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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Ice9]
    #26940921 - 09/17/20 03:38 PM (3 years, 4 months ago)

I forgive you a love any opportunity i get to nerd out about health sciences anyway


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OfflineNorthernerM
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted] * 5
    #26941029 - 09/17/20 04:55 PM (3 years, 4 months ago)

Well my wife was basically bed ridden yesterday. I got the meds she was on that are supposed to be helping and confiscated them. Called in another doctor we haven't met before and she prescribed amyltriptaline and moxicam. When I got up this morning so did my wife, she actually smiled. I was amazed and overjoyed.

These drugs aren't even supposed to start working properly for a week and in a single day the improvement is spectacular.

Long term I don't know how sustainable these meds are, but I'm grateful for now.


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The nearest we ever come to knowing truth is when we are witness to paradox.


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
    #26941558 - 09/18/20 12:06 AM (3 years, 4 months ago)

the moxicam is an NSAID so taking it all the time could result in other health problems. hopefully it is the amitrypaline doing most of the heavy lifting. maybe just use the moxicam for a short period of time until the other is able to kick in and work its magic, i dunno. best wishes


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OfflineIce9
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
    #26941568 - 09/18/20 12:25 AM (3 years, 4 months ago)

Amitryptyline is an old school tricyclic antidepressant,  it actually can com with a lot of adverse side effects, but for some people it works like magic.


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The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man. -- George Brenard Shaw


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InvisibleCookieCrumbsM
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
    #26941585 - 09/18/20 12:37 AM (3 years, 4 months ago)

Quote:

Dark_Star said:
I’ve treated the juvenile form at work. The cause & treatment is actually known now, but translating that into the adult world is difficult. Basically it’s a short circuit in the nervous system. Typically a pain signal travels from the stimuli to the brain, and stops when the stimuli is removed. In the case of amplified pain, the pain signal travels to the brain, but then bounces back to nerves around blood vessels. This causes the vessels to constrict, which in turn causes another pain signal that travels through the same short circuit. This can be caused by injuries, and/or stress. Anxiety & stress is the most common denominator in these cases. The effective treatment is not medication. Effective treatment combines psychotherapy with intensive OT/PT to work on the psychological components, and burn out the short circuits via strengthening, conditioning & desensitization. This is a highly effective method that has been used in pediatrics for years. Unfortunately, the adult world is taking a while to get up to speed on this.

Tough Dx to deal with for sure.....for everyone involved. Good luck Northerner, hopefully she gets it under control soon :hug:



I think the confusion is largely because it's new and because alot of things are misdiagnosed as fibro. And instead of confirming the diagnosis for trials they just power on because the medical industry and science in general has other problems.

It's the bipolar disorder and IBS of chronic pain. A point where doctors aren't sure but the shoe is close enough to fitting so they can move on. Doctors, ime, are really really discouraged from sticking to triage phase.


Source: I've been misdiagnosed a million times. Often after a single test or interview or gloved finger in my ass. And a ton of research. The average wait time to land on a diagnosis that sticks for chronic disease is 7 years. Seven fucking years of not knowing if you're dying and being dismissed.


But on that note there's also extremely helpful support groups out there. The fibromyalgia Reddit might be a place to start.
Quote:

gopher said:
Quote:

larry.fisherman said:
You and your damn diets. If i could make a caricature out of this you'd be Diet Boy but you look like a walking marshmallow and your super power is just eating different food every day and calling it a diet.. :lol:





There quite a few people with autoimmune disorders who claim to do a lot better on a carnivore diet, I tried searching quickly and found this little quip on fibromyalgia https://meatrx.com/lees-fibromyalgia-anxiety-and-depression-symptoms-have-cleared-up-on-a-carnivore-diet/



I'm sure someone has said it but people have said that about the juice diet, veganism and paleo. All in all I'm certain the thing that makes people feel better is the reduction of sugar, excessive fats, and fresh nutrient rich food.


--------------------
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InvisibleShiithead
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Re: Anyone dealt with a family member with fibromyalgia? [Re: CookieCrumbs]
    #26941592 - 09/18/20 12:43 AM (3 years, 4 months ago)



Haven't seen this but the rest of this guy's vids are good. Lmk what you think. Someone quote it so morrow can see. He ignored me.


--------------------

Ephesians 6:12
For we wrestle not against flesh and blood, but against principalities, against powers, against the rulers of the darkness of this world, against spiritual wickedness in high places.
Psalm 12:6
The words of the Lord are pure words: as silver tried in a furnace of earth, purified seven times.
Hebrews 11:3
Through faith we understand that the worlds were framed by the word of God, so that things which are seen were not made of things which do appear.
Revelation 3:11
Behold, I come quickly: hold that fast which thou hast, that no man take thy crown.


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OfflineIce9
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Re: Anyone dealt with a family member with fibromyalgia? [Re: CookieCrumbs] * 1
    #26941594 - 09/18/20 12:45 AM (3 years, 4 months ago)

I don't know if its available to the public, but there is a very simple computer program out there that pictures pain as a fire. a 10 is roaring bonfire, while a 1 is a candle. People who used this program and focused their mind on making the fire smaller, saw concomitant reductions in pain levels. Amazing what the brain can do.


--------------------
The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man. -- George Brenard Shaw


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InvisibleCookieCrumbsM
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Ice9] * 2
    #26941615 - 09/18/20 01:38 AM (3 years, 4 months ago)

I credit kratom with giving me my life back, and it absolutely did, but it's at most half of my regular pain management now. Learning how to put the pain down is something the brain can do... I'm certain that any subconscious thing it does can be manipulated. But it wasn't as simple as ignoring it.

I tried to stick to the military saying for a while "Pain is mind over matter. You don't mind, it don't matter." For a while.

At some point you do mind and it does matter. It's a shitty way to address long term pain.


It takes a very delicate mental formula to get pain from a 8 to a 4 or less. And
I'm basically playing that game every single day. The mental part and lifestyle stuff. It can be exhausting and I tend to get real pissed at things wasting my energy. Not only is it worse on it's own with stress, anxiety, or exhaustion, but the inability to focus is such a terrible obstacle to that self management.


I've been very seriously considering quitting my job lately because it's a stressful distraction. I'm stressed/distracted = ability to manage my shit goes down = performance at work goes down = more pain = everything makes everything else suck more



I don't think anyone will manage chronic pain without a holistic approach and it's a tough balancing act sometimes.


--------------------
          :dancingbear: Free time is the only time :dancingbear:                    :thatsinteresting:


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InvisibleShiithead
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Shiithead]
    #26943822 - 09/19/20 10:15 AM (3 years, 4 months ago)

Quote:

Shiithead said:


Haven't seen this but the rest of this guy's vids are good. Lmk what you think. Someone quote it so morrow can see. He ignored me.





You check out this video northerner? He usually has his sources posted in his slides and at the end of his slides if you have any doubts. Shoot him an email if you have any questions.


--------------------

Ephesians 6:12
For we wrestle not against flesh and blood, but against principalities, against powers, against the rulers of the darkness of this world, against spiritual wickedness in high places.
Psalm 12:6
The words of the Lord are pure words: as silver tried in a furnace of earth, purified seven times.
Hebrews 11:3
Through faith we understand that the worlds were framed by the word of God, so that things which are seen were not made of things which do appear.
Revelation 3:11
Behold, I come quickly: hold that fast which thou hast, that no man take thy crown.


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Offlinegopher
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Shiithead]
    #26947319 - 09/21/20 07:25 AM (3 years, 4 months ago)

I knew carnivore would cure it
be


--------------------
For most of the normies out there, an operating system is just a bootloader for Google Chrome.

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Offlinegopher
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Northerner]
    #26955667 - 09/26/20 07:17 AM (3 years, 4 months ago)

OP, Is the fibromyalgia only on the right side?


--------------------
For most of the normies out there, an operating system is just a bootloader for Google Chrome.

Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it.

My pronouns are He and Him, and my adjectives are Fat and Jazzy

:kratom:


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
    #26956011 - 09/26/20 12:17 PM (3 years, 4 months ago)

Quote:

gopher said:
I knew carnivore would cure it
be



yes, OP, tell her to trade in her fibro for scurvy and cancer!


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Offlinegopher
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
    #26956033 - 09/26/20 12:24 PM (3 years, 4 months ago)

you dont actually get scurvy on a carnivore diet, the less sugar you consume the less vitamin c you need, the minuscule amount of vitamin c in muscle meat is enough to ward off scurvy on a 0 carb diet, theres people who have been eating carnivore for like a decade


--------------------
For most of the normies out there, an operating system is just a bootloader for Google Chrome.

Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it.

My pronouns are He and Him, and my adjectives are Fat and Jazzy

:kratom:


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
    #26956062 - 09/26/20 12:39 PM (3 years, 4 months ago)

Oh, okay

Quote:

"I just lived on mince, some chicken, maybe with some mayonnaise, and it took me about six to eight weeks to get very, very unhealthy and see a doctor, who said 'I think you've got the symptoms of scurvy,'" he continued. "He said 'you're really lacking in vitamin C,' so then I just took it upon myself to drink a liter of orange juice every night, and then I immediately developed acid reflux. So as you can see, yeah, food is not necessarily my forte."




Colorectal cancer is the third most common reason for people to die from cancer in this country, and it's pretty well established by now that reduced fiber and increased meat intake are connected with its development. Generally speaking, growth factors stimulate neoplasm development- this is both intuitive and extensively backed up by evidence.


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OfflineIce9
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
    #26956065 - 09/26/20 12:41 PM (3 years, 4 months ago)

:canthelpbutlaugh:


--------------------
The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man. -- George Brenard Shaw


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: Ice9]
    #26956072 - 09/26/20 12:46 PM (3 years, 4 months ago)

Quote:

Ice9 said:
:canthelpbutlaugh:



It could easily be argued that giving out dietary advice like "eat nothing but meat" involves some kind of criminal negligence.


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Offlinegopher
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
    #26956094 - 09/26/20 12:58 PM (3 years, 4 months ago)

I dont know how he managed to get scurvy in 6 weeks, I fasted for 6 weeks and didnt get scurvy, and there is lots of people who eat carnivore and dont get scurvy, most of the carnivores are eating ribeye though so that might make a difference, maybe chicken dosnt have it, I never heard of anybody only eating chicken, and some mayo's contain sugar, I know miracle whip does, but also the olive oil one I buy dosnt have any sugar, so not all do

Id do carnivore if I could afford steak everyday,at least in the short term, why take in those pesky green vegetables in keto


--------------------
For most of the normies out there, an operating system is just a bootloader for Google Chrome.

Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it.

My pronouns are He and Him, and my adjectives are Fat and Jazzy

:kratom:


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
    #26956103 - 09/26/20 01:10 PM (3 years, 4 months ago)

you can develop scurvy in as little as 4 weeks. even if you're eating. It's mostly seen in anorexics these days in the developed world. People who are supposedly on carnivore diets may be able to avoid it by paying very close attention to what they eat, but it's still the least advisable kind of diet I can imagine. if it continues to gain popularity, I guarantee you'll be seeing retrospective observational studies pop up about cancer and heart disease among those who tried it. you're welcome to guinea pig yourself if you want. I'm not the kind of person who says "i told you so" to stubborn people who have to learn things the hard way. It's really not hard to eat a healthy diet and maintain a healthy weight. Like you, after being on antipsychotics and gaining a shitload of weight, I spent about 3 years trying a variety of fad diets. When I started eating whole, unprocessed fruits and vegetables and leaned, baked meats/fish and lifting weights, I "magically" lost all of the weight I'd gained and more over the course of about 15 months, and I put on a lot of muscle as well. my cholesterol and a1c are better now at 31 than they were when I was 20. I hope you're able to find your way to the simple truths healthy living.


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Offlinegopher
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Re: Anyone dealt with a family member with fibromyalgia? [Re: morrowasted]
    #26956124 - 09/26/20 01:25 PM (3 years, 4 months ago)

my final thought is if carnivore does work for these auto immune issues whats worse though, getting cancer at 60 or 70, or living with issues every day untill then, if you get bored look up mikhaila peterson's story, she had crazy bad idiopathic arthritus, severe depression, chronic fatigue since she was like 12 and it lifted when she started the carnivore diet, she says she is allergic to everything but beef, so even if she dies of a heart attack at 50 or lives long enough to get cancer, the quality of life is a big aspect to consider


--------------------
For most of the normies out there, an operating system is just a bootloader for Google Chrome.

Since Disney has obtained tremendous value from the public domain, knows how important the public domain is, and is firmly determined to never contribute anything to it.

My pronouns are He and Him, and my adjectives are Fat and Jazzy

:kratom:


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Offlinemorrowasted
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Re: Anyone dealt with a family member with fibromyalgia? [Re: gopher]
    #26956152 - 09/26/20 01:38 PM (3 years, 4 months ago)

of course quality of life is important, but in medicine you always implement the intervention that is already well-evidenced least likely to cause other complications first. diet may well be a factor, but for most people there is a specific set of foods that precipitates flare ups. figuring out specifically what those foods are can be done, and then the person can continue to eat a variety of foods and simultaneously avoid flare ups, experience improved quality of life, and experience fewer complications down the line as a result of the medical intervention.


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