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Offlinearacun
Stranger
Registered: 01/13/23
Posts: 10
Last seen: 1 year, 10 days
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun] * 1
    #28145176 - 01/17/23 10:00 PM (1 year, 10 days ago)

I wanted to provide a significant update here, since a few of you have stated you'll be following this thread to see what comes of it.

Now I don't want to get ahead of myself.. I don't want to get anyone's hopes up, especially my own.  But it seems like something fairly incredible may have happened.

This past Saturday, as previously noted, I ate a tiny microdose of dried mushroom.  It was somewhere in the ballpark of 0.1-0.2 grams, really tiny.  I took it when I was approximately 14 days into my cluster headache cycle.  I waited until I had an afternoon where I didn't feel like I was in imminent danger of receiving another attack, and I had a relatively empty stomach. 

The amount I dosed was so small that I barely even felt its effects.  At one point the dimensions of my hallway swam a bit as I walked down it, and at another point I was recording some audio for work and I started laughing at myself a bit.  But aside from that, nothing.

My head felt warm throughout the day.  No headache, just a sort of heated discomfort.  That night, as I was trying to sleep, I started feeling the beginnings of another cluster headache.  No surprise there - up until this point I'd been experiencing 3-4 attacks a day, and they'd frequently woken me up in the middle of the night.  I fully expected another.  And yet.. this one was different.  Just felt like a little seed in my head, a clump that should have started to emanate pure pain, but didn't.  It just.. sat there.  I rubbed at it, I took a hot shower, I took some tylenol, but it wouldn't dissipate.  Finally I conceded, took a 50mg tablet of Triptan (my medication) and it died down enough for me to sleep.

The next day, Sunday, I awoke in a total haze.  Full-blown aura, complete inability to think straight.  But still, not the average panic-inducing wave of pain that typically accompanies the rest of it.  So I avoided taking more Triptan, and instead had another shower and just kinda sat with it for a while. 

Around 4PM that day, the aura subsided.  And then, miraculously, by that evening, I felt entirely though I wasn't in the midst of a cycle anymore.  Any of you guys who have experienced cluster headaches likely know what I mean by this.  When you're in the midst of a cycle (30-90+ days) you're never truly FREE of the headaches.  They're either attacking you, or they're riding the bench, waiting for the coach to put them in again.  yet, on this glorious Sunday evening, I felt like I hadn't had a cluster headache in weeks.  I started trepidatiously reaching out to friends, saying "hey.. this is crazy, but.. I think the mushroom may have done the trick.."  A few of them ventured a guess that placebo may have had something to do with it.  I told them that out of all the ailments in the world, cluster headaches are NOT something one simply wills away.  Those bastards will not leave just because you BELIEVE that they are gone.  So no, I don't believe placebo had anything to do with it.. though I could be wrong there.

Anyhow.. guys, it is now Tuesday night.  And I have not had a cluster headache since I ate that 0.1g of mushrooms. 

Coincidence?  I don't know.. Maybe?  But I was only 15 days total into my cycle.  In my memory, I have never had a cycle that lasted less than 30 days.  It just doesn't seem even remotely likely that it just happened to end the moment I ate that microdose. 

It feels.. kinda like the microdose worked.  If this is true, it's obviously life changing.  Cluster headaches are one of the most dire conditions known to our species.  They've certainly been the most terrifying facet of MY life.  Living with the knowledge that you can be revisited by these absolute devils on any given day adds a sort of damper to your lived experience. 

And now, at 33 years old, I feel I may have found a cure.  For myself, and for now, anyway.  Who knows, perhaps I'll get another one tomorrow.  Or perhaps they'll come back next Fall, and I'll eat another mushroom, and it'll do nothing to deter the cycle. 

I'll keep you posted!  For now, check this out.  It's what I read prior to deciding to try the microdose:

https://www.washingtonpost.com/health/cluster-headaches/2021/04/02/66ac73f0-8cdc-11eb-9423-04079921c915_story.html


If you feel that it's worth a shot on your end, let me know what happens.  I don't encourage or condone anything of the sort, of course.  I am not a doctor or an expert in any related field.  But I was at a point where I was willing to try just about anything.  And this seems to have worked.


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OfflineCapt. Ramius
Submarine commander

Registered: 11/22/22
Posts: 107
Loc: Bottom of tea sea
Last seen: 12 days, 8 hours
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28145366 - 01/18/23 02:23 AM (1 year, 10 days ago)

Excellent news! I'm so happy for you :smile:
Now start growing your own so you have more material to experiment with and don't have to rely on someone else.


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OfflineSpoinka
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Registered: 06/25/19
Posts: 4
Last seen: 6 days, 10 hours
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun] * 1
    #28145461 - 01/18/23 06:14 AM (1 year, 10 days ago)

Welcome and sorry for your troubles.  This is my first post (in a while) due to being in learning mode,  but unfortunately I am also a cluster headache (aka the beast) sufferer so will share.

Have a neurologist but none of the meds work, including the new injection at $1,000 a pop.
Found a site that literally saved my life in 2019.  Cluster busters.org. This is a community of kind and similar sufferers of the beast.

1. Use oxygen therapy to stop a peak episode and works EVERY time!!!  May take one to three therapies but the intense pain always stops for a few to many hours.  Lots of how to on the clusterbusters site

2. Increased vitamin D levels to the upper range of medical guidance. There is a protocol to het the level up quickly then to maintain also on the site...no definitive link/causal relationship, but 95% of cluster sufferers are D deficient (maybe even the general population).

3. Links to alternative studies.  Found one on psilocybin for veterans with cluster headaches where the protocol is every 5 days a micro dose (the max amount/dose that falls just short of feeling any effects..,thinking it was Johns Hopkins University running the study and it may have also been on MAPS.org).

After doing the vitamin D and micro dose a couple years ago, I went two years without seeing the beast!

It came back about three weeks ago.

Had stopped micro dose because my supply went bad, I guess (no longer any effects from them at higher doses as I would check periodically to ensure still potent).
Saw this as a sign to stop micro dosing all together and determine if it was vitamin D or psilocybin that did the trick.  Wishing now I had not stopped micro dosing.

Luckily, still had oxygen around to stop the peak episodes.

Back on micro dose but has not helped yet...recall from it was about a month after starting the first time that it seemed to work.

Wish you the best!


Edited by Spoinka (01/18/23 06:15 AM)


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Invisible96 WS6
Stranger
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Registered: 10/29/22
Posts: 28
Re: [New User] Micro Dosing for Cluster Headaches [Re: aracun]
    #28147984 - 01/19/23 07:03 PM (1 year, 8 days ago)

Thats great news aracun. Hopefully the good days are from now on.


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