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Offlineviraldrome
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Registered: 09/21/18
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Dementia sucks * 3
    #28391020 - 07/10/23 05:16 AM (6 months, 16 days ago)

Probably most depressive post I ever made on shroomery, feel free to skip it, it's more for me than you.

I knew this day was coming. My dad is 86 and has dementia. Today my brother facetimed me from nursing home and my dad flatout did not know who i was. That one hit me hard and i had trouble hiding it. He has a graduate degree in Chemistry and like 10 years ago if you watched Jeopardy! with him you'd get mad how many answers he fired off. The decline was fast and brutal. On the whole family. The weird thing is the random shit he remembers, like our next door neighbor 40 years ago or our old cats name. You forget the important shit but small trivial facts remain.   

If I ever get the diagnosis myself i will not go thru that shit, either the doctors will do me or I will do it myself. I wonder if there anything you can do to lower risk? Its probably genetic, and i'm doomed. I see books of brain exercises  and stuff that advertise they help but it seems like folksy kind of crap i wonder if there is any science in keeping brain healthy. Going out like that is terrifying to me. Clock he drew in the early stages when we knew something was wrong, his denial was strong




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Lysergamides I have tried so far: 1P-LSD, 1cP-LSD, ALD-52, AL-LAD, LSZ, ETH-LAD, MIPLA, EIPLA, 1cP-AL-LAD


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OfflineXorgo
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Registered: 06/16/23
Posts: 16
Last seen: 4 months, 13 days
Re: Dementia sucks [Re: viraldrome]
    #28391146 - 07/10/23 08:12 AM (6 months, 16 days ago)

Hey, Just wanna chime in and say that there are small moments, and big moments.
The big moments you guys had, and small moments you will have. They aren't going away, they are just changing, for you and for them.

There's a book on how to personally cope with someone you love getting alzheimer's, and I'm sure it will relate to you as well. Its called Creating Moments of Joy Along the Alzheimer's Journey by Jolene Brackey. I can find you a pdf of it if you're interested.

Sending love, and care.

-Another troubled soul


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OfflineVP123
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Registered: 06/27/19
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Loc: Midwest
Last seen: 9 days, 19 hours
Re: Dementia sucks [Re: viraldrome] * 1
    #28391155 - 07/10/23 08:32 AM (6 months, 16 days ago)

Quote:

viraldrome said:

I see books of brain exercises  and stuff that advertise they help but it seems like folksy kind of crap i wonder if there is any science in keeping brain healthy. Going out like that is terrifying to me.




Sorry that you are going through this. Physical activity, healthy diet, keeping mentally and socially active reduces risk of dementia.

https://www.alzheimers.org.uk/about-dementia/risk-factors-and-prevention/how-reduce-your-risk-alzheimers-and-other-dementias

My mom has dementia. She still recognizes me but our conversations consist on me answering the same couple of questions over and over again. She was not very active when younger, limited her social life and was not very fond of including plant food in her diet. My dad is still sharp and pretty much independent. But my dad loved to walk, always insisted on having some beans and vegetables instead of filling up with meat. He still has a group of friends he often hangs around with and he is always reading books and the news. In that sense those recommendations above seem to be right on.

Sending you love and good vibes. I also wonder if I will be able to stay sharp like my dad or go the route of my mom. Hang in there buddy. As Xorgo says, there are still going to be some small good times.


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Invisibleilus
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Registered: 05/07/04
Posts: 3,152
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Re: Dementia sucks [Re: VP123] * 1
    #28391384 - 07/10/23 02:14 PM (6 months, 15 days ago)

I just took care of my uncle who had Alzheimer's.  It was pretty terrible.  He had his PhD also, dementia seems to hit the smartest people for some strange reason.  Sending lots of love, I know how it is.  At least he's in a home and you don't have to take care of him, many people aren't afforded that luxury.


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Offlineviraldrome
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Re: Dementia sucks [Re: ilus]
    #28391908 - 07/10/23 09:56 PM (6 months, 15 days ago)

Trust me I can't afford it either. We sold his house and thought that money would cover his care until end of life but that got eaten up fast, whole thing pretty much ruined me financially. I couldnt quit my job to care for him as its a full time job he was leaving tap running and walking away, i was worried about fires. One time he wandered off and thank god local business found him and called, it was about 10 minutes from being on news.

Thanks for listening shroomery


--------------------
Lysergamides I have tried so far: 1P-LSD, 1cP-LSD, ALD-52, AL-LAD, LSZ, ETH-LAD, MIPLA, EIPLA, 1cP-AL-LAD


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Invisibleilus
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Registered: 05/07/04
Posts: 3,152
Loc: Around the bend.
Re: Dementia sucks [Re: viraldrome] * 1
    #28391916 - 07/10/23 10:05 PM (6 months, 15 days ago)

Yeah dude it's super rough.  Way, way more than a full time job.  I was 100% living for another person in every single way possible.  It was nearly impossible for even 2 people to do.  It really made me realize how important having an easy way out is, as terrible as that sounds.  Never would I thought that I'd be fist fighting my family naked with them pissing all over me.  :lol:

Lots of really hard lessons.  One time I left him in the car and stepped outside for a second and he locked the door with the keys in it!!  I couldn't get him to open it again either, lol.

One thing I'll mention is that when hospice time comes whatever you do, do NOT let them give him Haldol.  It gave him Parkinsons-like symptoms and I unfortunately I figured this out wayyyyyy too late.  I can't believe some of the things I went through with hospice.  They were mostly great, but man did they drop the ball on a few serious things that I probably could have sued for if I wanted to.


--------------------
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