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 lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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 worn down by chronic pain... 
#4053366 - 04/14/05 02:36 AM (19 years, 7 days ago) |
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"what's the worst that could happen"...
a statement commonly bandied around by
shiny happy healthy, relatively pain-free people...
well here's a news flash...
The worst that could happen....IS TERRIFYING !!!!!
like having your balls burnt every few minutes...
like having your anal orriface opened up and bees
shoved inside to sting u regularly...
like having ants slowly eat up your eyes...
ok, so maybe the probability of this happening
is low..BUT... the probability of living with
BAAD chronic pain is very REAL.
I've had Panic Disorder and Depression after a
bad shroom trip 2 years and 2 months ago. As if
this wasn't bad enuff I've had other physically
traumatic pains to deal with over this course of
time...
My bladder stopped functioning once due to the
meds these crazy docs gave me and I was in agony
for a week.
I developed temperature dissasociation and my body
feels like it's on fire and freezing at the same
time (this has been constant for the past 6 months
and intermittent for a year and a half before that).
For the past month I developed an ear infection when
a doc was examining my ear canal for irritation from
allergies. Since then I've been in excruciating pain due
to the ear infection. Antibiotics have failed as have
other meds...
the answer to "what's the worst that can happen" isn't
very reassuring...and YES, it COULD happen to u
(I never thought it would happen to me, but it did...and is)
anyone dealing with bad chronic pain knows this...
yes, part of pain is psychological, but anyone who
claims that ALL pain can be overcome/dealt with
should kindly try some of the methods I mentioned
earlier to see if they're really being hypocritical...
The worst part is that people only think u need help
when they can see it or it shows up on a lab report.
Everyone (docs, family, friends) just dismisses my chronic
burning/freezing bodily pain (they tell me it's all in my
head and I should get over it)...but...when I had a car
accident last year and was scraped and bleeding quite
profusely (which I'm used to from my ol days of bike racing
martial arts and other sports) everyone was fussing over me
even tho i kept telling em I wasn't in much pain !!!
I told em that my chronic burning/freezing bodily sensations
are MUCH worse than the scraps, bruises n bleeding, but
everyone just ignored me...
anyone else out there living with BAD chronic pain ?
the kind where u want to end your life, even tho
u don't want to, just to stop the pain ?
how do u deal with it ?
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"no-mind un-thinks no-thought..."
Edited by lucid (04/14/05 02:44 AM)
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Gomp
¡(Bound to·(O))be free!
 
Registered: 09/11/04
Posts: 10,888
Loc: I re·side [primarily] in...
Last seen: 1 year, 1 month
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 Re: worn down by chronic pain... [Re: lucid]
#4053772 - 04/14/05 08:16 AM (19 years, 7 days ago) |
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indeed..
the pain is a signal...
this signal is interpreted...
its not the pain hurting.. it is the hurt, that hurts..!
I'm sorry concrete, is a word in the dictionary...
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Disclaimer!?
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lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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Re: worn down by chronic pain... [Re: Gomp]
#4054129 - 04/14/05 10:12 AM (19 years, 7 days ago) |
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Quote:
Gomp said:
its not the pain hurting.. it is the hurt, that hurts..!
Thanks for the feedback Gomp, but don't u think that's
just word play ?
in the world of animals where there are no words is there
no pain ?
I don't buy into the whole word play on pain and suffering
being 2 seperate things. Pain is pain. It hurts and no words
on the planet can change the biological experience and
reality of pain...
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"no-mind un-thinks no-thought..."
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 Icelander
The Minstrel in the Gallery
Registered: 03/15/05
Posts: 95,368
Loc: underbelly
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 Re: worn down by chronic pain... [Re: lucid]
#4055314 - 04/14/05 03:25 PM (19 years, 7 days ago) |
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Friend, I have something for you. Check out this book. FULL CATASTROPHE LIVING, Using the wisdom of your body and mind to face stress, pain, and illness, by Jon Kabat-zinn, Ph.D.
This works when other pain treatments fail. It was used at the U of Massachusetts Medical Center on folks with cronic pain that modern medicine had given up on. 70% success rate. 
Hope this helps you. Take care. 
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"Don't believe everything you think". -Anom.
" All that lives was born to die"-Anom.
With much wisdom comes much sorrow,
The more knowledge, the more grief.
Ecclesiastes circa 350 BC
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lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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Re: worn down by chronic pain... [Re: Icelander]
#4055398 - 04/14/05 03:43 PM (19 years, 7 days ago) |
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Quote:
Icelander said:
Friend, I have something for you. Check out this book. FULL CATASTROPHE LIVING, Using the wisdom of your body and mind to face stress, pain, and illness, by Jon Kabat-zinn, Ph.D.
Hope this helps you. Take care.
Thanks Man 
Unfortunately, I've read every self help book on the planet...
almost literally !... including every book by Kabat-Zinn.
I wouldn't have asked for help here without doing a ton
of research on my own.
I read "Wherever u go there u are" by Kabat-Zinn as well
as several books from his collegues (all of
Mark Epstein's books, Rosenbergs books, Joseph Goldstein etc).
I'm also not new to meditation (been practicing for 15 years now).
Read, the Tao, Buddhas teachings...been in CBT therapy, taken
medication...forced myself to bike 300 miles every week last
year, lifted weights for 15 years...
but right now the pain is overwhelming, nothing helps, I can
barely move from this couch I'm on...every cell in my body
feels like it's on fire and ice. My ear aches like hell, but
it's far less torturous than the burning/freezing sensation...
if I could just get rid of that...
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"no-mind un-thinks no-thought..."
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Icelander
The Minstrel in the Gallery
Registered: 03/15/05
Posts: 95,368
Loc: underbelly
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Re: worn down by chronic pain... [Re: lucid]
#4055590 - 04/14/05 04:14 PM (19 years, 7 days ago) |
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Wow, I am so sorry to hear this brother. 
Now I don't know where to go with this. I'm just going to throw this out at you. I would not usually recommend this route. Find a sympathic doctor and get some very strong pain meds. Try to get some temporary relief and break the pain cycle that you are in.
That's all I can think of right now. Maybe in a clear pain free or reduced place you can try to find out the reason for your life being like this. I'm talking from a spiritual standpoint. I tend to think that what ever is happening to us serves some useful purpose in our evolution. I can't back this up so don't ask. But this has been my overwhelming personal experience. 
I am really pulling for you and I care.
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"Don't believe everything you think". -Anom.
" All that lives was born to die"-Anom.
With much wisdom comes much sorrow,
The more knowledge, the more grief.
Ecclesiastes circa 350 BC
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Icelander
The Minstrel in the Gallery
Registered: 03/15/05
Posts: 95,368
Loc: underbelly
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Re: worn down by chronic pain... [Re: lucid]
#4055611 - 04/14/05 04:18 PM (19 years, 7 days ago) |
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I will keep trying to find something for you. I work in the health field and I will just ask around. I have seen miracles.
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"Don't believe everything you think". -Anom.
" All that lives was born to die"-Anom.
With much wisdom comes much sorrow,
The more knowledge, the more grief.
Ecclesiastes circa 350 BC
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lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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Re: worn down by chronic pain... [Re: Icelander]
#4055633 - 04/14/05 04:23 PM (19 years, 6 days ago) |
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Thanks Icelander !
I think You r a miracle 
all the docs have given up on me,
heck even my moms given up on me...
she told me so today (and she's a doctor as well)
feel free to PM me !
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"no-mind un-thinks no-thought..."
Edited by lucid (04/14/05 04:28 PM)
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zahudulallah
Sexual Heretic
Registered: 10/20/04
Posts: 10,579
Loc: Tokyo, Japan
Last seen: 18 years, 10 months
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Re: worn down by chronic pain... [Re: Gomp]
#4055751 - 04/14/05 04:57 PM (19 years, 6 days ago) |
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What?
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Locus
Registered: 03/11/04
Posts: 6,112
Last seen: 3 years, 21 days
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Re: worn down by chronic pain... [Re: lucid]
#4055819 - 04/14/05 05:22 PM (19 years, 6 days ago) |
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ive had BAD chronic pain.. severe horrible chronic pain for nearly five years now. ive been suicidal throughout all of it and ive tried everything possible to help myself, nothing worked. basically the only thing keeping me here now is my more recently developed opiate addiction. I have no fucking idea how i actually got this far though.. i still don't know how much farther i'll get either. so there you go..
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The important thing is not to stop questioning. Curiosity has its own reason for existing. One cannot help but be in awe when he contemplates the mysteries of eternity, of life, of the marvelous structure of reality. It is enough if one tries merely to comprehend a little of this mystery every day. Never lose a holy curiosity. ~ Albert Einstein
"Fear is the great barrier to human growth." ~ Dr. Robert Monroe
~~~*Dosis sola facit venenum*~~~
*Check my profile to listen to my music*
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lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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Re: worn down by chronic pain... [Re: Locus]
#4055843 - 04/14/05 05:30 PM (19 years, 6 days ago) |
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Quote:
Locus said:
ive had BAD chronic pain.. severe horrible chronic pain for nearly five years now. ive been suicidal throughout all of it and ive tried everything possible to help myself, nothing worked. basically the only thing keeping me here now is my more recently developed opiate addiction. I have no fucking idea how i actually got this far though.. i still don't know how much farther i'll get either. so there you go..
Damn, that's awful man I'm really sorry 
what kind of pain (if u feel comfortable sharing) ?
I tried opiates (codeine) but it actually makes my
burning/freezing sensation worse and gives me no
relief.
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"no-mind un-thinks no-thought..."
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Veritas
Registered: 04/15/05
Posts: 11,089
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 Re: worn down by chronic pain... [Re: lucid]
#4058317 - 04/15/05 10:29 AM (19 years, 6 days ago) |
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Have you researched neuropathy? You might find some info and support at http://www.theacpa.org the website for the chronic pain association. I wish you healing and peace.
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redtailedhawk
Explorer of the Mystery
Registered: 11/24/04
Posts: 559
Loc: The Old Continent
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Re: worn down by chronic pain... [Re: lucid]
#4102044 - 04/27/05 08:46 AM (18 years, 11 months ago) |
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Hey Man!
Sorry to hear about your troubles. I have a similar problem with chronic pain, but not as intense as yours. What I found helpful for me is magnesium/calcium supplements. Funny but true! You may want to check out the following site for some additional suggestions on what may work for you:
http://www.wholehealthmd.com/hc/resourceareas_supp/1,1442,446,00.html
On the other hand, there's always opium 
Good luck!
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 "Who are you who live in all these many forms? You're death that captures all. You too are the source of all that's gonna be born. You're glory, mercy, peace, truth. You give calm a spirit, understanding, courage, the contented heart."
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lucid
Jack's AlteredConsciousness
Registered: 03/29/03
Posts: 6,319
Loc: up on the bidet
Last seen: 10 years, 5 months
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Re: worn down by chronic pain... [Re: redtailedhawk]
#4106314 - 04/28/05 09:28 AM (18 years, 11 months ago) |
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Quote:
redtailedhawk said:
Hey Man!
Sorry to hear about your troubles. I have a similar problem with chronic pain, but not as intense as yours. What I found helpful for me is magnesium/calcium supplements. Funny but true! You may want to check out the following site for some additional suggestions on what may work for you:
http://www.wholehealthmd.com/hc/resourceareas_supp/1,1442,446,00.html
On the other hand, there's always opium
Good luck!
Thanks for the reply
did u suffer from burning/freezing sensations as well ?
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"no-mind un-thinks no-thought..."
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tomk
King of OTD
Registered: 09/22/04
Posts: 1,559
Loc: PNW
Last seen: 4 years, 3 days
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Re: worn down by chronic pain... [Re: lucid]
#4106783 - 04/28/05 11:55 AM (18 years, 11 months ago) |
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Is your burning/freezing sensations stopped yet?
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"I am eternally free"
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Gomp
¡(Bound to·(O))be free!
Registered: 09/11/04
Posts: 10,888
Loc: I re·side [primarily] in...
Last seen: 1 year, 1 month
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 Re: worn down by chronic pain... [Re: tomk]
#4107051 - 04/28/05 01:05 PM (18 years, 11 months ago) |
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""It hurts and no words
on the planet can change the biological experience and
reality of pain...""
Only you.. ..can change the biological experience and
reality of pain...(?)  did it not hurt to brush your teeth's as well?
was it good taking a shit.. is really breathing all that painless?
no intention of anything but what it is for you. sending all the love to you my Friend... have a good one!
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Disclaimer!?
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redtailedhawk
Explorer of the Mystery
Registered: 11/24/04
Posts: 559
Loc: The Old Continent
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Re: worn down by chronic pain... [Re: lucid]
#4110475 - 04/29/05 10:01 AM (18 years, 11 months ago) |
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No, no burning/freezing sensations. Only fucking stabbing pain moving randomly from one part of the body to the next. Awesome experience, I tell you! 
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Mobius_Strip
Distant Relative
Registered: 03/11/05
Posts: 322
Loc: Spangladesh
Last seen: 17 years, 9 months
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Re: worn down by chronic pain... [Re: lucid]
#4110714 - 04/29/05 11:10 AM (18 years, 11 months ago) |
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Have you tried accupuncture? I used to have bad chronic back pain and accupuncture has done wonders for me. It might be worth a fair shake.
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The smart way to keep people passive and obedient is to strictly limit the spectrum of acceptable opinion, but allow very lively debate within that spectrum - even encourage the more critical and dissident views. That gives people the sense that there's free thinking going on, while all the time the presuppositions of the system are being reinforced by the limits put on the range of the debate
-Noam Chomsky
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schmutzen
King of the side-pins
Registered: 12/03/02
Posts: 15,773
Loc: Miss Kitty's Lounge
Last seen: 10 minutes, 38 seconds
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Re: worn down by chronic pain... [Re: lucid]
#4112088 - 04/29/05 05:25 PM (18 years, 11 months ago) |
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Keep researching your condition, most doctors either do not care, or have time to research uncommon problems. I've only been in chronic pain (either tendinitis or chronic compression syndrome) for a year now. I know.
It sounds to me like
TM
Do you have a dog?
When I look into my dog's eyes I know that I could never leave her to fend for herself in this world.
Have you tried drinking 80+ oz of water a day? I would suggest cayene pepper supplements to get your circulation going and massive amounts of Kyolic Garlic supplements for your infection and also a beeswax ear candle.
Shamanspalace has something called Iporuru , when mixed with Kratom, Lousewort and some cannibis, it should definately do something for a few hours/days.
Don't give up on us man, it gets better
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"Blow up your TV, throw away your paper. Go to the country, build you a home."
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SheRa
Queen
Registered: 06/05/22
Posts: 11
Last seen: 6 months, 23 days
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Re: worn down by chronic pain... [Re: lucid]
#27819292 - 06/14/22 12:58 PM (1 year, 9 months ago) |
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Holy crap I felt this.
Especially not beings believed.
Even when I can’t speak, only whimper..
People who have known me decades, and never seen me even tear up.
It’s crazy.
I’ve had that freezing/burning thing too. It’s not constant and even I thought it was in my head before you mentioned it.
You know what? Eff the people who even give a crap about addiction. There are tons of meds that are addictive. If they work, we should be able to use them. Wean off later, just like any other.
I have a friend who is newly diagnosed with diabetes, but it hit him hard. He’s doing low carb and that is helping with his issues. But he doesn’t have our pain so it’s just another dart to throw if you want.
Hugs.
Wish I could be more helpful.
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