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InvisibleThayendanegea
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24593106 - 08/31/17 11:10 AM (6 years, 4 months ago)

You guys blow me away with your biochem knowledge as it relates to these diseases.:hatsoff:

I have RA and have had it for going on 8 years now. I use a combination of western/ Eastern medicines. I take 200mg of plaquenil per day plus a strict regiment of chaga and reishi tinctures...for the last 3-4 years.
It has held my disease in check pretty much with occasional flares but nothing like they used to be.

I just added the plaquenil after some rough flares last winter, however, my rheumatologist had me on 20mg of methotrexate per week for the first several years...then I kept getting respiratory infections over and over until I just stopped taking it because you can't take methotrexate while being treated with antibiotics and I was always on a round of antibiotics....usually ceftin. I began a regiment of  tinctures that I make myself of chaga / reishi...2 -3 droppersfull 3-4X per day of each. I also added teasel for a while but didn't give it much of a chance....it grows wild all over the place around me, so I think I will make another batch....should I use the double extract or just alcohol extraction?

Anyway, I am able to run a pretty good size business and do almost anything that I could do before I was diagnosed with only occasional bad days vs. the exact opposite...granted, I'm 58 yrs. old and knees/ back are kinda worn down a bit. The only ailment that my regiment has not stopped is the constant pain in the balls of my feet...makes hikes,or standing for any length of time pretty difficult.....funny thing is, when I get a bacterial respiratory infection, my feet don't bother me as much.:shrug: So, I know it all ties together. I have my blood checked every 3 months and most inflammatory markers are low.

I feel for anyone that has any autoimmune disease as they can sure sap the life out of you. By the way, if anyone wants any dried reishi or chaga...just PM me...I have been blessed with finding very big supplies of both while foraging.



--------------------
Look Deep Into Nature,and Then You Will Understand Everything Better.

Albert Einstein


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: Thayendanegea]
    #24593213 - 08/31/17 11:56 AM (6 years, 4 months ago)

For RA (rheumatoid arthritis for the readers who don't know), Almond mushrooms (Agaricus Blazeii) are used, I believe in decoction or pill form, but I'd have to check on that. It's also helpful with AU (Arthritis Urica). Is that btw what you are talking about when you mean flares? Gout? Or just a worsening of symptoms? Anyway, Shiitake decoctions are also good for arthritis. You say you make tinctures from Chaga? If you are talking about a decoction to which you add alcohol for preservation, that's fine, but making a tincture from alcohol with Chaga is very ineffective. Chaga, as beneficial components, has mostly things that are water soluble, though the cell walls are very hard (I think that's actually true for all mushrooms), and the water solubles won't get out unless you boil it, preferably for a really long time, and switch the water after a few hours to do a second, third, or even fourth extraction, depending on the amount of chaga vs water. As long as the tea is still dark, it will have a lot of potential. After boiling it for several hours, you can boil it down and add pure ethanol to reach a 30% strength for preservation. In coffee, it works, but only so much. The coffee releases it's compounds more readily to the water, so when you make coffee the standard way, there's not that much chaga in there, no matter what amount of chaga vs coffee you use. Though coffee isn't that good for arthritis to begin with, especially if you drink more than 2 cups per day, or an espresso for that matter. I can't leave it either though, and I've got some arthritis issues as well. The Reishi IS supposed to be made with a tincture, though to get to ALL the medicinals, a subsequent decoction is necessary, as it also contains medicinal polysacharides. Boil it down to an equal amount as the alcohol (pure, or at least 100 proof/50%vol) as you will dilute it further when mixing) and mix. I never mention straining here, as I think that's pretty much a given.

The Teasel is very effective in Lyme disease, and very expensive to buy. It's also good for the immune system, the nerve system, to detoxify, and to keep inflammation at bay. I can tell you that the best moment for harvest, is after the first year, going into winter, or before it is shooting back out the next year. The reason for this is that you should use the root, and when it goes into winter, or right before it comes back out to start making the flower stalks, the strength of the plant reverts to (or resides in) its roots. I've harvested mine after the stalks had started dying off, so not the perfect moment, though I'm sure it will still be quite effective. You break off the plants' leaves (and make sure it's the Fullonum, the  big ass Wild Teasel) at the base, take a shovel, and take out the roots. Then take those roots to the bathtub, put one of those small drain strainers in the drain, and start to clean it. You'll have to break it up eventually, as it holds the (often clay-like) soil very well. Don't dry the roots. Just wash them thoroughly, chop/cut/break/twist/rip (they are very tough) them apart and put them in the alcohol. This alcohol should be at least 40%, though 50% is better afaik. fill it up until the roots are covered. Then you place it (out of the sun) wherever you will see it daily, as you will need to turn the jar  upside down each day, so the roots stay disinfected. Forget that, and you'll be growing mold on whatever floats to the top. After 6 to 8 weeks, the tincture is ready, and the roots can be taken out, the liquid filtered and bottled. No need to store it cool, the alcohol should preserve it just fine. A single extraction is fine. If you really want to get it all out, you could do another one for a few weeks, but it's really not worth the rather pricey alcohol, especially if you have access to all the roots you want. DO BE CAREFUL ABOUT WHERE IT GROWS. This plant is one that not only detoxifies us, it does so as well with the earth (as do many other plants, and fungi for that matter), so if it's growing next to a field where a farmer is spraying his crops with pesticides every year, you might not want to take that one. Same if we're talking about roads with a good amount of traffic, or places that have had industry ruining the environment (this is not per se visible).

Now your feet. Do your shoulders hurt often as well? The balls of your feet correlate to your shoulders, which doesn't HAVE TO  mean anything, but often does. I would recommend you buy yourself Tai Chi shoes, with cotton soles. Buy 2 pairs, because they don't dry well, and I've regretted not buying a second pair because of it. And a flat and flexible soled other pair of shoes for when it rains. The Tai Chi shoes are pretty cheap and you can buy them online. Yoga shops will also often carry them. I can't promise you anything of course, but  for me, it has made a world of difference when it comes to feet troubles, of which I have had my share. These shoes will allow your feet to move freely and naturally. It might take some getting used to in the beginning.

Not all autoimmune diseases are horrible btw. I have gluten intolerance as well (no, I'm not one of those ppl who only say that but actually can eat it, just a crumb leaves me useless and aggressive, and very PMS-like), and I can't say that's a real issue for me. It makes going out to dinner harder, but after some time, you find the places that truly know how to cook gluten free AND tasty, and you learn to make adjustments towards things like meals for on the road or during work hours or whatever it is you are doing. The shittiest part of GI is actually when you trust someone else to cook for you, or let them judge prepared food in terms of gluten-freeness. I don't trust ANYONE anymore to judge my food in that regard, except for my mother. My father is the cook at my folks house, but he is flaky, my mother has GI as well, but she needs reading glasses for the ingredient listings, and my GF, who also has GI (and so does her mom) often forgets to check what traces it may or may not have. She feels that, for her, traces don't matter. I'd like to disagree. She gets waaay more emotional the days after eating anything that can have traces. "Nah, I'm not THAT sensitive..." "Right..." :nonono:

On to the next one.


--------------------
The best things in life
can be smelled on one's fingers.


Edited by LizardWizard (08/31/17 03:56 PM)


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InvisibleCookieCrumbsM
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Re: The Lyme Disease Thread. [Re: JacksonMetaller]
    #24593351 - 08/31/17 01:20 PM (6 years, 4 months ago)

As a former ecology major I totally love the idea that the human body is its own ecosystem. It really is. It needs the appropriate conditions to survive and a mass co-op of symbiotic organisms to thrive.


Ecology is so fucking cool. All those little organisms need the perfect set of circumstances and environment to survive and so do you. Your body gives them a home and they in turn give your body the ability to function optimally. And together with other plants and people and animals we create ecosystems on small scales that effect our ability to survive as well on a large scale to effect the ecosphere, the world and the conditions within it that support life.


That's the kind of connectedness that is really tangible for me.


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          :dancingbear: Free time is the only time :dancingbear:                    :thatsinteresting:


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InvisibleCookieCrumbsM
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Re: The Lyme Disease Thread. [Re: Thayendanegea]
    #24593355 - 08/31/17 01:21 PM (6 years, 4 months ago)

Might hit you up for a sample.

I'd love to go and hunt my own one day but my mind is in no place to really gather mushrooms and trust my identification of them. Sadly :sad:


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          :dancingbear: Free time is the only time :dancingbear:                    :thatsinteresting:


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InvisibleThayendanegea
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Re: The Lyme Disease Thread. [Re: CookieCrumbs]
    #24593371 - 08/31/17 01:28 PM (6 years, 4 months ago)

Reishi and chaga are very very easy to identify...I could have harvested a lifetimes worth of reishi just off of that one tree so, no worries...I have a bunch cubed and dried 1/2" cubes.

The chaga is more like chunks, but if you like, I could grind them like coffee grounds to make tea out of...or, like me...add one tbs to my coffee grounds in the morning. The chaga grows only in northern climates...not sure where you are.

Anyway, it is just a way for me to give back to a group that has given freely to me....so, no sweat kid:wink:


--------------------
Look Deep Into Nature,and Then You Will Understand Everything Better.

Albert Einstein


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InvisibleThayendanegea
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Re: The Lyme Disease Thread. [Re: Thayendanegea]
    #24593403 - 08/31/17 01:43 PM (6 years, 4 months ago)

One more thing....I don't know if anyone of you guys like JM or LW know much about datura stramonium but there are literally hundreds of plants growing close to my house. The shit scares me but I have heard that in lower doses it has several medicinal values...let me know if anyone wants some dried leaves or seed pods/ flowers...I have never used any but there sure is a whole lot very close to me...spiritually, that makes me take a second look at things that are presented so strongly.:sunny::peace:



--------------------
Look Deep Into Nature,and Then You Will Understand Everything Better.

Albert Einstein


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: Thayendanegea]
    #24593540 - 08/31/17 02:47 PM (6 years, 4 months ago)

Soooo, I already told you in the last post that your coffee probably isn't doing you much good the way you make it, so let's skip that now :lol:

Reishi is easy to identify when it comes to the general species, but not when it comes to strains. It's only become known very recently that the Reishi grown in Asia is NOT Lucicum, for instance. It's a separate species, now dubbed Ganoderma Ling-Zhi. Others forms can be really hard to tell apart as well, especially when they show morphological traits that are more akin to other Ganoderma forms than the one in question. In practice, this matters very little, as they all have about the same indications for use, AFAIK.

BTW, thanks again for the Tsugae! I've been pondering about how to return the favor, and it often leaves me feeling a bit shitty because I've never really talked to you before, so I had no clue as to what you were in to. Also, I didn't expect you to be 58 :lol: I'm really glad you chose to participate in this thread. Thanks!

You are right to question why it is showing itself to you so often. It's good for asthma and mild Parkinson's. The problem with it is dosage and possible side effects. Dosage is hard to determine, as all plant parts contain the alkaloids, but the  alkaloids vary greatly between plants, regions, and time of harvest. The amount of scopolamine(s) and atropine(a) in the plant, seeds, flowers and leaves changes over time, being 3(s) to 1(a) when the plant is young, and being 1(s) to 3(a), when the plant is old. There are other alkaloids in there as well, over 20 actually, but those 2 are the main ones.

My parents have it in their garden, and my father, being well aware of what kind of a plant it is (hallucinogenic and potentially very dangerous), chose to harvest some seeds for me regardless, as he knew I would be interested, and he thought the time was right to bestow upon me that responsibility (he won't say it that way, but it's what he was thinking, and I'm very sure he thought long and hard about it). I can only say he was right about it being the right moment. If he had given them to me a year sooner, I might have still used them in a not so healthy way. Anyway, he harvested them when the last pod was already rotting away (told you he thought long and hard).

I have used them to control a trembling thumb, in dosages of 2 seeds, constantly suckling them. It filled me with a great awe for this plant. Being a sensitive person, and having some experience with shamanism, just suckling those 2 seeds is enough to bring about the energy of the plant. For a hallucinogenic experience, which is never pleasant in this case (think rotting corpses and worms coming out of your guts), the dosage starts around 10-12 seeds.
The lethal dose is also around that number.
If they are weak seeds, it will take a lot more, if they are exceptionally strong (which is very possible with this plant), it will take less. So stay under 6 seeds please, at least until you figure out  what strength your batch is. Every batch is different, and even differences between 2 leaves of 1 plant are likely. Like I said, all plant parts contain the alks.
Kids, this is no fun drug, if you feel like you must take drugs, tell your parents. Or take shrooms instead and inform yourself well beforehand. And don't blame me when you go bad.
(Not that I think it's likely for kids to visit the health forum, but just to be sure) For asthma, you smoke the leaves, which should also be harvested around the time the pods are rotting away. The smoke from the leaves can be inhaled as a bronchodilator. The problem with this is it can cause emphysema in the long run. So the question that remains is, how long will you be using it? Also, if you take too much, it's just like the seeds, you have a nasty trip, or die. Scopolamine, the alkaloid that diminishes during the plant's life, is the same substance used in Tikwi (Voodoo), and supposedly by the secret services to make people do stuff they wouldn't normally do, so they can film it and blackmail them. It's the zombie alkaloid. That's why we don't want loads of that in it. It leaves you a little too open to suggestions. But back to the asthma. It used to be rolled in cigarettes, but as it is a hard to dose plant, and as Big Pharma played their game well, we don't use it anymore as such. You could though. It's just important to ALWAYS remember what potentials this plant has, and act on that accordingly. I personally love it, though I only use it very rarely, and never for hallucinogenic purposes. The energy it brings about is very interesting though, if you direct your attention towards it.

Another interesting thing is that there are Native tribes who used this plant, and other plants with similar pharmacological properties, to initiate one from one stage to the other, into adulthood for instance. The most interesting thing to note here, is that they used this plant, so the life of the child could be FORGOTTEN, to make place for the life of the adult, and to reprogram those adults. Shamans can only work with this plant after a lot of experience with other plants, as its spirit is very hard to guide. They call Peyote a beneficent spirit, while Datura is called a malevolent spirit. It's not viewed as evil, just of a more ferocious nature or something along those lines.

In Native American culture, it is used for a lot more purposes than just that though. As is the case with other medicines, this medicine is also used as a hunting medicine, to increase stamina, and a variety of other purposes. I don't remember them all though :lol:


--------------------
The best things in life
can be smelled on one's fingers.


Edited by LizardWizard (08/31/17 04:59 PM)


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24594034 - 08/31/17 06:14 PM (6 years, 4 months ago)

Most annoying symptom ever? Loose teeth. Today is such a day. It doesn't exactly hurt, but it does. Anyone know a natural remedy for it?


--------------------
The best things in life
can be smelled on one's fingers.


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OfflineJacksonMetaller
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Re: The Lyme Disease Thread. [Re: CookieCrumbs]
    #24594329 - 08/31/17 07:49 PM (6 years, 4 months ago)

Quote:

CookieCrumbs said:
As a former ecology major I totally love the idea that the human body is its own ecosystem. It really is. It needs the appropriate conditions to survive and a mass co-op of symbiotic organisms to thrive.


Ecology is so fucking cool. All those little organisms need the perfect set of circumstances and environment to survive and so do you. Your body gives them a home and they in turn give your body the ability to function optimally. And together with other plants and people and animals we create ecosystems on small scales that effect our ability to survive as well on a large scale to effect the ecosphere, the world and the conditions within it that support life.


That's the kind of connectedness that is really tangible for me.




I don't even personally see it as an us and them dichotomy. Multicellular organism, or eukaryotic colony? Nothing but microbes in the first place :grin: It is cool though for sure. Not the view I grew up with. But once you see it it's like you're just layers within layers within layers of the same repetitive patterns through which all life is motioned.


As for those datura seeds... boy those things scare me too. I never realized they were medicinal besides nausea relief. I always wondered why people on the nexus casually report ingesting seeds like it's no big deal.


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: JacksonMetaller]
    #24594415 - 08/31/17 08:13 PM (6 years, 4 months ago)

Because it IS no big deal, as long as you keep it at that, A seed. If you start tripping from them, that is a bit bigger of a deal.

But on the other hand, Erowid? There's a lot of things that are not that big of a deal there, that would be a big deal in the "normal" world (let's all point and laugh at the "normal" world).

Once you see it, things become a whole lot easier to put into perspective. It's also the biggest joybringer in my life. Seeing the cosmic blueprint throughout the world is like looking in the eyes of your children. You just feel love.


--------------------
The best things in life
can be smelled on one's fingers.


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OfflineNature Boy
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24595156 - 09/01/17 05:34 AM (6 years, 4 months ago)

Quote:

LizardWizard said:
These studies confirm my belief that your knee and thigh are still infected with Borrelia. I really hope I'm wrong, I wouldn't wish this upon my worst enemy.

I sincerely hope you keep getting better with time, but I'm not at all convinced of that being the case. If you find yourself getting worse, I'll happily share whatever I know that could help you with whatever troubles you encounter healthwise. Best of luck to you!




Thanks for the well-wishes.  I wish the same for all who are participating in this thread.  I am familiar with the study referenced above.  Frankly, I don't care from a clinical standpoint and as a patient what is specified finding-wise in the study on mice.  What I care about is your (and MY and others) quality of life.  It is for this reason I suggest you ignore all the claptrap in the research (which while academically interesting has NO bearing on your quality of life) and focus on the last paragraph, which I recite here for convenience:

"The authors concluded that ceftriaxone treatment produced clinically meaningful improvements in fatigue and cognitive functioning, and that persistent LD patients with worse baseline pain and physical functioning are likely to experience significant and sustained improvement from such treatment."

I don't care if I have dormant spirochetes.  I don't care if some tick bites me it will activate an infection carrying capability in that tick, etc., etc.  What I care about is that post-treatment I can now remember my grandaughter's name, I can go up and down the stairs of my home facing forward instead of one leg at a time, and I can get in and out of my car again.  If you get the recommended treatment and it effectuates a symptomatic (accepting the possibility of no absolute cure) you won't care EITHER...which is why I'm lobbying hard for such treatment for those who are similarly afflicted with cognitive and musculoskeletal issues following an initial failed Lyme treatment.


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All submitted posts under this user name are works of pure fiction or outright lies.  Any information, statement, or assertion contained therein should be considered pure unadulterated bullshit.  Note well:  Sorry, but I do not answer PM's unless you are a long-time trusted friend.  If you have a question, ask it in the appropriate thread.

                                                                               


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OfflineJacksonMetaller
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Re: The Lyme Disease Thread. [Re: Nature Boy]
    #24595236 - 09/01/17 06:39 AM (6 years, 4 months ago)

You all need to start including links or authors names along your literature quotes lol. I'm able to keep up a little because i've read many of these before but it's getting difficult to refer back to them.

Nature Boy what are you, in your 60s if i recall? I'm turning 25. A little residual knee pain is a big deal to me. A little chronic low grade inflammation over the next 60 years puts me at risk of cancer, cardiovascular disease, more autoimmune diseases and early onset dementia. The nuances of PLDS vs chronic Lyme are very much important to me because I have to live with the consequences of my actions much longer. And again the severity of your own symptoms and response to treatment can not be generalized and extended to others. That Fallon study you quoted is not without it's controversy. Not that anything Lyme related is... but point being all these arguments over study design and interpretation point to one fact. Whatever benefit this therapy may offer is not some sweeping irrefutable remission of symptoms. It is very much in the grey area. The real take home seems to be "at best it's better than doing nothing". Rather than "hey this combination is the real deal!! we're going to cause waves with this thing". There are many who share in your experience. Late Lyme sufferers, early Lyme sufferers etc who have found great benefit in these drugs. And then there are many who have not, but have in other approaches. And here is where the issue lies for me. I don't have allegiance to Science with a capital 'S'. I'm not going to divulge down a certain treatment path just because it's been given more scientific attention when another treatment path offers more theoretical potential. I'm not impressed with the outcomes or theory behind these antibiotic trials so I have no incentive to limit myself to their findings. That's a personal decision though. One that we all must make. Also in my experience the cessation of an antibacterial even after a month or more of using leads to horrendous relapse in which all my symptoms get worse than they started. So i'm in it to win it. Persister cells and all. Anything less does not appear to bring sustainable benefit to me


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: Nature Boy]
    #24595239 - 09/01/17 06:43 AM (6 years, 4 months ago)

Quote:

Nature Boy said:
I don't care if I have dormant spirochetes.  I don't care if some tick bites me it will activate an infection carrying capability in that tick, etc., etc.  What I care about is that post-treatment I can now remember my grandaughter's name, I can go up and down the stairs of my home facing forward instead of one leg at a time, and I can get in and out of my car again.  If you get the recommended treatment and it effectuates a symptomatic (accepting the possibility of no absolute cure) you won't care EITHER...which is why I'm lobbying hard for such treatment for those who are similarly afflicted with cognitive and musculoskeletal issues following an initial failed Lyme treatment.






And I completely understand that. I withdraw my statements about you not completely understanding, as after this explanation, I feel you definitely do understand it.

I also respect your choice to take antibiotics, I think I mentioned earlier in the thread that it's definitely possible to treat with abx, but it's just very important to understand it's implications.

Also, it seems you had it pretty bad, not being able to remember your granddaughters name. That must have been really painful on an emotional level.

If you feel like trying alternative holistic medicine in conjunction with what you are already doing, to both maintain your health and improve it, I'll be happy to send you some wild-harvested Reishi, and I believe Thayendanegea would be equally happy to do so. Wild Teasel is also very good to maintain health when you are feeling better. You could take it once a week or once a month, just to keep it suppressed and to help with possible inflammation. I wish I could help you with the teasel as well, but I'll be needing all that is steeping right now for my own health, and haven't sourced any new fresh roots as of yet. Maybe someone else here, or maybe you can find it in your area. Either way, for me it has been a blessing in the past.

I also want to thank you for this insight, because I do feel that, given the wrong circumstances, I might choose to treat with abx as a last resort, in case my mind starts slipping so bad I become a danger to my family for instance. I also have gained a better understanding as to how to explain abx treatment, and I feel that is important for someone who has just contracted it and has no clue where to start. People have the right to know whatever there is to know about the possible treatments, so they can decide for themselves what suits them and what doesn't. The natural approach isn't for everyone, just like the abx approach isn't for everyone.

We both feel very strongly about our approach, and I think that is a clear sign that it works for us. Feel free to pm me or hit me up in this thread if you ever have any issues that you feel I might be of help with.

Again, thanks for contributing, you enriched this thread with your knowledge and experience just as much as all the other contributors here.


--------------------
The best things in life
can be smelled on one's fingers.


Edited by LizardWizard (09/01/17 06:44 AM)


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Re: The Lyme Disease Thread. [Re: JacksonMetaller]
    #24595246 - 09/01/17 06:54 AM (6 years, 4 months ago)

Quote:

JacksonMetaller said:
I'm not impressed with the outcomes or theory behind these antibiotic trials so I have no incentive to limit myself to their findings. That's a personal decision though. One that we all must make. Also in my experience the cessation of an antibacterial even after a month or more of using leads to horrendous relapse in which all my symptoms get worse than they started. So i'm in it to win it. Persister cells and all. Anything less does not appear to bring sustainable benefit to me




I understand you may want to kill off all persister cells. But I think it might not even be possible with our current understanding to actually kill them all. That's not important either. What is important, is that you get to a point where those persister cells do not start multiplying again, and to a point where they don't harm you. I've been there once, and I think my biggest mistake then was to think I didn't really need the Teasel anymore. Even if you do get them all killed, with the tick population growing each year, there's a chance you will get infected again sooner or later. It's better in that case to know your body and your medicines, than to know that you beat it once before. Because in the end, there is no way at all to be sure of the veracity of that claim.


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OfflineJacksonMetaller
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24595258 - 09/01/17 07:03 AM (6 years, 4 months ago)

Right I get that. I just mean I'm going to take the approach that I think has the best chance of addressing all angles of the issue. Ultimately I'm all about normalizing the human ecosystem rather than straight eradication. I just mean if you're still having active symptoms after treatment your abx aren't doing the full job. They're only approaching the issue from one angle. I didn't mean that I thought it was possible to eliminate every last remnant of the bacteria. That's a bit like trying to remove kudzu from a forest. What I'm not okay with, personally, is leaving active disease symptoms lingering. For one, because I will have to live with them 60 years which will undoubtedly contribute to wear and tear. For two, because in my past experience it's impossible to maintain my health like that. 1-4 days is usually about all it takes for me to relapse into absolute hell. In fact, i got a bad batch of knotweed a few months ago. And by bad batch i mean, it was definitely knotweed, but it was much weaker in taste and presumably certain relevant phytochemicals. I only took it for a few days to hold me over until a better batch came and within those few days immediately developed terrifying heart palpitations after being stable for a long time on good knotweed. Upon receiving the good batch again they immediately retreated but 4 months later I'm still battling occasional bouts of it. This is the 4th time this has happened on a variety of antimicrobials with different symptoms. Fucking around has been worse for me in the long run. Everytime I'm treating I'm doing fantastic. Everytime I stop i acquire symptoms i've never had. So if i stop again it's going to be when I have had no symptoms for several months. And for me to get there means treating every angle of this disease. By in it to win it i mean conquer the disease, not the bacteria. If that means I can knock down motile bacteria and persister cells to levels where they no longer trigger CIDP or inflame my heart i'm okay with that. But I'm not personally going to compromise for a few symptoms because it doesn't work that way for me. It's go big or go home. I was better off not treating than treating ineffectively. And lets remember persister cells illicit an inflammatory response. They are not irrelevant to clinical outcomes. Even if they're tolerated in low levels, it may be very well appropriate to address them when active disease is lingering and that's something i can't do with pharmaceuticals so well.


Edited by JacksonMetaller (09/01/17 07:24 AM)


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: JacksonMetaller]
    #24595285 - 09/01/17 07:22 AM (6 years, 4 months ago)

I definitely agree with you on the timespan issue. It's way more important the younger you are. I also think NB would be better off incorporating a natural approach in his treatment/improvement plan. But like you said, everyone has to make that decision for his/her own.

I also came to a conclusion through this thread. A conclusion that breaks my heart. My ex, who is the mother of my child, has had LD when she was 2. She ended up in the ICU, pumped full of abx, and she has been well for most her life after. Though now, her teeth are rotting away like crazy, and she complains about fatigue a lot. My son complains about knee, ankle, wrist and elbow pains very often. He's 5. Do I need to say more? There on holiday right now, but as soon as they are back, I'm having a serious talk with his mom. I'm going to try and teach him all I know about natural health as he grows up, and start to treat him very soon as well. He also goes at my doctor's, but we've only taken him there for things like ear infections and stuff like that. This shit is horrible.


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The best things in life
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OfflineJacksonMetaller
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24595307 - 09/01/17 07:30 AM (6 years, 4 months ago)

The teeth thing is horrifying. I've never heard of that being a part of Lyme. I've had a toothache since before I got ill. I sometimes wonder if that's connected somehow. I've had it looked at a billion times and nothing has been found. But sometimes when i'm treating i get some flares of pain around the jaw line in that area. Making me wonder if it's infected. Yet it's never progressed. It's the same as it was 3 years ago. The congenital thing is troubling too. I've opted to not have kids if i can't get well. I've never seen much if any evidence of congenital Lyme but I've heard more than enough anecdote of infected families to not want to push my luck.


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InvisibleLizardWizard
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Re: The Lyme Disease Thread. [Re: JacksonMetaller]
    #24595333 - 09/01/17 07:46 AM (6 years, 4 months ago)

Indeed, there are a lot of accounts of congenital transfer. Even from a doctor who had lyme and has kids, all of them have Lyme disease. If I remember correctly, she only found out she had it after giving birth to all three.

Giving it to your kid through pregnancy, birth or breastfeeding is not congenital  though, it's vertical transmission. Congenital is from man to female through sexual contact. Spirochetes are smaller than a sperm cell, so I think IVF should be possible, if you can find an IVF clinic that is willing to do it. I didn't have LD yet when I had my son. I do want another child though, but I've talked about it quite a bit with my GF and although it's hard for her to cope with, we've decided that it's imperative we wait untill I am a whole lot better, and maybe even contact an IVF clinic or something. Though when she blows me, no condom is used. When I lick her, same thing. So she might already have it in her system. She doesn't have any symptoms pointing in that direction though, so we're not worried about that right now. During regular sex, we do use condoms.

I have 2 cavities that started from the inside. It's exactly what you hear a whole lot on Lyme forums. They rot from the inside, then all of a sudden, you've got a hole a couple mm's wide at least. It will also loosen the teeth occasionally. Lyme resides in the mouth very often. It's one of it's niche places, where it can hide pretty well in biofilms and inside the teeth.

For your toothache, what has worked with me on toothaches is rinsing with salt water, and dabbing Clove oil on the affected area. Clove oil stings on your tongue btw, but it's also an analgesic and a disinfectant. It's still used in dentistry today, allthough I think they extract just the eugenol for those purposes nowadays.


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The best things in life
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OfflineJacksonMetaller
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24595501 - 09/01/17 09:16 AM (6 years, 4 months ago)

That would be sexual :wink: Congenital just means present from birth.

Problem with the tooth ache is that it's inside my tooth. Like in the nerve ending. But not shown symptoms concerning enough to warrant a root canal. I might just get it pulled one day but i don't know. I'm hoping as i treat it clears up too. I figure something has to be preventing it from healing


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InvisibleThayendanegea
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Re: The Lyme Disease Thread. [Re: LizardWizard]
    #24596354 - 09/01/17 03:35 PM (6 years, 4 months ago)

Thanks for all the well thought out comments you guys.....as far as the datura goes, I did read about the benefits of helping with  asthma and even as a cure for rabies....which I have had the 21 shots round of vaccine after being bitten by a raccoon when I was a kid. Lol, believe me, I would have much rather sucked on a few seeds.

Anyway, I don't have asthma and I feel pretty good for an old dude with RA...so, I will wait until another sign hits me before I try any of it. In the mean time, I'll dry a few leaves and save a few prickly pods for the seeds in case something strikes me in the future.

Hope you all have a great holiday weekend...at least those of us in the US. Thanks again!!!


--------------------
Look Deep Into Nature,and Then You Will Understand Everything Better.

Albert Einstein


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