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OfflineLophophora
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Epilepsy and psychedelics
    #25747470 - 01/16/19 01:39 PM (5 years, 1 month ago)

Any epileptics on the Shroomery that also still trip, if so how have you found your experiences to change? Interactions with you anti-epileptic drugs (AEDs)? Seizure experiences, anyone else had random deeply psychedelic seizures.

I am an epileptic psychonaut, that is I continue to explore my consciousness via the use of psychedelic compounds and meditation. To start I feel I should explain what epilepsy is; Epilepsy is a broad diagnosis for anyone who has experienced two or more unprovoked seizures within a week. 1 in 26 people will suffer from some form of epilepsy at some point in their lives and for some it does resolve, for many others AED therapy offers partial to complete control. I was diagnosed as epileptic when I showed up at the psych hospital with everyone believing I was psychotic, the psychiatrist immediately recognized that I was having a complex partial seizure...this means that I was speaking coherently but irrationally, acting irrationally aggressive, yelling phrases repeatedly for several minutes at a time, repetitive and symmetrical movements then suddenly I would be fully present with no memory of anything before it would repeat.

Now I know this will sound irresponsible but I never stopped my psychedelic use, I saw no reason to stop as this has been the most difficult period of my life to date I frequently felt like I've been hit by a train, crippled by depression and a period of agoraphobia (fear of a seizure in public in my case), and having absolutely no short term memory for nearly a year. I have the seizures mostly controlled via diet, two meds (phenytoin 5x daily and phenobarb as a rescue), cannabis and LSD.

That's right, I use microdoses of LSD as an AED. If I start having breakthrough seizures I will drop 10ug and 80% of the time it will stop the seizures from clustering while still allowing me to be functional which phenobarb will not. Not entirely sure what action of LSD does this but it's been a surprisingly reliable discovery for myself without having to resort to sleeping for the next 6+ hours.

Since developing epilepsy psychedelics have changed significantly for me in a number of ways.
  I need significantly lower doses now, I'm talking visuals on 50ug of lsd, breakthroughs on less than 20mg of DMT etc, likely due to a leaky blood brain barrier common with epilepsy.
  They have become far more visual, where I had few to none before I have obvious visuals in most trips now.
    Trips always feel more intense, profound and spiritual but also less overwhelming.
    I feel than I am better able to analyze my experience afterwards, especially helpful as I have begun writing thoughts down out of necessity and carried it into my tripping.

Now on those psychedelic seizures, I have on several occasions while in status epilepticus experienced seizures of a deeply psychedelic nature. During these seizure I would feel as though I had regained full consciousness as my body was seizing, I would see the world in an extremely distorted way visually. In this place I would swear that I saw myself standing before me and I spoke to myself about the pain and depression I was experiencing completely honestly, I spoke about suicide as an escape and ultimately how I can't sink to that level because of a treatable condition; the temporary does not warrant the extreme.

I'm genuinely curious about the experiences any other epileptic shroomers have had.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25748477 - 01/16/19 09:55 PM (5 years, 1 month ago)

I was on phenytoin sodium for my eplilepsy years ago... I took myself off the seizure meds 10yrs ago and haven't had a single seizure since... I had 1 experience with mushrooms then and did seize up about an hour into my peak...worst trip ever...had plenty of experiences since then and loved them..

That phenytoin is some bad shit it's commonly used to euthanize dogs


Edited by Leftfield420 (01/16/19 10:00 PM)


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25749157 - 01/17/19 10:26 AM (5 years, 1 month ago)

Phenytoin is used as an anticonvulsant in dogs, pentobarbital is used for euthanasia typically.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25749181 - 01/17/19 10:38 AM (5 years, 1 month ago)

Phenytoin sodium can be used same way... Thats why I stopped taking it....too much can put you down just like a dog..but ao can aspirin... But I feel a shit load better now I'm off the meds, won't go back to getting stabbed every month again


Edited by Leftfield420 (01/17/19 10:43 AM)


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25750551 - 01/18/19 01:08 AM (5 years, 30 days ago)

The dose makes the poison, the phenytoin sodium allows me to function which I couldn't without. But yes too much can kill you, but the same could be said about anything.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25750731 - 01/18/19 05:32 AM (5 years, 30 days ago)

I was on it from the time I was 19-26 the meds made me sluggish,antsy,and it made me confused as fuck, I also had trouble talking at times.. I actually quit having seizures once I quit taking it....haven't had one in 10yrs,


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25751302 - 01/18/19 12:04 PM (5 years, 30 days ago)

Ok, that right there is true phenytoin does make you sluggish and a bit confused but having 30-40 seizures a day for months before I got a prescription was worse. I was constantly in either a seizure or a post ictal state. You have to also understand that my epilepsy is due to a hypoxic brain lesion because of idiot doctors. As far as withdrawing from the med, I won't for now since it's letting me live my life however my neurologist is confident that with 1-2 years of complete control I will no longer be epileptic. Also cost isn't an issue as my monthly prescription is only $23.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25751418 - 01/18/19 01:03 PM (5 years, 29 days ago)

Totally different circumstance for me...I was diagnosed epileptic after partying too long and had a drug induced seizure...not gonna lie I had been up for 3-5 days doing speed and cocaine so it was my fault..and I had a few seizures before I went to the hospital...but all happened when I finally slept and were drug related.. Once I quit partying like that the seizures went away... Now I dabble but don't stay up that long doing drugs and not eating...


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25751445 - 01/18/19 01:15 PM (5 years, 29 days ago)

Yeah no drug induced seizures should be treated with a benzo or barbiturate not an anticonvulsant.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25751476 - 01/18/19 01:32 PM (5 years, 29 days ago)

That explains why I had more seizures on phenytoin than I ever had due to the partying


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25751524 - 01/18/19 01:53 PM (5 years, 29 days ago)

Definitely, phenytoin has been fairly benign to me. Side effects I get are low blood pressure, excessive hair growth...at least I got me a beard now, and slight changes in my facial features where the angles have become sharper but only with side by side comparison. People get dental problems from it but I'm beginning to think that's more hyigene related, I have experienced none but I brush them 2-3 x daily, floss and keep my mouth moist.


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OfflineLeftfield420
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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25751857 - 01/18/19 04:27 PM (5 years, 29 days ago)

I'm glad you don't have as many seizures as you did before, in my case it the phenytoin was doing more harm than good.. If I still had seizures I would be taking CBD since that is legal now, that wasn't even an option when I was having seizures


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OfflineLophophora
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Re: Epilepsy and psychedelics [Re: Leftfield420]
    #25751928 - 01/18/19 04:48 PM (5 years, 29 days ago)

I use cannabis with the phenytoin and the combination is really good but neither was working well enough alone.


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Re: Epilepsy and psychedelics [Re: Lophophora]
    #25753406 - 01/19/19 10:38 AM (5 years, 29 days ago)

the lets slay slave


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