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OfflineRache2020
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Registered: 10/18/20
Posts: 315
Last seen: 18 hours, 31 minutes
Schizophrenia and stigma * 1
    #28199459 - 02/22/23 04:06 PM (10 months, 29 days ago)

Hi all,

I've been trying to learn what I can about Schizophrenia as my brother has it. No one has told us anything about his diagnosis other than he has paranoid Schizophrenia because they're his private medical details (as it should be) so I can only really find out about it googling and asking questions on forums. We are all affected by his behaviour right now and we are not getting much professional advice or support.

I've been unwittingly causing a bit of offence I think as I didn't realise there was such a stigma about it. The only thing I knew about it was that people get pissed if you mention anything about a link to pot (fair enough) but now I find people are offended if you mention an increased likelihood of violence or addiction issues with the condition. It literally says there is an increased risk and link when I research it, is this wrong?

I get that there are people with the condition who are not violent or addicted to substances but my brother is pretty aggravated at the moment, because he's experiencing a psychotic episode. I'm just trying to stop something terrible happening to him or someone else because no one will give us any support.

What are people's experiences with Schizophrenia? I was reading some rather worrying reddit posts (I know it's reddit but yeh lol) so I don't want to take any risk of violence lightly, even at the risk of offending people with Schizophrenia who are not violent. Surely this is more important than people's feelings? I get that people get pissed at the stigma, but I'm not gonna lie and say my brother is not a risk just so I don't offend people...


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InvisiblefeeversM
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Registered: 12/28/10
Posts: 8,546
Re: Schizophrenia and stigma [Re: Rache2020]
    #28199718 - 02/22/23 07:12 PM (10 months, 29 days ago)

I worked for a little bit in a group home where people who were transitioning from their multi-year sentence at the state psych hospital would stay while they waited for housing, or to see how they adjusted to their freedom before returning home to family.

Weed and schizophrenia do not mix well at all for the most part, though many schizophrenics love it. Not only the link to it triggering the first psychotic episode, but with a lot of schizophrenics I've seen after the first hit it's pretty much instant psychosis.

Violence isn't super common with schizophrenia, but psychosis can make anyone violent. My only experience with schizophrenics is with violent ones so my view is definitely skewed, but psychosis is typically an extremely unpredictable and vulnerable state. Stigma sucks, but I've seen enough that I don't want to be around anyone who's actively psychotic and not taking meds. There's just no way to predict how it will play out.

I had an aunt who was probably 45 when her first episode happened, which is pretty rare for it happen that late. It was after smoking weed, she tried to attack her cousin because she thought she was Jesus and the cousin was Judas. She stabilized and a month later tried to attack my mother because something about Obama trying to take over the world. She was always perfectly normal before she snapped, it's such a wild illness


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28199835 - 02/22/23 08:15 PM (10 months, 29 days ago)

There is a lot of stigma. And untruths

Look up simulation videos on youtube that simulate what it is like to be schizophrenic. I had a professor in college have us do this. I learned alot.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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OfflineRache2020
Stranger
Registered: 10/18/20
Posts: 315
Last seen: 18 hours, 31 minutes
Re: Schizophrenia and stigma [Re: feevers]
    #28199909 - 02/22/23 09:00 PM (10 months, 29 days ago)

Quote:

feevers said:
I worked for a little bit in a group home where people who were transitioning from their multi-year sentence at the state psych hospital would stay while they waited for housing, or to see how they adjusted to their freedom before returning home to family.

Weed and schizophrenia do not mix well at all for the most part, though many schizophrenics love it. Not only the link to it triggering the first psychotic episode, but with a lot of schizophrenics I've seen after the first hit it's pretty much instant psychosis.

Violence isn't super common with schizophrenia, but psychosis can make anyone violent. My only experience with schizophrenics is with violent ones so my view is definitely skewed, but psychosis is typically an extremely unpredictable and vulnerable state. Stigma sucks, but I've seen enough that I don't want to be around anyone who's actively psychotic and not taking meds. There's just no way to predict how it will play out.

I had an aunt who was probably 45 when her first episode happened, which is pretty rare for it happen that late. It was after smoking weed, she tried to attack her cousin because she thought she was Jesus and the cousin was Judas. She stabilized and a month later tried to attack my mother because something about Obama trying to take over the world. She was always perfectly normal before she snapped, it's such a wild illness




I was a really young kid when my brother first got diagnosed. It was shortly after a trip abroad where he tried weed. I don't mention it a lot because of the "weed doesn't cause Schizophrenia" crowd and also because it could just be coincidence, but it makes you think! He was just that age though when it usually comes out (late teens), so maybe he was always destined to get it with or without weed. I guess most people have tried it at some point anyway, although I haven't myself. I don't think he smokes it now, I think he just tried it whilst on vacation (although I can't be sure what he gets up to) I know he reacts badly to alcohol as well and drinks too much.

Definitely agree on the psychosis. He can go years being fine and the most laid back guy, but he gets pissed off so easily right now. So I guess that's why people don't like the stigma, because when they are stable they are not violent. Unfortunately my brother is not stable right now, I don't think he'd hurt anyone but he can wreck property for sure, and I worry he'll hit someone in his car being drunk or something. I also can't say for sure what he's capable of-here to get someone sectioned they have to be a danger to themselves or others. I mean how can I know what he's capable of? How can anyone know what someone else, hell even themselves is even capable of?

Sorry to hear about your aunt, did she recover long-term? I worry how this is all going to end tbh...

@loladoreen thanks I looked up a vid but it has a warning on it, I have quite bad depression and get the odd panic attack, would you say it's ok to watch the vid? I don't wanna give myself issues as well...


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28199932 - 02/22/23 09:18 PM (10 months, 29 days ago)

Quote:

Rache2020 said:
Quote:

feevers said:
I worked for a little bit in a group home where people who were transitioning from their multi-year sentence at the state psych hospital would stay while they waited for housing, or to see how they adjusted to their freedom before returning home to family.

Weed and schizophrenia do not mix well at all for the most part, though many schizophrenics love it. Not only the link to it triggering the first psychotic episode, but with a lot of schizophrenics I've seen after the first hit it's pretty much instant psychosis.

Violence isn't super common with schizophrenia, but psychosis can make anyone violent. My only experience with schizophrenics is with violent ones so my view is definitely skewed, but psychosis is typically an extremely unpredictable and vulnerable state. Stigma sucks, but I've seen enough that I don't want to be around anyone who's actively psychotic and not taking meds. There's just no way to predict how it will play out.

I had an aunt who was probably 45 when her first episode happened, which is pretty rare for it happen that late. It was after smoking weed, she tried to attack her cousin because she thought she was Jesus and the cousin was Judas. She stabilized and a month later tried to attack my mother because something about Obama trying to take over the world. She was always perfectly normal before she snapped, it's such a wild illness




I was a really young kid when my brother first got diagnosed. It was shortly after a trip abroad where he tried weed. I don't mention it a lot because of the "weed doesn't cause Schizophrenia" crowd and also because it could just be coincidence, but it makes you think! He was just that age though when it usually comes out (late teens), so maybe he was always destined to get it with or without weed. I guess most people have tried it at some point anyway, although I haven't myself. I don't think he smokes it now, I think he just tried it whilst on vacation (although I can't be sure what he gets up to) I know he reacts badly to alcohol as well and drinks too much.

Definitely agree on the psychosis. He can go years being fine and the most laid back guy, but he gets pissed off so easily right now. So I guess that's why people don't like the stigma, because when they are stable they are not violent. Unfortunately my brother is not stable right now, I don't think he'd hurt anyone but he can wreck property for sure, and I worry he'll hit someone in his car being drunk or something. I also can't say for sure what he's capable of-here to get someone sectioned they have to be a danger to themselves or others. I mean how can I know what he's capable of? How can anyone know what someone else, hell even themselves is even capable of?

Sorry to hear about your aunt, did she recover long-term? I worry how this is all going to end tbh...

@loladoreen thanks I looked up a vid but it has a warning on it, I have quite bad depression and get the odd panic attack, would you say it's ok to watch the vid? I don't wanna give myself issues as well...




I believe so. Let me explain my reasoning and you can decide what it best for yourself.
Schizophrenia is a very unique diagnosis. And difficult.
They experience things we do not understand because we do not experience them.
For example, their hearing changes, they hear noises, voices and the voices are rarely and I mean rarely ever positive or even neutral based.
Vision can change, hallucination can be terrifying because they feel real.
Mood changes rapidly.
What I have seen the most with someone that is first diagnosed is they are terrified, scared to be honest to others because of other peoples reactions.
This will assist people in understanding . So you are able to say and act in a way that he understand you are their to listen, to support and even though you may not comprehend it, you are empathetic and will try. But never judge .
That is where their biggest challenges come from. Being abandoned and alone and not understood.
Going out of your way to educate yourself and then learning how to best support him is in my opinion the best thing for him
You will understand why they are resistant to get diagnosed, speak about it and why they are in fear.
It is real
Medication helps stop voices, etc.
medication also fucking sucks ass.
They report feeling numb, empty, no emotions at all which means no joy happiness etc
so connection.. connection with others is everything
I applaud you for being such a good sister.
FYI None of the videos I ever watched traumatized me. I am not you. It is based no how you receive it. Receive it as education and to assist you in better understanding.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28199939 - 02/22/23 09:23 PM (10 months, 29 days ago)

[url=https://https://youtu.be/63lHuGMbscU]https://
/url]
https://https://www.tiktok.com/@xoradmagical/video/7016953174963588358?lang=en
[url=https://https://youtu.be/0vvU-Ajwbok]https://
/url]


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28199940 - 02/22/23 09:24 PM (10 months, 29 days ago)

It is really important to remember
This is not every persons experience.
And
you are learning to support
If it bothers you
TURN IT OFF
Here are some tips:
Educate yourself. ...
Listen. ...
Use empathy, not arguments. ...
Don't take it personally. ...
Take care of yourself, too. ...
Maintain your social network. ...
Encourage your loved one to keep up with their treatment and recovery plan. ...
Take action if you think you or your loved one is in danger.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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OfflineLogicaL ChaosM
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Re: Schizophrenia and Stigma [Re: Rache2020]
    #28200081 - 02/23/23 12:37 AM (10 months, 29 days ago)

I was a bit confused by your post so I will just give some general info on Schizophrenia.

Apparently in 2013, the disorder was renamed "Schizophrenia with Paranoia" to better reflect the psychological reality of the condition: https://www.webmd.com/schizophrenia/schizophrenia-paranoia

https://my.clevelandclinic.org/health/diseases/23348-paranoid-schizophrenia#:~:text=Paranoid%20schizophrenia%20is%20a%20subtype%20of%20schizophrenia%20that,experts%20look%20for%20when%20diagnosing%20and%20treating%20schizophrenia.

https://www.verywellhealth.com/paranoid-schizophrenia-symptoms-5115445

YT has a bunch of good videos on the subject:













A yes, there is a lot of stigma around the disorder. Some famous serial killers from the past had Schizophrenia and thus is associated with murder. Its where the term "psychopath" came from. But most with the disorder are not violent. Its just those people who are make it into the news and public eye and thus are the "face" of the mental illness.

Sadly, psychedelics like Mushrooms and LSD cannot be used to treat this disorder and will only make it worst, at least as far as I know of. The best treatments are anti-psychotics which have to prescribed from a doctor.

And lastly, remember that "Positive" symptoms are symptoms that are added to the person and "Negative" symptoms are symptoms that are missing from the person. They do not refer to "good" and "bad" associations of symptoms as are commonly used to described drug effects.

There's several behavioral treatments that can help with treating the illness as well such as:

Cognitive-Behavior Therapy (CBT)
Behavioral skills training (Teaching helpful, self-treating behaviors)
Cognitive remediation (Cognitive Rehab)
Family Education & Support (Family members learning about and helping with these behavioral techniques)

I recommend learning more about these techniques and working with your brother in order to help his condition. And if even better if your whole family can join in and help out to support him (assuming they are mentally balanced and willing to help). It will be a lot of work and effort to apply different behavioral treatments, but if done right, it will really help your brother and your family out in the long run.

I hope this info helps you and your brother.


--------------------
"What you must understand is that your physical dimension affects everyone in the higher dimensions as well. All things are interconnected. All things are One. Therefore, if one dimension is broken or out of balance, then all other dimensions will experience repercussions." - Pleiadian Prophecy 2020 The New Golden Age by James Carwin

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OfflineRache2020
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Registered: 10/18/20
Posts: 315
Last seen: 18 hours, 31 minutes
Re: Schizophrenia and stigma [Re: loladoreen] * 1
    #28200879 - 02/23/23 03:55 PM (10 months, 28 days ago)





I believe so. Let me explain my reasoning and you can decide what it best for yourself.
Schizophrenia is a very unique diagnosis. And difficult.
They experience things we do not understand because we do not experience them.
For example, their hearing changes, they hear noises, voices and the voices are rarely and I mean rarely ever positive or even neutral based.
Vision can change, hallucination can be terrifying because they feel real.
Mood changes rapidly.
What I have seen the most with someone that is first diagnosed is they are terrified, scared to be honest to others because of other peoples reactions.
This will assist people in understanding . So you are able to say and act in a way that he understand you are their to listen, to support and even though you may not comprehend it, you are empathetic and will try. But never judge .
That is where their biggest challenges come from. Being abandoned and alone and not understood.
Going out of your way to educate yourself and then learning how to best support him is in my opinion the best thing for him
You will understand why they are resistant to get diagnosed, speak about it and why they are in fear.
It is real
Medication helps stop voices, etc.
medication also fucking sucks ass.
They report feeling numb, empty, no emotions at all which means no joy happiness etc
so connection.. connection with others is everything
I applaud you for being such a good sister.
FYI None of the videos I ever watched traumatized me. I am not you. It is based no how you receive it. Receive it as education and to assist you in better understanding.




Thank you, I really appreciate you giving such a detailed response. I'll watch the vids. Yep I'm trying to be a good sister, it's hard though! He says horrible things, but I'm sure he can't even remember the next day. I just keep him talking on the phone when I can so he doesn't go out and get into trouble, even if it's the middle of the night.

@LogicaL Chaos I guess I was just looking for as much info and advice as possible about how to handle someone with Schizophrenia, without offending or stigmatising the condition (which seems like a fine line!) but thank you, I mean wow so many resources there, I couldn't have asked for more. I will look through all of them, much appreciated.


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28200887 - 02/23/23 03:59 PM (10 months, 28 days ago)

Quote:

Rache2020 said:




I believe so. Let me explain my reasoning and you can decide what it best for yourself.
Schizophrenia is a very unique diagnosis. And difficult.
They experience things we do not understand because we do not experience them.
For example, their hearing changes, they hear noises, voices and the voices are rarely and I mean rarely ever positive or even neutral based.
Vision can change, hallucination can be terrifying because they feel real.
Mood changes rapidly.
What I have seen the most with someone that is first diagnosed is they are terrified, scared to be honest to others because of other peoples reactions.
This will assist people in understanding . So you are able to say and act in a way that he understand you are their to listen, to support and even though you may not comprehend it, you are empathetic and will try. But never judge .
That is where their biggest challenges come from. Being abandoned and alone and not understood.
Going out of your way to educate yourself and then learning how to best support him is in my opinion the best thing for him
You will understand why they are resistant to get diagnosed, speak about it and why they are in fear.
It is real
Medication helps stop voices, etc.
medication also fucking sucks ass.
They report feeling numb, empty, no emotions at all which means no joy happiness etc
so connection.. connection with others is everything
I applaud you for being such a good sister.
FYI None of the videos I ever watched traumatized me. I am not you. It is based no how you receive it. Receive it as education and to assist you in better understanding.




Thank you, I really appreciate you giving such a detailed response. I'll watch the vids. Yep I'm trying to be a good sister, it's hard though! He says horrible things, but I'm sure he can't even remember the next day. I just keep him talking on the phone when I can so he doesn't go out and get into trouble, even if it's the middle of the night.

@LogicaL Chaos I guess I was just looking for as much info and advice as possible about how to handle someone with Schizophrenia, without offending or stigmatising the condition (which seems like a fine line!) but thank you, I mean wow so many resources there, I couldn't have asked for more. I will look through all of them, much appreciated.</font></font>




You may find it beneficial to you to join a support group. So you have others to talk to and learn from and express your own experience and feelings.  And you can get ideas on what helps others succeed.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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OfflineRache2020
Stranger
Registered: 10/18/20
Posts: 315
Last seen: 18 hours, 31 minutes
Re: Schizophrenia and stigma [Re: loladoreen]
    #28202624 - 02/24/23 01:58 PM (10 months, 27 days ago)

That's a good idea. I'll see if there is anything local to me, I suppose it's unlikely though since it only affects about 1% of the population. I went on a Schizophrenia reddit and they were basically like "friends and family can GTFO complaining about how hard it is knowing someone with this condition" so I realised I wasn't gonna get any help there! Then I realised how stigmatised they are, which sucks of course but doesn't change the fact family and friends are also massively affected. I'll have a look to see if there are any family support ones.


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Invisibleloladoreen
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Registered: 05/25/20
Posts: 5,327
Re: Schizophrenia and stigma [Re: Rache2020]
    #28203153 - 02/24/23 07:35 PM (10 months, 27 days ago)

Look for online groups as opposed to in person


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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