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Offlinearacun
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[New User] Micro Dosing for Cluster Headaches * 1
    #28138046 - 01/13/23 02:33 PM (1 year, 15 days ago)

Hello.  This seems like a wonderful community.  I was wondering if I could solicit a bit of advice?

I'm a soon-to-be 33 year old man.  I've been dealing with cluster headaches since my late teens.  They'll show up, hit me 2-3 times a day for about a month, and then vanish for a year (or a little longer, if I'm lucky). 

Each reemergence seems to be worse than the last.  I have just enough time away from them to hope I'm past them for good, and then they'll come back and render me useless for another good chunk of time.

Currently, my doctor has me on a prescription for a drug called Teva SumaTriptan.  We used to use 50mg tablets, but are now up to 100mg.  I take one whenever I feel an oncoming aura, and then jump in a hot shower and massage my head until it passes.  The meds work best when used preventatively, like that, but often I wake up in the middle of the night already in the throes of one, so I'll use the triptan as a combatant, as well.  It just takes longer to go away if I get to the treatment later on.

Anyways, my doctor says not to take more than 200mg a day.  But lately I have wound up getting 3 headaches per day at times, and I'm worried I'm overdoing the meds. 

My doctor has conferred with some specialists, and seems to think the next best play would be to physically install a device called a beta-blocker in my head, or to inject steroids into my head.  These both sound extreme, and I'd much prefer not to pursue them..

Much online research I've conducted on my own has led, almost unanimously!, to using small doses of mushrooms to help.  And this is how I've found myself here today.

I've taken mushrooms recreationally, a handful of times, during my teens and early 20s.  It has been a long time since I've done them.  I had some light, hilarious experiences on them (playing Guitar Hero 2 and seeing Ghost Rider in theaters stand out), but I've also had the misfortune of overdoing them and having to endure terrifying experiences (I once thought I'd died, and was in my afterlife, for 5 straight hours).

For the past two weeks I've been back in the zone, enduring cluster headaches a few times a day.  They're getting worse and worse.  So I purchased some mushrooms online.  1 gram of dried shroom, a triumphant, scepter-like creature.  And something called a Boom Bar - a 3.5g chocolate bar divvied up into .5g pieces.

I'm wondering if anyone could guide me on any of the following:

* What kind of a dose should I first take, to see if it helps break my cycle?  I'm wary of tripping, due to the aforementioned experiences I've had.  I'd prefer to keep it light, but I want to be sure I'm taking enough to potentially make a difference.

* Should I be careful about taking the shroom dosage in close proximity to the Teva Sumatriptan?  I'm taking a 100mg tablet of the stuff twice a day on average.  I'm nervous that if I take the mushrooms, and then begin to experience a cluster headache as I'm coming up on them, I won't be able to take a triptan to combat the headache.

* Can anyone point me to other communities or points of reference where I can ask specific questions?  Or potentially seek out a specialist in my area?

I apologize for making this such a long post - I felt like I should be thorough with the details of my use case. 

To anyone who reads this, thank you so much in advance!


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Invisible96 WS6
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28138324 - 01/13/23 05:18 PM (1 year, 14 days ago)

I've heard of people microdosing for cluster headaches(suicide headaches). I had about a 5 year span in my late 20s where I would get them every January and into February. I don't wish that on my worst enemy's. I remember literally doing what you say. I would jump in the shower and then rock myself with my head in my lap; till I could fall asleep from exhaustion. I got to where I would eat way unhealthy amounts of excedrin and goody powders through the day just trying to avoid them. When I finally went to the doctor he prescribed me sumatriptan(100mg) and verapamil sr(180mg). It was toward the end of my usual cycle ;so I took the meds as he said for a week and then I knew I was probably done with the headaches for that year. Thank God mine never came back the next and following years and I prayed about it. You could try a tenth of a gram or maybe even less and see if that works. I have heard success stories microdosing for cluster headaches but I never had the opportunity to try it. Good luck and yea I wouldn't want them to cut on me either.


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OfflineCapt. Ramius
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28139097 - 01/14/23 07:23 AM (1 year, 14 days ago)

Hello!

Sorry to hear about your condition! I'm looking into microdosing as well, but for different reasons. I truly believe mushrooms can be helpful to our wellbeing in lots of ways.

From my understanding you can get approximately up to 10 doses from your mushrooms. I don't know if 2 or 3 weeks will be long enough to tell if they are working or not. Another big question mark is how potent the mushrooms you got really are and did you get the real deal. That's why we are growing our own. The exact potency will still be a mystery but we know the species we're ingesting. Plus it's darn fun to grow all kinds of mushrooms! :smile:

I encourage you to try growing some of your own. That way you can try them long enough and with different amounts to tell if they help with your condition. Lots of helpful folks around here to help you with your grow! :mushroom2:


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Offlineonebowlcharlie
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Re: [New User] Micro Dosing for Cluster Headaches [Re: Capt. Ramius]
    #28139364 - 01/14/23 10:49 AM (1 year, 14 days ago)

Sorry to hear about your struggles.  I thankfully don't have any experience with cluster headaches but I do have experience with micro-dosing (MD) for depression and anxiety.  There are many different approaches to MDing and it seems like we all have to find what works for us as individuals.  What has been working for me is 5 days on and 2 days off at .2 gm per day. One day on and 2 days off at .1 gm per day seems to be a pretty common starting point.  That's what I started with but my experiences led me to 5/2 at .2gm and it seems to be working. 

A couple of things to bear in mind are that any SSRI Meds that you may be one will work directly against your MD.  In other words either use SSRIs or MD but do not do both.  Not that it would hurt you but you will gain little or nothing prom the MD.  I would start at .1 gm as a dose and go from there based on how you feel.  If you feel any significant affects from a dose- you took too much. Dosages can be tricky in that every mushroom has a different psilocybin concentration.  In fact-different part of one mushroom may have different concentrations of psilocybin that other parts. In order to get a consistent dosage I grind a few grams at a time in a coffee grinder and put the powder into capsules. This helps quite a bit with consistent dosing.

If this sounds like a bit of a project- it is. For me- it has been well worth the trouble. Once you have your dosage and schedule dialed in- it's easy.  Getting there takes some experimentation.  There are lots of good books and youtube content on the subject.


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: 96 WS6]
    #28139615 - 01/14/23 02:50 PM (1 year, 14 days ago)

This is a wonderful thing to read!  Not the experiences themselves, of course, which mirror mine almost exactly, but the fact that they went away for you and never came back.

If you don't mind, how old were you when they finally stopped?  And which of those meds did you take to finally wave goodbye to them?  I have personally never tried Verapamil, and wonder if I should ask my doctor about it.

I took probably .1 or .15 off of that mushroom I ordered today and ate it before lunch, maybe an hour after my last attack ended.  So far so good.. feeling awfully strange but no headache.  We'll see if there's any lasting discernible difference.

I'm about halfway through the average cycle length, so if the headaches cease at all, I'll know they helped.


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: Capt. Ramius]
    #28139620 - 01/14/23 02:53 PM (1 year, 14 days ago)

Thank you for your response!  I have read many accounts of people microdosing on a more or less permanent basis to prevent things like headaches from happening at all, but I am more hoping to discover whether it's okay to take some while in the midst of a cluster phase. 

I appreciate your kind words :smile:


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: onebowlcharlie]
    #28139622 - 01/14/23 02:53 PM (1 year, 14 days ago)

Thank you, I appreciate it.  I am very glad to hear that you've discovered a mix that works for you! :smile:


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Invisible96 WS6
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28139713 - 01/14/23 03:57 PM (1 year, 13 days ago)

I really can't say that any of the medicine helped me. By the time I got around to seeing a neurologist; I hadn't had them for about a week and that led me to believe I was good for the year. My neurologist knew exactly what it was as soon as I told  my symptoms. Then said I was the second case seen throught the career. So it is very rare. The neurologist wanted me to take the Verapamil SR (180mg) starting in December and through February. Trying to see if this would stop them completely. The sumatriptan(100mg); I was advised to take at the onset of the headache. The next year I think I might have took the verapamil sr for a week or two and just quit because I wasn't having them. My last year that I had them; I did have a bunch of dental work done that was much needed for the previous years. The neurologist seemed to really want to look at my teeth during the appointment; at which I was about halfway through a bunch of fillings and root canals. I was probably 30 years old the last year of my headaches.


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Invisible96 WS6
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28139813 - 01/14/23 04:48 PM (1 year, 13 days ago)

Also drinking alcohol during the cycle of headaches is the worst thing you could do. I'm sure you already figured that out though. I remember just drinking a pint of beer when I would go out on the weekends would trigger the headache before I could get out of the restraunt. I was also advised by the doctor not to drink and which I wouldn't really do at all during the cycles anyway.


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Invisibleloladoreen
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28139856 - 01/14/23 05:01 PM (1 year, 13 days ago)

Quote:

aracun said:
Hello.  This seems like a wonderful community.  I was wondering if I could solicit a bit of advice?

I'm a soon-to-be 33 year old man.  I've been dealing with cluster headaches since my late teens.  They'll show up, hit me 2-3 times a day for about a month, and then vanish for a year (or a little longer, if I'm lucky). 

Each reemergence seems to be worse than the last.  I have just enough time away from them to hope I'm past them for good, and then they'll come back and render me useless for another good chunk of time.

Currently, my doctor has me on a prescription for a drug called Teva SumaTriptan.  We used to use 50mg tablets, but are now up to 100mg.  I take one whenever I feel an oncoming aura, and then jump in a hot shower and massage my head until it passes.  The meds work best when used preventatively, like that, but often I wake up in the middle of the night already in the throes of one, so I'll use the triptan as a combatant, as well.  It just takes longer to go away if I get to the treatment later on.

Anyways, my doctor says not to take more than 200mg a day.  But lately I have wound up getting 3 headaches per day at times, and I'm worried I'm overdoing the meds. 

My doctor has conferred with some specialists, and seems to think the next best play would be to physically install a device called a beta-blocker in my head, or to inject steroids into my head.  These both sound extreme, and I'd much prefer not to pursue them..

Much online research I've conducted on my own has led, almost unanimously!, to using small doses of mushrooms to help.  And this is how I've found myself here today.

I've taken mushrooms recreationally, a handful of times, during my teens and early 20s.  It has been a long time since I've done them.  I had some light, hilarious experiences on them (playing Guitar Hero 2 and seeing Ghost Rider in theaters stand out), but I've also had the misfortune of overdoing them and having to endure terrifying experiences (I once thought I'd died, and was in my afterlife, for 5 straight hours).

For the past two weeks I've been back in the zone, enduring cluster headaches a few times a day.  They're getting worse and worse.  So I purchased some mushrooms online.  1 gram of dried shroom, a triumphant, scepter-like creature.  And something called a Boom Bar - a 3.5g chocolate bar divvied up into .5g pieces.

I'm wondering if anyone could guide me on any of the following:

* What kind of a dose should I first take, to see if it helps break my cycle?  I'm wary of tripping, due to the aforementioned experiences I've had.  I'd prefer to keep it light, but I want to be sure I'm taking enough to potentially make a difference.

* Should I be careful about taking the shroom dosage in close proximity to the Teva Sumatriptan?  I'm taking a 100mg tablet of the stuff twice a day on average.  I'm nervous that if I take the mushrooms, and then begin to experience a cluster headache as I'm coming up on them, I won't be able to take a triptan to combat the headache.

* Can anyone point me to other communities or points of reference where I can ask specific questions?  Or potentially seek out a specialist in my area?

I apologize for making this such a long post - I felt like I should be thorough with the details of my use case. 

To anyone who reads this, thank you so much in advance!




I feel for you. I get the same and I have migraines that cause me to get tunnel vision. Cluster headaches are extremely painful.
I take the shot and it works so so.
If microdosing works, please let me know.
I feel that they are an invisible disability. If I get one, I am unable to function. I cant even walk. I can't see. I cant do anything. I have had migraines last up to 6 days. And cluster headaches... the pain.. the pain is intense.
It used to be I'd go to the ER get a shot of demerol and toridol and sleep it off. Now they are scared to administer opioids.
Following. I am interested .


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Invisibleloladoreen
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Re: [New User] Micro Dosing for Cluster Headaches [Re: 96 WS6]
    #28139861 - 01/14/23 05:05 PM (1 year, 13 days ago)

Quote:

96 WS6 said:
I really can't say that any of the medicine helped me. By the time I got around to seeing a neurologist; I hadn't had them for about a week and that led me to believe I was good for the year. My neurologist knew exactly what it was as soon as I told  my symptoms. Then said I was the second case seen throught the career. So it is very rare. The neurologist wanted me to take the Verapamil SR (180mg) starting in December and through February. Trying to see if this would stop them completely. The sumatriptan(100mg); I was advised to take at the onset of the headache. The next year I think I might have took the verapamil sr for a week or two and just quit because I wasn't having them. My last year that I had them; I did have a bunch of dental work done that was much needed for the previous years. The neurologist seemed to really want to look at my teeth during the appointment; at which I was about halfway through a bunch of fillings and root canals. I was probably 30 years old the last year of my headaches.




I take the sumatriptan injection at the beginning, I used to take topomax but the side effects were difficult. I take a disolvable for the nausea and vomiting.
I don't drink for a few different reasons but one is that they trigger my migraines.
Finding out your triggers help.
Mine started at 12 years old.
They literally control my life.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: 96 WS6]
    #28139872 - 01/14/23 05:08 PM (1 year, 13 days ago)

Cheers.  Thanks again.  Perhaps I'll ask my doc about Verapamil.  I have most certainly figured that out about alcohol haha.  I've spoiled many nights out.

I'm always wary of potential solutions that require me to start taking something consistently all year round.  The headache waves are so infrequent that I don't want to inject steroids, or go on mood stabilizers, or any of these other things the doctor has suggested that would result in permanent change.

Of course, I'm interested in ANYthing to get rid of these demons.  But I'd prefer to figure something out that I can do to combat them when they do occur.  The microdosing thing has me curious, to say the least.


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: loladoreen]
    #28139880 - 01/14/23 05:12 PM (1 year, 13 days ago)

So sorry to hear this.  I completely feel for you.  I don't know how much good the microdose today did.  I barely even felt the effects of the mushrooms, so perhaps I should've taken a bit more.  Hard to tell when you're chewing on a stem.. but I also have a chocolate bar with controlled amounts in each piece, so I'll try that and it should give me a better feel.

A few hours after the (very minor) onset of the mushrooms, I started feeling like I was getting another cluster headache anyways.  I retreated to my room, lights out, warm cloth over my head.  Just lay there for 2 hours.  I was too afraid to take a Triptan, not sure how it would mix.  It's wearing off now, but I'd be lying if I said it feels like anything has changed overall. 

I'm not sure it's ever meant to be helpful to microdose as a "combatant".  In other words now that I'm already in the middle of a wave, it could be futile to take mushrooms at all.  Most of what I've read has to do with taking larger doses at key times of the year to prevent the onset entirely.

So hopefully somebody can weigh in on this thread with a bit more info!


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: loladoreen]
    #28139884 - 01/14/23 05:15 PM (1 year, 13 days ago)

So sorry to hear it.  Mine started young, too, but I am not sure it was THAT young.  I know what you mean about them controlling your life.  When I start getting these things I am 100% forced to write everything off until they give me a break, typically 30-40 days later.

I am currently staying home from a huge event all of my friends are attending, and it's my birthday in a few days.  They all think I'm flaking - it's frustrating how people who don't understand these things think that we're exaggerating how bad they can get.  Like it's something you can just suck it up and ignore for a night if need be.


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Invisibleloladoreen
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28139908 - 01/14/23 05:28 PM (1 year, 13 days ago)

When I was younger I tried everything the doctor suggested.
The only thing that works for me is the shot along with a nausea/vomiting medication. And I knock myself out to sleep.
But as you probably know. There is a window of time where you can "catch" it or you are completely screwed and it lasts and lasts a week, days or weeks.
If the shot doesn't work for me.. I have been found curled up in a ball crying before.
I do know my triggers because I am 49. I have had them for a long time. Alcohol, smoke, allergies, if I get tired, stress, and processed foods.
two years ago I started having them in the middle of the night, big tracers,pain, vomiting, which is not my norm, I usually get tunnel vision. I went to my local ER, got transferred to a hospital in the city 2 hours away and was observed, MRI's, cat scans,etc. They thought it could of been a brain tumor, a stroke, etc. One neurologist at the hospital told me cluster headaches are one of the most painful, debilitating conditions a person can have. It felt good to talk to someone who didn't just say ohhh you have a headache. NO I am in severe pain. This is not a motrin headache.
I started seeing two different neurologists afterwards. I refuse most medications because they don't work and I hate feeling drugged and I am not willing to gain weight over them.
Topamax actually helps but I use my brain at work and it gave me like.. brain farts. And I can't have that. I can take Nurtec if I feel it starting in the very beginning before it gets out of control and sometimes it works.
I took a shot once that was supposed to last 3 months. And it helped more than anything. They wouldn't give it to me again.
Massages help. I used to get nutritional IV drips, B12 shots, I have tried everything.
My most successful treatment ever was the DHT, I think thats right, IV fusion therapy. I got it twice and it worked almost a year!!!!!!!!!!!!!!!
Most dr's never have heard of it. So I have not been able to get it again. It was like a miracle drug.
Good luck. I feel for you. They are a nightmare.
Following this post.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: loladoreen]
    #28140166 - 01/14/23 08:04 PM (1 year, 13 days ago)

That's an unbelievable history.  I have tried very few of the things you've mentioned here!  However, I can totally relate to your descriptions of the attacks, and the general emotions they illicit.  It's a horrible thing.  The Triptan is the only medication I take, 100mg tablets.  It works quite well.  I recall the doctor once trying to put me on SSRIs as a preventative, but I was required to take them permanently, and they were altering my mood in a horrible way, and I gave up on them quickly.  Didn't seem right.

Fortunately I only get them for about a month out of every year.  Sometimes I get a longer break.  For example, my last wave was August 2021.  I braced for them again this past August, but it didn't happen.  But now I'm getting them in January, instead.  I read that cluster headaches have something to do with the Hypothalamus, and that partially explains why we tend to get them most often during August (when days are longest) and January (when days are shortest).  Change of seasons is typically a trigger.

My triggers are the same as yours, more or less.  Light, sounds, alcohol and smoke.  I'm curious if there are certain foods I should avoid.  Thing is, once I'm in the midst of a wave (typically 30-40 days) I get them every day regardless of anything.  Like clockwork.  In the past I'd only get one each afternoon or evening.  But in August 2021 it was 2-3x per day, and this new wave is the first time I've been getting woken up by them every single night. 

It's scary going to sleep, knowing I'm just going to wake up in the middle of a cluster.  But I also don't want to take a 100mg Triptan before bed as a preventative, because my doctor cautions strongly against exceeding 200mg in any given 24 hour period.  Going over that limit results in the meds becoming far less effective, and they also result in "rebound headaches", where I'll get additional cluster attacks.  This is the worst, as the meds won't help with those, and then I'm left to endure them in their raw form for 3-4 hours, which is easily the worst kind of experience I've ever had.  And I've been through some pretty severe injuries.

I, too, have had multiple MRIs done.  Doctors cannot seem to explain what's going on with me.  The MRIs have shown nothing out of the ordinary, which blows my mind. 

Anyhow, I really appreciate you sharing your story!  I will post again on this thread once I have any findings regarding the microdosing :smile:


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Invisible96 WS6
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Re: [New User] Micro Dosing for Cluster Headaches [Re: loladoreen]
    #28140185 - 01/14/23 08:14 PM (1 year, 13 days ago)

Yea it used to ruin a month of my life and I count every year as a blessing that I haven't had them since. Its such a rare case that there is not much studies done on it and honestly I probably didn't help by not going back to my neurologist the following year when they stopped. I think this thread will go far for those that have them as long as people don't confuse cluster headaches with other illnesses. The doctor that sent me to the neurologist had me labeled as allergie related headaches and my neurologist kind of give me that dumbfounded look when he was reading the paperwork.


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Invisibleloladoreen
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28140214 - 01/14/23 08:30 PM (1 year, 13 days ago)

I hate most of the medications. I cant remember the name of the one they gave me in the hospital. I still have the bottle, I'll go look. But I took it years ago and it did work all right. But I gained weight. And I eat clean and I work out. I try very hard to be healthy I was no ok with the weight gain, its to difficult to lose. And most of the Rx have that effect. It sucks ass.
My allergies are a big big trigger. I went on an elimination diet to try to figure out what specifically it was and ended up just going plant based, but I do eat fish/shellfish if I want to. It does not seem to bother me.
The longest I think I have went without a cluster headache or migraine is maybe a month. I went a long time without a migraine after the DHT IV therapy. That was years ago. Like 10-15 years ago.
I literally have a headache everyday. But migraines and cluster headaches are on a different level.
When I was seeing two different neurologists at the same time it was an interesting experience.
They both were treating me completely different. But for the same condition. I was very irritated that they gate keep medications. My sister has the same condition as I do, along with my father. I'll tell my sister about a medication and her doctor says no that's for more serious. How more serious ?
My father had a stroke in his 20's during a migraine.
I looked at the bottle it is amitripaline (spelled wrong)  Hard core. It knocked me out, but I had no headaches or migraines but I gained weight because I felt like i was starving. Not worth for me.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Offlinearacun
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Re: [New User] Micro Dosing for Cluster Headaches [Re: loladoreen]
    #28140368 - 01/14/23 10:06 PM (1 year, 13 days ago)

So strange about different doctors prescribing totally different things, following different tactics and flat-out shooting down the other's opinions on what is worth taking.

I can't even find myself a neurologist in Toronto to speak with who specializes in this kind of thing.  Even if I could, who knows if they'd be worth their salt?  I'm always nervous about having the wrong thing prescribed.  But I mean.. it's hard to be picky, isn't it?


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Invisibleloladoreen
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28140378 - 01/14/23 10:12 PM (1 year, 13 days ago)

It is hard to be picky but I think if you educate yourself so when you do see one. You are able to advocate for yourself.
Mine were halting my life. I couldn't function. If I have a migraine they last 3-5 days, I have tunnel vision, I am vomiting, and the first and last day is going into it and coming out of it.
Your primary has to refer you but Idk about Canada.
advocate for yourself.


--------------------
“One doesn’t have to operate with great malice to do great harm. The absence of empathy and understanding are sufficient.”


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Offlinearacun
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Registered: 01/13/23
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Last seen: 1 year, 10 days
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun] * 1
    #28145176 - 01/17/23 10:00 PM (1 year, 10 days ago)

I wanted to provide a significant update here, since a few of you have stated you'll be following this thread to see what comes of it.

Now I don't want to get ahead of myself.. I don't want to get anyone's hopes up, especially my own.  But it seems like something fairly incredible may have happened.

This past Saturday, as previously noted, I ate a tiny microdose of dried mushroom.  It was somewhere in the ballpark of 0.1-0.2 grams, really tiny.  I took it when I was approximately 14 days into my cluster headache cycle.  I waited until I had an afternoon where I didn't feel like I was in imminent danger of receiving another attack, and I had a relatively empty stomach. 

The amount I dosed was so small that I barely even felt its effects.  At one point the dimensions of my hallway swam a bit as I walked down it, and at another point I was recording some audio for work and I started laughing at myself a bit.  But aside from that, nothing.

My head felt warm throughout the day.  No headache, just a sort of heated discomfort.  That night, as I was trying to sleep, I started feeling the beginnings of another cluster headache.  No surprise there - up until this point I'd been experiencing 3-4 attacks a day, and they'd frequently woken me up in the middle of the night.  I fully expected another.  And yet.. this one was different.  Just felt like a little seed in my head, a clump that should have started to emanate pure pain, but didn't.  It just.. sat there.  I rubbed at it, I took a hot shower, I took some tylenol, but it wouldn't dissipate.  Finally I conceded, took a 50mg tablet of Triptan (my medication) and it died down enough for me to sleep.

The next day, Sunday, I awoke in a total haze.  Full-blown aura, complete inability to think straight.  But still, not the average panic-inducing wave of pain that typically accompanies the rest of it.  So I avoided taking more Triptan, and instead had another shower and just kinda sat with it for a while. 

Around 4PM that day, the aura subsided.  And then, miraculously, by that evening, I felt entirely though I wasn't in the midst of a cycle anymore.  Any of you guys who have experienced cluster headaches likely know what I mean by this.  When you're in the midst of a cycle (30-90+ days) you're never truly FREE of the headaches.  They're either attacking you, or they're riding the bench, waiting for the coach to put them in again.  yet, on this glorious Sunday evening, I felt like I hadn't had a cluster headache in weeks.  I started trepidatiously reaching out to friends, saying "hey.. this is crazy, but.. I think the mushroom may have done the trick.."  A few of them ventured a guess that placebo may have had something to do with it.  I told them that out of all the ailments in the world, cluster headaches are NOT something one simply wills away.  Those bastards will not leave just because you BELIEVE that they are gone.  So no, I don't believe placebo had anything to do with it.. though I could be wrong there.

Anyhow.. guys, it is now Tuesday night.  And I have not had a cluster headache since I ate that 0.1g of mushrooms. 

Coincidence?  I don't know.. Maybe?  But I was only 15 days total into my cycle.  In my memory, I have never had a cycle that lasted less than 30 days.  It just doesn't seem even remotely likely that it just happened to end the moment I ate that microdose. 

It feels.. kinda like the microdose worked.  If this is true, it's obviously life changing.  Cluster headaches are one of the most dire conditions known to our species.  They've certainly been the most terrifying facet of MY life.  Living with the knowledge that you can be revisited by these absolute devils on any given day adds a sort of damper to your lived experience. 

And now, at 33 years old, I feel I may have found a cure.  For myself, and for now, anyway.  Who knows, perhaps I'll get another one tomorrow.  Or perhaps they'll come back next Fall, and I'll eat another mushroom, and it'll do nothing to deter the cycle. 

I'll keep you posted!  For now, check this out.  It's what I read prior to deciding to try the microdose:

https://www.washingtonpost.com/health/cluster-headaches/2021/04/02/66ac73f0-8cdc-11eb-9423-04079921c915_story.html


If you feel that it's worth a shot on your end, let me know what happens.  I don't encourage or condone anything of the sort, of course.  I am not a doctor or an expert in any related field.  But I was at a point where I was willing to try just about anything.  And this seems to have worked.


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OfflineCapt. Ramius
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Registered: 11/22/22
Posts: 107
Loc: Bottom of tea sea
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Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28145366 - 01/18/23 02:23 AM (1 year, 10 days ago)

Excellent news! I'm so happy for you :smile:
Now start growing your own so you have more material to experiment with and don't have to rely on someone else.


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OfflineSpoinka
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Registered: 06/25/19
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Last seen: 6 days, 10 hours
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun] * 1
    #28145461 - 01/18/23 06:14 AM (1 year, 10 days ago)

Welcome and sorry for your troubles.  This is my first post (in a while) due to being in learning mode,  but unfortunately I am also a cluster headache (aka the beast) sufferer so will share.

Have a neurologist but none of the meds work, including the new injection at $1,000 a pop.
Found a site that literally saved my life in 2019.  Cluster busters.org. This is a community of kind and similar sufferers of the beast.

1. Use oxygen therapy to stop a peak episode and works EVERY time!!!  May take one to three therapies but the intense pain always stops for a few to many hours.  Lots of how to on the clusterbusters site

2. Increased vitamin D levels to the upper range of medical guidance. There is a protocol to het the level up quickly then to maintain also on the site...no definitive link/causal relationship, but 95% of cluster sufferers are D deficient (maybe even the general population).

3. Links to alternative studies.  Found one on psilocybin for veterans with cluster headaches where the protocol is every 5 days a micro dose (the max amount/dose that falls just short of feeling any effects..,thinking it was Johns Hopkins University running the study and it may have also been on MAPS.org).

After doing the vitamin D and micro dose a couple years ago, I went two years without seeing the beast!

It came back about three weeks ago.

Had stopped micro dose because my supply went bad, I guess (no longer any effects from them at higher doses as I would check periodically to ensure still potent).
Saw this as a sign to stop micro dosing all together and determine if it was vitamin D or psilocybin that did the trick.  Wishing now I had not stopped micro dosing.

Luckily, still had oxygen around to stop the peak episodes.

Back on micro dose but has not helped yet...recall from it was about a month after starting the first time that it seemed to work.

Wish you the best!


Edited by Spoinka (01/18/23 06:15 AM)


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Invisible96 WS6
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Registered: 10/29/22
Posts: 28
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28147984 - 01/19/23 07:03 PM (1 year, 8 days ago)

Thats great news aracun. Hopefully the good days are from now on.


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