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gopher
Coffee Bean Extraordinaire



Registered: 11/22/17
Posts: 12,999
Loc: Canada
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
#26956197 - 09/26/20 02:15 PM (3 years, 4 months ago) |
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I just want to post the about me blurb from Mikhalia Petersons website here, cause I know no one here is going to look up her stuff just cause I said and I find it a fascinating story
https://mikhailapeterson.com/
Quote:
I was an incredibly ill individual. I had signs of joint pain by the age of two. When I was seven I was diagnosed with extremely severe juvenile rheumatoid arthritis (JRA). My doctor counted thirty-seven joints that were actively inflamed. I had over 10 joints injected with cortisol multiple times. I was prescribed Methotrexate, Naproxen, and became the first kid in Canada to be medicated with Enbrel, an immune suppressant. At age 8, I was injecting myself with these medications at home twice a week. My health continued to decline, and at age 12 I was diagnosed with severe depression, experienced hypomanic episodes (bipolar type II), and suffered from fairly severe OCD tendencies.
I was medicated with a high dose of Celexa (an SSRI) and Wellbutrin to keep my mental condition stable. At age 14, the chronic fatigue and a severe body itch set in. When I was 17 I had my hip and ankle joints replaced. The cartilage had been eaten away by the arthritis that wasn’t being controlled properly, despite the heavy medications. I spent a year on a high dose of OxyContin waiting for and getting my joints replaced. It was hell.
When I went to university I continued to struggle with worsening chronic fatigue, severe depression, itching, and a myriad of other health symptoms - mouth ulcers, floaters, bleeding gums, nails that wouldn’t grow, restless legs, brain fog, nose bleeds, thinning hair, weight gain, just to name a few of the horrible symptoms.
I started experiencing rashes and blisters, and just before my 22nd birthday, my skin stopped healing. It was at that point that it finally occurred to me that whatever was happening was likely going to end in my death, and rather soon. After almost 20 years, the medical community still had no answers for me. I went back to school and started to read every scientific article I could get my hands on. After years of desperate research, I started experimenting with my diet. It took a long time to believe diet could play a role in my (and such a major role) in my health.
In 2015 I removed most of the foods in my diet and I started eating something resembling (what would later be called) an extremely restrictive paleo diet. This miraculously resolved all of my symptoms and I was able to get off the medications I was on and stay symptom free. However, every time I’d try to reintroduce a food, all my symptoms would return in full, and I would be back in hell again. The recovery would take 3 weeks, and only if I, again, religiously followed my strict diet.
When I got pregnant in 2016 my symptoms came back. I proceeded towards an even more restrictive dairy-free keto-style diet of meat and greens in 2017 during the pregnancy but that didn't get rid of my symptoms.
In December 2017 I came to the harsh realization that my truly “safe” foods were limited solely to ruminant meat (beef, lamb, etc.) It turned out that my body was reacting to compounds in plants and even most non-ruminant animal meat.
Within a few weeks of an all-ruminant meat diet, the depression I had experienced as a child, teenager, and during pregnancy (only briefly under control with the original paleo diet) started to disappear. My other health issues began to improve as well, starting with the itching and lingering joint pain. Now, as long as I follow my diet, I am completely symptom-free (although I do get flare-ups if I get a virus), and have been symptom-free for over two years on an all meat diet. It's the only diet you can use to eliminate (almost) all dietary factors that could be contributing to your health problems. Ruminant meat, salt, and water. It's also the only single ingredient diet you can thrive on without nutrient deficiencies. The Lion Diet, a carnivorous diet, is the ultimate elimination diet.
I’ve made it my mission to help as many people as possible experience the healing benefits of this diet and lifestyle changes. Or at least come to the conclusion that their diet, which they may consider healthy, could be contributing to their health issues, if not causing them completely.
I continue to evolve and improve, researching and finding other health and wellness practices, (such as fasting, cold and hot emersion, microbiome recovery, light therapy, meditation, nootropics, and fitness) to reach new heights of health. I share my current research and findings with people here, on social media (linked at the bottom of the page), and my podcast.
-------------------- For most of the normies out there, an operating system is just a bootloader for Google Chrome. Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it. My pronouns are He and Him, and my adjectives are Fat and Jazzy
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morrowasted
Worldwide Stepper


Registered: 10/30/09
Posts: 31,377
Loc: House of Mirrors
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26956322 - 09/26/20 03:48 PM (3 years, 4 months ago) |
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I haven't read that specific anecdote but I have read many others when I was trying to cheat code my way into better health. Ill make you a deal though, you take a formal nutrition course and ill read any 10 anecdotes you link.
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birdeatingspider
Stranger in Paradise



Registered: 12/18/14
Posts: 2,988
Loc: so many roads
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26956445 - 09/26/20 05:19 PM (3 years, 4 months ago) |
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Not sure if you have any gyms by you, but most have a nutritionist on staff that you can meet with.
I've used Great Courses in the past to learn more about stuff. They have solid, informative classes you can take at your leisure, online.
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From all I may be, or have been before, To mingle with the Universe, and feel What I can ne’er express, yet cannot all conceal.
Edited by birdeatingspider (09/27/20 12:13 PM)
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Cosmic_Flame
THE BREAKFAST EMPRESS



Registered: 11/16/12
Posts: 4,184
Loc: Under The Sea
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Re: Anyone dealt with a family member with fibromyalgia? [Re: CookieCrumbs]
#26958470 - 09/28/20 08:42 AM (3 years, 3 months ago) |
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@Northerner, how's your wife doing? I hope she's still seeing improvement! I was prescribed meloxicam originally but I never took it cause the side effects scared me away. I'm thinking of maybe trying it now. It doesn't seem to be too expensive out of pocket. Its either that, a different NSAID and or opiates if I get back on scripts. I'm hoping to avoid it.
About the diet posts, I've learned what causes my triggers for migraines. I try to avoid bloating, which seems kind of impossible sometimes. I limit my sugars as best as I can. I only drink water daily, sometimes I spice it up with some kind of juice or wine lol. I'd say its like a mediterranean diet if I were to describe it. Meat depending on what it is, can makes me feel worst or doesn't do anything negatively at all. I have yet to try a full vegan diet.
***Trigger Warning: suicide ideation***** When I initially read the OP it reminded me of a time when I was seriously struggling. I've never talked about this openly before. It felt good to share earlier in this thread so I'm trying to be more open for the sake of my own mental health. Also just to preface though I'm not suicidal or have been in recent time. I'm in a much better place mentally nowadays despite how crazy things are.
My most severe episode was years ago. It was so bad that I couldn't walk. I was bed ridden for about two months. I had no access to pain meds either so it was pretty traumatic. I didn't know if my situation was going to be permanent or not. Anyways the pain was so extreme, I did think of ending it back then. It turned into a daily fantasy. It was purely escapism in hindsight. It gave me some sense of control and strange like peace and calmness. I've been through a lot of different traumas in my life but that pain is something I wish on no one. There aren't enough words to describe how horrific it was. The brain does strange things to protect itself in extreme states of stress. Fantasizing about your own death at least for me helped me get through, as messed up as that sounds. My most recent episodes don't come close to that experience. They've been pretty painful but I've been able to get through it with my usual methods of pain management.
-------------------- Pull the blinds and change their minds....
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Northerner
splelling chceker


Registered: 07/29/12
Posts: 14,141
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Cosmic_Flame]
#26958499 - 09/28/20 09:06 AM (3 years, 3 months ago) |
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Thanks for sharing Cosmic.
My wife is no better really. She has attempted suicide 3 times over the last 10 years, each time I have saved her. Though she doesn't appear suicidal now, she believes our family would be better off without her.
I'm going to attempt to get her put on a disability pension now.
I don't know what else to say. I can only do what I can do.
I'm finding it hard to empathise with people. Identify yes, empathise, no. This life is making me hard. I care, but I know there's nothing I can do more than what I can actually do, and I can only do so much. It's just how it's is. Well it's just how I feel tonight anyway.
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The nearest we ever come to knowing truth is when we are witness to paradox.
Edited by Northerner (09/28/20 09:52 AM)
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Gypsy Boy
Redeemer



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Posts: 4,501
Loc: Deep in the discoteka
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
#26958506 - 09/28/20 09:12 AM (3 years, 3 months ago) |
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If u can get her on benefits and stop or limit her pharmacy job that would open a window for you to self medicate with MJ
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Edited by Gypsy Boy (09/28/20 11:20 AM)
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Ice9
3X Ban Lotto Champion



Registered: 03/20/14
Posts: 11,232
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner] 3
#26958554 - 09/28/20 09:51 AM (3 years, 3 months ago) |
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Quote:
Northerner said: This life is making me hard. I care, but I know there's nothing I can do more than what I can actually do, and I can only do so much. It's just how it's is.
I went through those same feelings when my Mom was dying, I could understand people, but really lost the ability to empathize, I was overwhelmed by my own emotions, and acting as a sole caretaker 24/7 was doing a real number on my mental health. There are forums, and phone lines specifically that cater to caretakers, let me link a few they may help far more than we can cause they help others in your position all the time
Here is a site dedicated to caretaker's with links to all sorts of things I think it would be beneficial for you to check up on.
-------------------- The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man. -- George Brenard Shaw
Edited by Ice9 (09/28/20 09:53 AM)
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Northerner
splelling chceker


Registered: 07/29/12
Posts: 14,141
Loc: FNQ
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Ice9]
#26959372 - 09/28/20 07:48 PM (3 years, 3 months ago) |
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Thanks Ice9.
It's good to know I'm not alone, even though it does feel like it sometimes.
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The nearest we ever come to knowing truth is when we are witness to paradox.
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gopher
Coffee Bean Extraordinaire



Registered: 11/22/17
Posts: 12,999
Loc: Canada
Last seen: 2 hours, 55 minutes
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
#26969667 - 10/04/20 06:57 PM (3 years, 3 months ago) |
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Quote:
morrowasted said: People who are supposedly on carnivore diets may be able to avoid it by paying very close attention to what they eat, but it's still the least advisable kind of diet I can imagine.
I just read the book Good Calories, Bad Calories by Gary Taubes and it mentions the story of Vilhjalmur Stefansson, he lived off a all meat diet for 4 years while living among the Inuit and for 1 year observational study when back in civilization,the study found no deficiencies it seems you dont have to pay very close attention to what you eat, just your macros, you want to eat 80% fat 20% protein and 0% carbs, im going to try this if the stars align in January, I think my disability payments run out in January but if they dont and my grandmother gives me the cash she usually gives me, im going to buy 2-3 months of ribeye and see if my butcher will save and sell me suet so I dont have to do butter for the extra fat and see if I feel any better on that diet, which lots of people claim, but im going to have to quit kratom by then because its a plant and will skew the results, im not excited about having to quit kratom
https://en.wikipedia.org/wiki/Vilhjalmur_Stefansson#Advocacy_of_an_exclusively_meat_diet
-------------------- For most of the normies out there, an operating system is just a bootloader for Google Chrome. Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it. My pronouns are He and Him, and my adjectives are Fat and Jazzy
Edited by gopher (10/04/20 07:25 PM)
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emcee
Stranger
Registered: 08/21/20
Posts: 9
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26969690 - 10/04/20 07:10 PM (3 years, 3 months ago) |
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Someone I work with has fibromyalgia, she is on medication for it.
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Near Dylan
Shitpost Artist


Registered: 07/29/15
Posts: 13,929
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Re: Anyone dealt with a family member with fibromyalgia? [Re: emcee] 2
#26969699 - 10/04/20 07:16 PM (3 years, 3 months ago) |
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Very helpful, thanks emcee
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gopher
Coffee Bean Extraordinaire



Registered: 11/22/17
Posts: 12,999
Loc: Canada
Last seen: 2 hours, 55 minutes
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26994038 - 10/20/20 07:07 AM (3 years, 3 months ago) |
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Quote:
gopher said: you dont actually get scurvy on a carnivore diet, the less sugar you consume the less vitamin c you need, the minuscule amount of vitamin c in muscle meat is enough to ward off scurvy on a 0 carb diet, theres people who have been eating carnivore for like a decade
Amber O'Hearn who has been eating carnivore since 2009 and keto before that for close to 20 years has an alternate theory on scurvy on a carnivore diet, she says vitamin C in the body is converted into carnitine, so if you are intaking carnitine you need less vitamin C
Quote:
Vitamin C is an interesting case because despite the fact that meat is a relatively poor source, it has been recognized for centuries that meat has antiscorbutic properties. The following observations from C. Ralfe in an 1882 issue of the Lancet discussing this phenomenon [20] are representative: ’Sir, — I was struck by two independent observations which occurred in your columns last week with regard to the etiology of scurvy, both tending to controvert the generally received opinion that the exclusive cause of that disease is the prolonged and complete withdrawal of succulent vegetables from the dietary of those affected. Thus, Mr. Neale, of the Eira Arctic Expedition, says: ‘‘I do not think that spirit or limejuice is of much use as an antiscorbutic; for if you live on the flesh of the country, even, I believe, without vegetables, you will run very little risk of scurvy’’’. Dr. Lucas writes: ‘In the case of the semi-savage hill tribes of Afghanistan and Beluchistan their food contains a large amount of meat and is altogether devoid of vegetables. The singular immunity from scurvy of these races has struck me as a remarkable physiological circumstance, which should make us pause before accepting the vegetable doctrine in relation to scurvy’’ These observations do not stand alone. Arctic voyagers have long pointed out the antiscorbutic properties of fresh meat, and Baron Larrey, with regard to hot climates, arrived at the same conclusion in the Egyptian expedition under Bonaparte, at the end of last century. A candidate explanation for these observations is that many of the symptoms of scurvy are due to lack of carnitine, which can be derived endogenously using vitamin C, but can also be absorbed in large quantities from meat in the diet [21]. Given that meat is an excellent source of carnitine, it may be that the carnitine spares vitamin C that would otherwise be needed for its synthesis, while the small amounts of vitamin C it provides are enough for the remaining functions. Precipitous drops in muscle carnitine have been proposed to explain the early symptoms of scurvy, severe fatigue and muscle weakness, long before tissue lesions from impaired collagen synthesis appear [22]. On the contrary, because carnitine is used for fatty acid oxidation, which is upregulated in ketosis, it may be an example of a substance in higher demand in the ketogenic context, meaning that if carnitine itself is not adequately supplied, vitamin C requirements may instead be increased. Even though these kinds of sparing effects are plausible mechanistically, aside from folate, which has been clinically measured, it is impossible to know whether and to what extent they actually occur in practice. Empirical study under this dietary condition is sparse.
-------------------- For most of the normies out there, an operating system is just a bootloader for Google Chrome. Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it. My pronouns are He and Him, and my adjectives are Fat and Jazzy
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morrowasted
Worldwide Stepper


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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26994150 - 10/20/20 08:43 AM (3 years, 3 months ago) |
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"I might be able to get away with never eating vegetables without getting scurvy because of this speculation that's never been empirically tested."
Or, you know, you could just eat a bit of broccoli or peppers 
The fact that indigenous tribes have been able to get away with such and such a diet doesn't mean you can or should. Those people probably become metabolically adapted to the food sources- if there isn't much vitamin C around, they're like better at absorbing and reusing the vitamin C they need than other people. Also, "being able to avoid scurvy" is a pretty low bar in 2020. It's possible to optimize nutrition in a way that helps reduce chronic disease risk and extend healthspan. Our best evidence right now indicates that such a diet includes copious vegetables. Obviously the optimal diet will vary from person to person based on ancestral diets and other factors, which is why it's occasionally reasonable to recommend the ketogenic diet to someone (with epilepsy for instance), but we can still make general recommendations based on averages.
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gopher
Coffee Bean Extraordinaire



Registered: 11/22/17
Posts: 12,999
Loc: Canada
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
#26994279 - 10/20/20 10:22 AM (3 years, 3 months ago) |
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Quote:
morrowasted said: "I might be able to get away with never eating vegetables without getting scurvy because of this speculation that's never been empirically tested."
Quote:
The fact that indigenous tribes have been able to get away with such and such a diet doesn't mean you can or should. Those people probably become metabolically adapted to the food sources- if there isn't much vitamin C around, they're like better at absorbing and reusing the vitamin C they need than other people.
but it kinda has been tested Vilhjalmur Stefansson, and his artic expedition crew all lived off meat for years at a time while living among the inuit, even a 9 month stretch on just boiled fish so I doubt its some sort of evolved adaptation, and then when he returned to civilization he took part in a year long, 2 man study at the nutrition ward of Bellevue Hospital on a all meat diet and suffered no deficiencies (or at least what they could measure in the 1920's) and the doctors even noted they appeared to be in as good health as other men their age on a mixed diet
Quote:
Or, you know, you could just eat a bit of broccoli or peppers
Quote:
It's possible to optimize nutrition in a way that helps reduce chronic disease risk and extend healthspan
im not really suggesting everyone go carnivore, but with all the anecdotle statements of people curing auto-immune and mood disorders on it, I think if you truly suffer from one you could try carnivore for a month or two, if the anecdotle claims are wrong, you just wasted only a month or two, if they are right, and you feel way better, you can continue eating that way or try to reintroducing items very slowly till you hit a snag, I dont really see a downside to such a short experiment that claims to have such a high reward
-------------------- For most of the normies out there, an operating system is just a bootloader for Google Chrome. Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it. My pronouns are He and Him, and my adjectives are Fat and Jazzy
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Northerner
splelling chceker


Registered: 07/29/12
Posts: 14,141
Loc: FNQ
Last seen: 27 minutes, 25 seconds
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
#26998974 - 10/23/20 01:05 AM (3 years, 3 months ago) |
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Anyone know about treating fibro with cannabis irl?
My wife's pills don't work anymore, nothing works. Even though she doesn't like weed she's prepared to try it to see if it can really make a difference.
I read a couple of studies and it looked really promising, but some anecdotes would be great.
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The nearest we ever come to knowing truth is when we are witness to paradox.
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Sporagami
Sufficiently talented fool


Registered: 09/11/20
Posts: 97
Loc: Middle of a dumpster fire
Last seen: 11 months, 10 days
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
#27021955 - 11/04/20 05:34 PM (3 years, 2 months ago) |
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Mom has it. Its frustrating.
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Northerner
splelling chceker


Registered: 07/29/12
Posts: 14,141
Loc: FNQ
Last seen: 27 minutes, 25 seconds
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Sporagami]
#27067453 - 12/02/20 12:38 AM (3 years, 1 month ago) |
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Wifey has started using TENS treatment at home along with water exercise. Is providing mild relief.
A good friend is going to hook us up with some medical grade cannabis soon.
Need a solution.
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The nearest we ever come to knowing truth is when we are witness to paradox.
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metalfaith
Moron



Registered: 03/30/11
Posts: 1,842
Loc: FL
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
#27067607 - 12/02/20 06:16 AM (3 years, 1 month ago) |
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tl;dr
But Northerner, have you heard that podcast episode from (I think) This American Life on fibromyalgia?
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ShroomerInTheRye
Clit Commander



Registered: 01/12/12
Posts: 13,036
Loc: Themyscira
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
#27068000 - 12/02/20 11:06 AM (3 years, 1 month ago) |
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I don't have fibromyalgia, but I have used medical grade cannabis for pain relief after surgeries. The Percocet they give me makes me violently ill.
I prefer the marijuana to Tylenol, honestly. It takes the bite off the pain and enough of it puts me to sleep. My friend got me this THC oil that's mixed with olive oil from the dispensary. I put a few drops in my lunch/dinner and I'm good for a few hours. My only "complaint" (which isn't a real complaint) is that you get the typical dry mouth, munchies thing that comes with weed.
For pain relief, I recommend using medical marijuana any day of the week.
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<-- Clicky Clicky
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