an ass load of drugs
so u dont have to think about
how shitty things are
wut i would do

Edited by cinic (04/16/12 02:39 PM)

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Re: Dealing with parents with alzheimer's [Re: cinic]
    #16097463 -

Oh man OP I'm sorry for you, that's a very hard thing to have to live with. I believe my grandmother is in the beginning stages of Alzheimer's and Its really sad to know it'll only get worse.

My heart goes out to you man. :feelsbadman:


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Long live the Shroomery!!!

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Re: Dealing with parents with alzheimer's [Re: pk0312]
    #16097480 -

pk0312 said:
I hope I won't sound selfish.

The thing with AD is that it, in most cases, ruins the life of the caregiver. If you haven't seen it upclose for some amount of time it's hard to picture how your life would change. Even if you have thick skin. But it's hard to have thick skin with relatives and not be hurt when hearing some hard stuff.
I would recommend you to left the care to the professionals and then try to observe it so everything goes as you feel it should with their care.


this, it's really shitty :sad:


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Re: Dealing with parents with alzheimer's [Re: trekie]
    #16097495 -

My main thesis for my gerontology class this semester is Alzheimer's disease. I'm actually finishing up my power point presentation right now. I feel for ya, man. It's a horrible thing

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Re: Dealing with parents with alzheimer's [Re: I_was_the_walrus]
    #16097592 -

my uncle who was taking care of my grandma died then things got really crazy :bye:


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