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Offlinestarfire_xes
I Am 'They'
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Registered: 10/24/09
Posts: 21,590
Loc: Dallas with all the assho...
Last seen: 10 months, 18 days
10 Weeks ago I had a %45 Chance of Being dead in 2 years... * 5
    #21245571 - 02/08/15 08:34 PM (9 years, 3 months ago)

...And now that chance seems to be reverted to life expectancy of another 15 to 20 years--minimum.

I started taking Solvaldi, Oysio, and Ribavirin daily for Hep C virus under the auspices of doctors at scripps research institute and a pharmaceutical company.  The drugs are provided free and I just have to comply with the requirements of the research.

At baseline I had a MELD score (measure of end-stage liver disease) that was looking really grim.  It was based on the fact that Serum Albumin, Platelets, hemacrit, AST and ALT enzymes, bilirubin, alkaline phosphotase, chloride blood chemistry were all out of spec, and that I am/was in stage 4 fibrosis of my liver with pretty severe cirrhosis.  In addition, my virus load was extremely high.

I was tired all the time--sometime I slept 24 hours straight, my sleep cycle was inverted, my skin was grey and my eyes were yellow, my legs were swelling up like balloons, and I was experiencing infections, rashes, and other odd ailments because of the disease.  I was also beginning to have confusion from ammonia in my blood.

As of the 8 week mark, the virus is undetectable in my blood. All of my tests are normal except albumin, which may take a long time because of my liver, however, it is close to normal.  No more confusion, gross fatigue, memory fog, aches and pains, infections and every thing else I was experiencing. And the swelling is gone in my legs. One of my female coworkers even asked what happened, she said my face look 10 years younger and my color returned.

I have to take the medicine for 24 weeks total, but considering i have almost a 100% chance of being cured, it is worth it. 

But what I really wanted to say is this: I got really lucky.  I didnt have the $200,000 to afford this treatment--it just came to me.  So I'm feeling a lot of humbleness.  And gratitude is a hard thing sometimes for people (Me) to come to grips with.

So I want to say Im sorry if I was a wanker to some people on these boards, and acted like a fucking jerk.  I don't need to be a turd and thats all I can offer you. Hopefully I improve myself as a human from this experience.  I have a lot of life to look forward to. :rockon:

Now, I can get on with LIVING.


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:smug: [/url][/url] 
:smirk: IF THE NEIGHBORS COMPLAIN BECAUSE THE MUSIC'S TOO LOUD, TURN IT UP SO YOU CAN'T HEAR THEM BITCH    :smirk:

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InvisibleRas Rising
Friend of Nature
I'm a teapot


Folding@home Statistics
Registered: 07/13/13
Posts: 4,442
Loc: Once Under, Always Over (...
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: starfire_xes]
    #21245590 - 02/08/15 08:39 PM (9 years, 3 months ago)

Im really glad to hear how well your body is recouping :hug:, keep on getting better in health and in soul. :thumbup:


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:bliss:To be altruistic and humble, to spread love and positivity where ever I go.*:bliss: 

*Does not include the Romp 
:inlove3::sunny::shroomeryhead::feelsshroomyman::shroomeryhead::sunny::inlove3:
Test Kits? SurRealitys gocchu'!

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Offlineqman
Stranger

Registered: 12/06/06
Posts: 34,927
Last seen: 1 day, 22 hours
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: Ras Rising] * 1
    #21245596 - 02/08/15 08:41 PM (9 years, 3 months ago)

Congrats!!  :thumbup:

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OfflineCaptain Kaveman
Noob
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Registered: 01/03/15
Posts: 83
Loc: FL USA Flag
Last seen: 8 years, 2 months
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: starfire_xes]
    #21245601 - 02/08/15 08:42 PM (9 years, 3 months ago)

Quote:

starfire_xes said:
Hopefully I improve myself as a human from this experience.  I have a lot of life to look forward to. :rockon:

Now, I can get on with LIVING.




Congratulations on the great news!  If that's not a miracle, I don't know what is.  All the best.


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InvisibleShroomopotamus
Happy Mushrooming
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Folding@home Statistics
Registered: 09/27/09
Posts: 18,757
Loc: Funkotron
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: starfire_xes]
    #21245606 - 02/08/15 08:42 PM (9 years, 3 months ago)

Happy to hear man, some of your posts had me a little worried about ya :heart:


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*
Live by the mushroom, die by the mushroom
:mushroom2::rainbowdrink:
This is a trap! A trap! You are all busted! Busted! You fools!
:twirlyface:

If a time comes where I fail to appear I've been abducted and I will miss you all
Please smile and pet puppies as often as possible
Be happy
Be nice
(<3);}

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Invisibleluvdemboomers
loner with a boner
Registered: 01/11/13
Posts: 5,054
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: qman]
    #21245607 - 02/08/15 08:43 PM (9 years, 3 months ago)

Quote:

qman said:
Congrats!!  :thumbup:



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Offlinestarfire_xes
I Am 'They'
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Registered: 10/24/09
Posts: 21,590
Loc: Dallas with all the assho...
Last seen: 10 months, 18 days
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: qman]
    #21245615 - 02/08/15 08:44 PM (9 years, 3 months ago)

I want to make sure i don't take it for granted and forget the gift.  You know the Japanese have a proverb:  'Danger Past, Vows Forgotten'


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:smug: [/url][/url] 
:smirk: IF THE NEIGHBORS COMPLAIN BECAUSE THE MUSIC'S TOO LOUD, TURN IT UP SO YOU CAN'T HEAR THEM BITCH    :smirk:

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OfflineAdolin
I'm a teapot User Gallery


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Registered: 06/28/11
Posts: 8,292
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Last seen: 1 month, 10 days
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: luvdemboomers]
    #21245617 - 02/08/15 08:45 PM (9 years, 3 months ago)

thats great starfire! i just love hearing stuff like this. i was under the impression that HEP C was incurable and caused lots of cumulative damage

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Invisibletrekie
Metal man
Male User Gallery

Registered: 05/11/09
Posts: 11,085
Loc: Larger cities Flag
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: starfire_xes]
    #21245646 - 02/08/15 08:50 PM (9 years, 3 months ago)

Damnit Obama can't do anything right....





Glad t hear you are doing better.


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I must not fear. Fear is the mind-killer. Fear is the little-death that brings total obliteration. I will face my fear. I will permit it to pass over me and through me. And when it has gone past I will turn the inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain.


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Offlinestarfire_xes
I Am 'They'
Male User Gallery


Registered: 10/24/09
Posts: 21,590
Loc: Dallas with all the assho...
Last seen: 10 months, 18 days
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: Adolin]
    #21245657 - 02/08/15 08:53 PM (9 years, 3 months ago)

It does.  That's why I have Cirrhosis.  The newest drugs target Protease and Polymerase activities specifically that the virus needs to reproduce.  Thats why its so effective.  They've had up to 100% cure rates in all the studies of this combination.

What's interesting is the doctor said that they are finding out, if you stop the source of liver damage, i.e. the virus, even the cirrhosis is repairable.  This is a very new discovery as cirrhosis was previously thought to be irreverisble.

However, there is a process, they believe is due to collegenase, that will tear down the scar tissue in the liver and have it revert to normal--up to a certain point.  But it is promising.


And no one is happier than that doctor. He's finally got chemicals and drugs that he can cure Hep C with, so everyone is lovin' it.  Everyone except the insurance companies. :grin:


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:smug: [/url][/url] 
:smirk: IF THE NEIGHBORS COMPLAIN BECAUSE THE MUSIC'S TOO LOUD, TURN IT UP SO YOU CAN'T HEAR THEM BITCH    :smirk:

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Offlinelowbrow
Paddy Time!!!!
Male

Registered: 09/12/08
Posts: 9,820
Last seen: 1 day, 5 hours
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: starfire_xes]
    #21246196 - 02/08/15 11:32 PM (9 years, 3 months ago)

Obamacare  cured you?


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Amanita86 said:
Sui is trying to mod right now.  Kinda like a newborn calf tryin ta stand fer the first time ain’t it..

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Offlinestarfire_xes
I Am 'They'
Male User Gallery


Registered: 10/24/09
Posts: 21,590
Loc: Dallas with all the assho...
Last seen: 10 months, 18 days
Re: 10 Weeks ago I had a %45 Chance of Being dead in 2 years... [Re: lowbrow]
    #21246209 - 02/08/15 11:39 PM (9 years, 3 months ago)

Quote:

lowbrow said:
Obamacare  cured you?




Not at all.  The drugs where paid for by the research study.  My insurance did pay for one drug.  But so far the drug companies AND the state insurance exchanges are limiting the medication only to the worst cases who are at risk of imminent liver failure.


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:smug: [/url][/url] 
:smirk: IF THE NEIGHBORS COMPLAIN BECAUSE THE MUSIC'S TOO LOUD, TURN IT UP SO YOU CAN'T HEAR THEM BITCH    :smirk:

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