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Anonymous #1

Doctors here have failed me....
    #19192742 - 11/26/13 03:54 PM (10 years, 2 months ago)

There isn't so much point of posting this here more than to vent.  I also imagine some people here will think I'm crazy or full of shit but that's ok I don't need to prove my illness to anyone.


Basically my problems started around a year to two years ago after I started treating lyme disease, I started getting tons of black dots in my stool.  The standard doctor answer here is to check for blood, lo and behold no blood!    What else causes black dots, I learnt fromg going on forums for lyme disease and from searching online that parasites can do that.  Logically a lot of  dots seem like eggs.


Fast forward a few weeks/months I get a colonscopy from a gasterentologist, they find nothing.    Fast forward to now after a year since then I have been to tons of doctors - both the lyme and neurologist doctor seem to believe me cause of my clinical symptoms but they are not parasite experts.


It turns out in the US there are very few parasite specialist doctors and the ones that are sometimes charge hundreds of dollars to be seen and treatment, etc...


I saw one parasite specialist in the city that diagnosed me hookworm and gave me a one day medication which in the long run didn't do shit, and the next time I saw him he said he found nothing even though my problems persist.  He is a very shady person also I should add, he barely speaks more than a few sentences when he sees you.  His procedure is interesting though, he does a sigmoidoscopy to get a fresh stool sample which most doctors do not do but besides for that he is pretty shady and  even his office seems pretty unsanitary, which is ironic considering he is a parasite doctor  -  I saw someone else say in another forum if you see him you are likely to leave with more parasites lol !!


I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.


Other symptoms  i have gotten are -  random scratches on occasion such as in my upper arm or by liver area,  biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!!    Fatigue,  bad headaches more so when there's a full moon out,  itchy feelings throughout the body, random rashes and the list can go on really.  Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.

The sad thing is that most doctors will think I'm crazy and likely advise to take a xanax or tyleol but that doesn't cure an ongoing problem like this.  The one good thing is I talk to tons of people online and have access to parasite forums where people have gone through this or are going through it so there are still a few advanaced labs I can try testing with as well a drug protocols to try to cure this.  It is bothersome though that I can't be treated by a doctor here so far and they'd rather deal with simple issues than something advanced like this.    That said I have a neurologist I may go back to soon that worked with me last time and see if we can get all the cdc lab tests and anything that might help give more specific diagnosis.

Also I realise some parasites might be easy to diagnose like a new case of pinworms might not be a big deal but some parasites can live in the tissue and be hard to diagnose especially when they are in your body for so long - some of them have also basically evolved to invade the immune system so that's what makes them tricky but with a proper diagnosis they can be targeted easier with a drug protocol that goes after them.  There are still protocols to try as well even if not 100% sure which types they are.  If you think this story is made up that is your right to think so..... but it's not.  I don't crave attention from this story or anything but simply hope to be cured from it sooner rather than later.  A funny thing too is that I almost feel like coming a parisitologist after all this and in a way have become my own researcher since that is the best option available really.  Maybe some others here have heard similar stories too or something.

Peace


Edited by Anonymous (11/26/13 04:02 PM)


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19192772 - 11/26/13 04:02 PM (10 years, 2 months ago)

Have you ever just brought in your own stool sample and said what the fuck are these dots?


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19192795 - 11/26/13 04:08 PM (10 years, 2 months ago)

I didn't actually bring it in but told the gastro doctors and my regular doctors and the regular doctor said to go to the gastro doctor and the gastro doctor's answer was that a colonscopy is how he can diagnose it.    He didn't find anything though.  He did send a sample to check for parasites but what I have found it is that most insurance covered labs don't find parasites at all when they check.  People have sent them samples with a worm put in the sample cups and have come back negative for parasites. It's a scam really.

I did go back to the doctor a few months ago and told him my whole predicament and how I've seen flukes and still have gastro problems over a year after his colonscopy and he basically ended up saying to go to a parasite lab that is in the city -  but this lab actually has really bad reviews and they over charge like crazy so I wouldn't even bother going there.  I am saving up for a lab test from metametrix labs though as they are considered one of the best.  Instead of just eggs they also check for parasite material in the test.


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Invisiblejack_straw2208
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19192893 - 11/26/13 04:27 PM (10 years, 2 months ago)

eat raw garlic


--------------------
If you can’t tell what you desperately need, it’s probably sleep.


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Anonymous #1

Re: Doctors here have failed me.... [Re: jack_straw2208]
    #19192983 - 11/26/13 04:46 PM (10 years, 2 months ago)

I have and it helps but at this point it could make things worse.  I'm pretty much looking to do meds now that will kill them directly. The problem with garlic and herbs - natural remedies, etc.  is if its not strong enough it can cause parasites to scatter so im kind avoiding that route now.


Edited by Anonymous (11/26/13 04:47 PM)


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19193449 - 11/26/13 06:22 PM (10 years, 2 months ago)

I'm not saying you're right or wrong about the parasites but I will say I think you're on thin ice reading on forums and kind of coming up with a self-diagnosis and then spending a lot of money trying to get your own diagnosis verified instead of just being happy when they tell you they've ruled it out. I mean, if you pay enough somebody will tell you what you want/expect to hear but that doesn't make it true either. I also wouldn't put too much stock in online reviews and all that. Anyway, good luck.


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19193718 - 11/26/13 07:16 PM (10 years, 2 months ago)

:skittles2:
Quote:

TheFakeSunRa said:
I'm not saying you're right or wrong about the parasites but I will say I think you're on thin ice reading on forums and kind of coming up with a self-diagnosis and then spending a lot of money trying to get your own diagnosis verified instead of just being happy when they tell you they've ruled it out. I mean, if you pay enough somebody will tell you what you want/expect to hear but that doesn't make it true either. I also wouldn't put too much stock in online reviews and all that. Anyway, good luck.




Well, to add that I agree, what people say online could be sketchy at times but I've done a lot of research and simply put I have all these symptoms daily and the clincher being what I see in the bathroom and half the doctors simply writing it off.

Before I got diagnosed with lyme disease 2-3 years ago my regular doctor kept telling me I'm perfectly fine until finally another type of doctor recommended a lyme disease blood test and bam she was on the money with her suggestion.

So I agree but I'm not gonna let doctors ruin my life either. Also I have seen some sketchy doctors that I've ruled out like one that did muscle testing and gave me a diagnosis without any blood tests.    The CDC's own website says diagnosing parasites can take multitudes of tests and even different labs sometimes.

The labs will say they find nothing if they don't find anything - basically the specialty ones (with reputations at least) check for multitudes of types of parasites and whatever the test is looking for and report their findings. I've tried some that came back with nothing too.

Thanks. :plur:


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19193831 - 11/26/13 07:45 PM (10 years, 2 months ago)

When you wipe your ass can you look at it and see a parasite or eggs?


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19193991 - 11/26/13 08:18 PM (10 years, 2 months ago)

Not really. There also aren't eggs like there used to be but the stool itself is not formed normal and can be different than normal colors.  Sometimes orange stuff comes out with.  There also stringy stuff in it lately which can be possibly intestinal lining or something related to it. On occasion fluke like material comes out too - rubbery orange things.


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19194048 - 11/26/13 08:28 PM (10 years, 2 months ago)

Are lethargic or nauseous or anything else? I remember you mentioned weight loss.


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19194057 - 11/26/13 08:30 PM (10 years, 2 months ago)

Oh sorry. I see fatigue mentioned above and all your symptoms.


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19194093 - 11/26/13 08:37 PM (10 years, 2 months ago)

Quote:

Other symptoms  i have gotten are -  random scratches on occasion such as in my upper arm or by liver area,  biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!!    Fatigue,  bad headaches more so when there's a full moon out,  itchy feelings throughout the body, random rashes and the list can go on really.  Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.





The body is weird and malfunctions. I've had all sorts of physical manifestations of depression and anxiety. Health care sucks so bad in America. Maybe the Lyme Disease has got you worked up and you know maybe you're kind of freaking yourself out.


Definitely NOT trying to dis you.

Good luck again.


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19194096 - 11/26/13 08:37 PM (10 years, 2 months ago)

Yes.  Fatigue is part of it.  Also cause it's hard to sleep at night sometimes so I end up falling asleep later in the am hours. Not neasua but headaches sometimes too.  Netflix helps for those times of taking a long time to get to sleep tho.


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19194104 - 11/26/13 08:38 PM (10 years, 2 months ago)

Ambien has been a Godsend for me.


--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19194115 - 11/26/13 08:41 PM (10 years, 2 months ago)

Quote:

TheFakeSunRa said:
Quote:

Other symptoms  i have gotten are -  random scratches on occasion such as in my upper arm or by liver area,  biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!!    Fatigue,  bad headaches more so when there's a full moon out,  itchy feelings throughout the body, random rashes and the list can go on really.  Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.





The body is weird and malfunctions. I've had all sorts of physical manifestations of depression and anxiety. Health care sucks so bad in America. Maybe the Lyme Disease has got you worked up and you know maybe you're kind of freaking yourself out.


Definitely NOT trying to dis you.

Good luck again.




I hear that.  I'm not depressed tho.  I have stuff I enjoy doing.  I'd like to be healthy and just go around playing music, and working on stuff which I'm doing but it cost a lot of money and time trying to figure things like this. It isn't mental though.  That's why I said earlier taking a xanax wont magically make the thing go away. Also I have seen at times when I got a parasite load out my body felt healthier but it is on and off with this so that's why I'm still trying out different tests.  In the meantime tho there are still treatment options to try tho.  Will see what happens tho. 

Thanks


Edited by Anonymous (11/26/13 08:42 PM)


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InvisibleDr.Dankhead
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19194136 - 11/26/13 08:45 PM (10 years, 2 months ago)

I would suggest getting the highest proof alcohol, and drink yourself completely stupid, not lethal stupid, just healthy stupid..


Kill everything in ya, you'll be shittin fire:lolsy:


--------------------

:mushroom2:**need a check up?**:aliendance: **im a Doctor**:mushroom2:
:bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2:
i sometimes wish I was a wormy, wiggling all in the cold dirt...tickle tackle pickle dickle think a mackshift thought of broken words broken gears and words of conundrums..I'm not a weiner doctor so take that shit to dr. Gonz free boob inplant consultations.. Photo required


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InvisibleDr.Dankhead
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Re: Doctors here have failed me.... [Re: Dr.Dankhead]
    #19194162 - 11/26/13 08:49 PM (10 years, 2 months ago)

And i eat LOTs of food, i have an eating schedule to keep from getting too skinny because my metabolism is so high, my body digests food and the nutrients pass right through me..

Leading to my pale, skinny, vampire like vibe.. This could be the same for you, who knows..

But the shit thing is weird.. Get out of your city and get to some good doctors.


--------------------

:mushroom2:**need a check up?**:aliendance: **im a Doctor**:mushroom2:
:bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2::bow2:
i sometimes wish I was a wormy, wiggling all in the cold dirt...tickle tackle pickle dickle think a mackshift thought of broken words broken gears and words of conundrums..I'm not a weiner doctor so take that shit to dr. Gonz free boob inplant consultations.. Photo required


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Anonymous #1

Re: Doctors here have failed me.... [Re: Dr.Dankhead]
    #19194307 - 11/26/13 09:21 PM (10 years, 2 months ago)

Quote:

Dr.Dankhead said:
And i eat LOTs of food, i have an eating schedule to keep from getting too skinny because my metabolism is so high, my body digests food and the nutrients pass right through me..

Leading to my pale, skinny, vampire like vibe.. This could be the same for you, who knows..

But the shit thing is weird.. Get out of your city and get to some good doctors.





Yeah I don't have money to go looking for doctors altho honestly if I did I might even go somewhere like Brazil or London, I've heard they actually have parisitology clinics there.  Unlike US,  that is weird though - it makes no sense there are so few parasite clinics in US.  Regardless a doctor from vietnam is sending me a drug that is supposed to kill off the hardest to get rid of fluke parasites, then I have more treatments to do.  On the forum I visit it seems a common thing is that a small amount of doctors in US have extensive knowledge on parasites and dealing with them, etc.

I'm looking to order a test soon from a reputable lab and see if it comes up with anything.  There's someone that wrote out very detailed parasite protocols online that could help too (I think she is a doctor and makes jokes how doctors here thing people claiming to have parasites are crazy).  I realize how out there this all sounds but it is how it is.  If you do searching into it online there are tons of similar stories.  :ooo:


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InvisibleTheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19194486 - 11/26/13 10:21 PM (10 years, 2 months ago)



--------------------
[quote]Asante said:
You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar.

You know how shit you are, you just don't give a fuck for precisely that reason.

I disendorse you.[/quote]


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Anonymous #1

Re: Doctors here have failed me.... [Re: TheFakeSunRa]
    #19194611 - 11/26/13 11:03 PM (10 years, 2 months ago)

It's easy to see how there are so many species.  I made an appointment with the neurologist that worked with me last time and might try to see if we can somehow get all the cdc tests since diagnosing has been hard so far.

This is the person that has posts on parasite drug protocols online and some funny ones about US doctors and parasites -

http://curezone.com/forums/fm.asp?i=1592951

http://curezone.com/forums/fm.asp?i=1625158


Edited by Anonymous (11/26/13 11:05 PM)


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Anonymous #2

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19195119 - 11/27/13 05:13 AM (10 years, 2 months ago)

Quote:

Anonymous said:


It turns out in the US there are very few parasite specialist doctors and the ones that are sometimes charge hundreds of dollars to be seen and treatment, etc...



Peace




So check this out - go to a communicable disease specialist.  They may not be parasitologists but they will do double time to find something because they love testing people.  I had a communicable disease specialist for a PCP and he was always wanting to test me for stuff, just his speciality.


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #2]
    #19196834 - 11/27/13 02:41 PM (10 years, 2 months ago)

Quote:

Anonymous said:
So check this out - go to a communicable disease specialist.  They may not be parasitologists but they will do double time to find something because they love testing people.  I had a communicable disease specialist for a PCP and he was always wanting to test me for stuff, just his speciality.





That sounds interesting.  Didn't find anything local from that online though. Regardless I'm trying to get all serology blood tests possible for parasites here.  I don't know how reliable they are considered but what the hell. At least insurance covers them, an id doctor mailed me a prescription for 4 tests but that isn't nearly enough lol and he didn't give me ones for flukes like I requested.  I may bring a list to my neurologist appointment and see if we can get everyone possible that can be related to gastro and neuro issues. :sun:


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Anonymous #3

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19198869 - 11/28/13 12:03 AM (10 years, 2 months ago)

.


Edited by Anonymous (12/19/14 05:47 PM)


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #3]
    #19200970 - 11/28/13 01:57 PM (10 years, 2 months ago)

Quote:

Johnny Depp said:
It's kind of difficult to weigh in with an opinion here.  You never mentioned if you traveled anywhere before this started.  That's crucial.  Also, I have no clue how old you are. 

Did you really have lyme disease?  Because that can really mess you up for a long time.  Including GI problems. 

Just taking a wild stab at what type of parasite, maybe, Entamoeba histolytica.  IDK.  Sometimes certain types of parasites only show up in stools cyclically.  So it is possible that some tests came back negative.  The colonoscopy should have found something.  Unless they aren't doing anything.  Maybe they're just hanging out in there. 

I would suggest getting another stool and urine test. 

But the thing is, that one day treatment you got should have killed any parasites.  It's basically a massive dose of a neurotoxin for parasites.

You did those herbal remedies.. damn..  hmm

Well, here's what I really think, and you're not going to want to read it:  Sounds a bit like Somatoform disorder.  Your tests are coming back negative.  You are obsessing about it.  paranoid, posting anonymously, getting a lot of BS info from online.  I was actually hesitant to respond, as it's just feeding your problem. 

Stop getting weird about doctors and labs man.  Believe it or not, doctors actually want to believe their patient.  If you are getting multiple MDs to second guess the reality of your illness, then you are probably giving off a bit of the old "crazy" vibe (like in your posts).  Labs aren't a scam either, I mean, come on. 

Just to give you the benefit of the doubt I would say get more labs run.  Sort of like that "shady" doctor who probably only prescribed you that treatment to make you feel better. 

My real advice:  Chill out dude.  Stop reading shit online.  Stop obsessing about this.  Obviously, you have had it for a long time now and it hasn't killed you yet.  So it looks like it's not going to kill you anytime soon.  Try not worrying about it for a while.  Like I said, lyme disease can seriously mess you up for a while, and give you lingering symptoms like this.  Write it off as that. 

Go and see a psychiatrist if you still can't take you mind off it





Ok I am 25 and I haven't traveled much, I was in Israel a couple of years back but not much else than that.  Honestly I don't think you have to travel to catch parasites - I know that is the mantra of a lot of people in the US, but I don't buy that at all.    My neurologist told me about a Jewish family that caught tapeworm because their cleaning lady didn't wash her hands and eggs was spread on their food - tapeworm is usually caught from pork and this family didn't even eat that.

Also yes I did have lyme disease, blood tests showed it and still do in fact but my lyme specialist who I saw recently agreed my issues now are likely more parasites than lyme disease.  Back when my lyme was heavy I had a lot of strange headaches and neurological issues but I haven't had those kind of lyme headaches since I took antibiotics for a couple of months.

A little after starting lyme treatment the parasite symptoms/issues such as black dots showing up in stool back then started to unfold.  It makes me think that maybe I have had these things for a long time and it was just dormant in my body.  Maybe when the immune system is strong some parasites can simply be in ones body without symptoms.  I can say that I used to bite my nails for years-  my lyme doctor actually said she thinks I could have parasites from biting my nails- she noticed that they looked chewed on. I did stop that habit a couple years ago though.

EH certainly sounds like a possibility.  A protozoa would make sense since they can be microsopic and I imagine harder to find than some other parasites.  The only thing is the doctor I saw in the city is notorious for finding EH but he didn't claim that with me so I don't know.  That doesn't prove anything though- I find the doctor pretty shady honestly.

http://www.vitals.com/doctors/Dr_Kevin_Cahill/reviews


I do have to say though a few things - I am not obsessed - I simply want to finish treating it so I don't have to think about it anymore.    The online forums have honestly saved my life - I have incorporated many things into my diet like pineapple that I think help with whatever I have.

If I had originally listened to my regular doctor who kept telling me I was ok even though I had to go to the ER multiple times from symptoms I would likely be much worse off now and who knows what else. It was my persistence that helped me get a lyme diagnosis thankfully and treat it up to a certain point.  I think once the parasites are dealt with I can take anti lyme herbs and finish with what is left of that.  Many in lyme forums have said treating it gets a lot easier when parasites are dealt with - luckily my lyme symptoms aren't that much now.

Also I can't actually prove it to you but without even looking it up myself I bet if you search online for - testing for parasites I bet you can find countless people saying that the insurance labs like Quest and Labcorp don't find shit with parasites.  I'm not joking.  People have literally sent samples with worms in them and the lab would say they found nothing.

Think about how insurance companies make money, I wouldn't find it hard to believe that the people looking at stool samples in these labs aren't that scientifically advanced. There are labs that have very good reputations for being able to diagnose stool.

Again this can simply be googled to see what people from all over say about them- labs like Matametrix are know to be some of the best at lab testing for parasites.  Again, I'm not obsessed though and maybe there is some solace that my blood results don't look abnormal now but this is still something I am working on to continue fixing. 


Edited by Anonymous (11/28/13 02:11 PM)


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Anonymous #3

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19204990 - 11/29/13 01:58 PM (10 years, 2 months ago)

.


Edited by Anonymous (12/19/14 05:48 PM)


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #3]
    #19206546 - 11/29/13 09:26 PM (10 years, 2 months ago)

Quote:

Johnny Depp said:
World travel you say?  Of course you can catch parasites in the US.  It's just that the more you travel the more likely you are to pick up new parasites.  A lot of other countries have parasite issues too.  Like untreated people who have nasties and spreading them around via contaminated food and water etc.  It's just a really important factor to know when getting a history on a patient complaining of possible parasite infection. 

It could be that you've had it for a while.  Actually, every single person has millions of parasites living in their body.  Bacteria, protozoans, viruses.  Just hope you don't get HIV because usually none of the parasites take hold and cause health issues.  So yes, you are right about a strong immune system keeping you from getting sick from parasites. 

I'm still thinking this could all be a part of your lyme disease/treatment.  Maybe even the antibiotics killed off some good bacteria allowing some other parasite to take hold.  Or just threw off your previous GI floura/fauna balance. 

Your gastroscope would have found crohn's disease and other stuff like ulcerative colitis if that was the issue.  Have you thought about celiec's disease?  Have you tried cutting out gluten?  a gastroscope would not find celiac.  Or also, Whipple's disease? 

Or another allergy.  The itching and rashes are clues of maybe histamine if your liver is fine.  Have you had your liver tested?  Have you ever been jaundiced?  It could be some type of food allergy. 

Another theory:  The black dots and rubbery things could just be undigested material, fiber.  If you body is having a hard time digesting food then that would also explain all the symptoms you are having.  There could be a lot of different things causing that too. 

I am just saying, I wouldn't be so adamant that it has to be some parasite if tests keep coming back that it's not that.  I believe you are having a problem.  I also believe you are worrying about it too much.  You may need some anti-anxiety medication hahaha.  Seriously, the mind is a powerful thing.  If you stop worrying about it so much you'll probably start feeling better.  But I understand your desire to get to the bottom of it.  It's just that you may never figure it out.  Just try to be more relaxed about it.  Try some things systematically.  just make a doctor's appointment to get another stole/urine sample.  Stop buying into the lab conspiracy theory.  It's not that I don't believe you.  It's just one step over the crazy line.  The meter is reading higher every time you bring it up, hahah.  Maybe labs do shoddy work sometimes.  Just get another lab.  What are the odds they screwed it up twice?  See what I'm saying?  At some point you have to admit you're getting a little weird about it.  I mean, why don't you build your own lab and do it yourself fer chisakes!?  Get you liver numbers done if you haven't already.  And start fooling around with stopping eating certain foods.  Celiac and other allergies can develop at any age.  Maybe you are allergic to a food now.  Just systematically start cutting out foods you normally eat, and see if you feel much better suddenly.  And most of all, stop worrying so much!  When you go to the doctor get some anti-anxiety med or something hahaha.  Honestly, the Dr can both believe you have a problem and also believe you need anti-anxiety medication.  They are not mutually exclusive.




Hi. I guess the title of this topic might sound dramatic so I could see how it comes off as worrying lol.  Honestly there are times where I feel fine so like I said before it's about getting to the bottom of it I guess.

Anyway if I test with any more labs it will be ones that specify in parasite testing, that way the odds are much better that if something is there they could hopefully find it. I actually heard of one called Parawellness that is supposed to be very good.  Their specialty is parasites so it seems like if something from parasites is showing up in stool they may find it.  Also ya by shoddy lab work I mean labs like Quest Diagnostics lol.

About liver enzymes - they do fluctuate from time to time but a doctor said my most recent test it came back normal. I have had yellow appear on my hand from time to time mostly when I was taking meds for parasites though.  I'm pretty sure I may have liver flukes which tend to blend in with the immune system from what I have read and I think they can lay dormant until provoked pretty much.  I saw a few of them back when I took the herbs - creepy orange globs - some with black string like tenticles on them. If you google rolled up tomato skins that's what it was- and fluke pictures will probably come up - I don't eat tomatoes either lol.

I have tried all kinds of diets and that wasn't the answer in the long run although definetely - when I'm careful about diet it does help but it isn't the answer.  I actually thought a while back maybe my problems where candida so I tried cutting out sugar and gluten for weeks and the issues still remained.

I got a celiacs blood test from the gastro doctor as well and nothing came from that.  Also interestingly enough - the labs I have tested with that check for yeast and other issues said that my flora was good so I don't think that is a issue too. I take tons of probiotics as well.

I haven't heard of whipple's disease but it looks like from googling it an endoscopy is a way it can be diagnosed and I think I may have actually gotten an endoscopy a while ago before my colonscopy and that is besides that I saw parasite stuff back when I took the anti parasite herbs. ;]

Also it is funny you say build your own lab because that is kind of the situation with this stuff for alot of people apparently.  Someone actually told me something like that recently, people are basically going need to learn to id the parasites themselves.

The thing about that too is I almost feel like I could become a parasitologist from all the information about infections and even medications for them I have learned.  There are apparently very few of them around here that are doctors but I don't want to go to medical school so I don't know lol, but that would be quite the profession.  Anyway going forward I hope to try a parasite lab sometime soon and see what happens, as well as broad spectrum treatment and go through with it.  I do have half a bottle of albendazole left and a doctor from vietnam is sending me meds that target tapeworm and flukes so right there covers a bit.  May see what the neurologist says about that too, he was one doctor here that was in agreement with me that you can get parasites even in the U.S.

Again I guess this whole thing is a bit of an experience but I'm not really worrying about it so much just to reiterate.  I'm doing plenty of other stuff stuff too.  Honestly the topic is even a little interesting to me since learning about this stuff too even from an outside perspective.


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Invisiblemoonrockmushy
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #19209692 - 11/30/13 06:46 PM (10 years, 1 month ago)

I just wanted to say that there is a definite lack of credible data and a ton of misinformation out there on lyme disease.

I was diagnosed limey two seperate times.  Not sure if it was a reinfection or a recurrence of the same strain.  In my search for information I have encountered websites that claim to be medical experts who say that everyone who complains about chronic lyme symptoms is a hypochondriac or liar.  I have also encountered even more sites that are authored by self-diagnosed chronic lyme sufferers who swear up and down that there are little lyme bugs and worms peeking out of their skin at them.  They believe there is a massive coverup or negligence by the government and medical community.

Both sides are ridiculous.  Just be careful not to believe everything you read.  We can easily diagnose ourselves terminally ill if we put in the right symptomson google, 99.99% of the time we're wrong.


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Re: Doctors here have failed me.... [Re: moonrockmushy]
    #19209716 - 11/30/13 06:52 PM (10 years, 1 month ago)

All I'm going to say is that everyone I know who has wiki'd up their symptoms and diagnosed themselves have been wrong.

I sincerely hope you find an end to your problems.


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Anonymous #1

Re: Doctors here have failed me.... [Re: DirtyTomFlint]
    #19212902 - 12/01/13 02:04 PM (10 years, 1 month ago)

Thanks. I also definitely agree about looking up symptoms. Its easy to think you have all kinds of diseases by looking up symptoms online but my symptoms are very parisitic tho it isn't so much a question at this point but I do have medicinal options thanks to the help of people online that are experienced in parisitology.

I may try testing with one more lab tho called parawellness which I have heard good things about.

Maybe one day I'll write a book about all of this. If I ever do I'll try to let you all know. ¥


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20541288 - 09/09/14 12:53 AM (9 years, 4 months ago)

Throwing an update out there - but still working on trying to figure this out.

It is unbelievable how there is no parasite test that can find everything and some doctors think you have mental issues if you say the word parasite. Some of them do recognize the problem but admit/say that testing can be tricky.

Also if you get something that isn't commonly seen in the U.S. blood test may not even be available for it here and then there is even off the book type stuff such as different types of species that may not have a clear test for.    I got a filariasis blood test tho after seeing a tropical doctor and pushing him for it. Some say ticks can carry these and it seems treating lyme again may be a next step soon. 

Ct scan of chest also revealed small thyroid nodule apparently and now waiting on thyroid ultrasound to see what they say about that.

Anyway thought I'd vent for a second and maybe others have similar issues too.

Peace


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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20541334 - 09/09/14 01:14 AM (9 years, 4 months ago)

Why do you think you have parasites? I don't understand. You seem to be convinced of this based on nothing and refuse to accept that nobody can find evidence of them.

Honestly, you could probably benefit from a psychiatrist more than anything.


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Re: Doctors here have failed me.... [Re: koods]
    #20541346 - 09/09/14 01:21 AM (9 years, 4 months ago)

What's your diet look like?  Your stool sounds more like poor diet than parasites.  Have you tried Syrian Rue or Mimosa bark?


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Re: Doctors here have failed me.... [Re: Couperj]
    #20541351 - 09/09/14 01:25 AM (9 years, 4 months ago)

P.S. Diet is incredibly important!!!


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Anonymous #1

Re: Doctors here have failed me.... [Re: Couperj]
    #20541365 - 09/09/14 01:42 AM (9 years, 4 months ago)

Agreed on diet but I do eat pretty healthy. I don't eat junk food. I've tried no gluten diets, eat minimal dairy and have had a food allergy test too.  Some doctors I see like a lyme doctor here thinks I have parasites but they are not easy to treat. Some people can take a long time to treat.

Honestly how I know I have them is cause I did a herbal parasite cleanse and passed some very weird stuff that smelled awful and nothing I could have possibly eaten.

One was a huge black thing. At the time I was disgusted and just flushed it. Can google 'ropeworm' for what it looked like. People aren't sure if it's an actual parasite or something made in the body - not actually alive, etc.  There was at least one scholarly paper on it.

Another reason is I passed what looked exactly like a fluke parasite if you google it. But this was only on the parasite cleanse herbs and I learned these herbs can make them scatter in the body so I prefer meds now. Also if I never passed this I probably would have never learned so much about it.

And for medical proof I had a stool test done by a private lab that showed protozoa - microscopic parasites and a blood test by a doctor that also showed positive for amoeba - which could be what the other test showed too.

Also diet wise I feel best eating minimal fat and vegetables but energy is imporant of course from food but it pretty much comes out as gobbled up stuff later on and feels like it backs up around my upper body which is weird.


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Anonymous #3

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20541567 - 09/09/14 04:35 AM (9 years, 4 months ago)

/


Edited by Anonymous (12/20/14 02:46 AM)


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #3]
    #20542781 - 09/09/14 11:35 AM (9 years, 4 months ago)

That's why I'm getting a filarial test - it seems to be one associated with lyme.  People on lyme/health forums report passing all kinds of parasites though.  I realize it sounds crazy and also when I'm doing other stuff I don't always think about this - but I guess ultimately getting healthy is a goal of mine if it is possible.  :sun:

Someone on a health forum that I visit said something like this but this stuff is kind of like the Twilight Zone of medicine.


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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20542797 - 09/09/14 11:39 AM (9 years, 4 months ago)

You aren't going to see most parasites most in your crap.


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Anonymous #1

Re: Doctors here have failed me.... [Re: koods]
    #20542896 - 09/09/14 12:06 PM (9 years, 4 months ago)

I know, that is also why stool tests can be a joke sometimes.  The microscopic stuff unless examined carefully by someone with a microscope wont find anything.

http://curezone.com/forums/fm.asp?i=2167282


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Invisiblemoonrockmushy
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20555869 - 09/12/14 12:31 AM (9 years, 4 months ago)

I was going to give you some advice about lyme disease and similar illnesses but I'll sum it down to this: Lyme can cause damage to several parts of your body including brain and other organs which can have long term effects.  That doesn't mean your body didn't develop antibodies to Lyme.  That doesn't mean you are still suffering from an acute case.  If your doctor discourages you from extended antibiotics or other treatments you request he may have good reason.  Those treatments can do harm themselves.

You sound paraniod to me.  Lyme and pinworms are very different.  I have had both.

I mean I can see how doctors look at you like you're crazy if you say stuff like this:

Quote:

I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.




You have to realize that their education is based on science and you are pulling shit out of your ass.  Are doctors perfect, surely not, but a step up from herbs.

I'm curious, what did your parasites look like?nvm you did...    Also do you take any stimulants or been diagnosed with anything that might cause delusions?

I really don't mean to offend, but I've seen this all before.  You very well could be right but I just want to give some other options as to whats happening here.


Edited by moonrockmushy (09/12/14 12:39 AM)


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InvisibleDr.Dankhead
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Re: Doctors here have failed me.... [Re: moonrockmushy]
    #20559142 - 09/12/14 05:51 PM (9 years, 4 months ago)

Quote:

moonrockmushy said:
I was going to give you some advice about lyme disease and similar illnesses but I'll sum it down to this: Lyme can cause damage to several parts of your body including brain and other organs which can have long term effects.  That doesn't mean your body didn't develop antibodies to Lyme.  That doesn't mean you are still suffering from an acute case.  If your doctor discourages you from extended antibiotics or other treatments you request he may have good reason.  Those treatments can do harm themselves.

You sound paraniod to me.  Lyme and pinworms are very different.  I have had both.

I mean I can see how doctors look at you like you're crazy if you say stuff like this:

Quote:

I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.




You have to realize that their education is based on science and you are pulling shit out of your ass.  Are doctors perfect, surely not, but a step up from herbs.

I'm curious, what did your parasites look like?nvm you did...    Also do you take any stimulants or been diagnosed with anything that might cause delusions?

I really don't mean to offend, but I've seen this all before.  You very well could be right but I just want to give some other options as to whats happening here.




I believe 100 that you are likely right.

O.P, You may just have i.b,s or some abdominal issue. Have you had your gallbladder removed?

What are your symptoms again?


--------------------

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Offlinekoods
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Re: Doctors here have failed me.... [Re: Dr.Dankhead]
    #20559184 - 09/12/14 06:01 PM (9 years, 4 months ago)



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Anonymous #1

Re: Doctors here have failed me.... [Re: Dr.Dankhead]
    #20560135 - 09/12/14 10:13 PM (9 years, 4 months ago)

Quote:

Dr.Dankhead said:
Quote:

moonrockmushy said:
I was going to give you some advice about lyme disease and similar illnesses but I'll sum it down to this: Lyme can cause damage to several parts of your body including brain and other organs which can have long term effects.  That doesn't mean your body didn't develop antibodies to Lyme.  That doesn't mean you are still suffering from an acute case.  If your doctor discourages you from extended antibiotics or other treatments you request he may have good reason.  Those treatments can do harm themselves.

You sound paraniod to me.  Lyme and pinworms are very different.  I have had both.

I mean I can see how doctors look at you like you're crazy if you say stuff like this:

Quote:

I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.




You have to realize that their education is based on science and you are pulling shit out of your ass.  Are doctors perfect, surely not, but a step up from herbs.

I'm curious, what did your parasites look like?nvm you did...    Also do you take any stimulants or been diagnosed with anything that might cause delusions?

I really don't mean to offend, but I've seen this all before.  You very well could be right but I just want to give some other options as to whats happening here.




I believe 100 that you are likely right.

O.P, You may just have i.b,s or some abdominal issue. Have you had your gallbladder removed?

What are your symptoms again?




I understand where you come from going to 'mental issues' or ibs but I don't think it's that.

I don't think it's a coincidence that I tested positive for amoeba and protozoa on two seperate tests that I took - one a parasite lab and another with a blood test.  Co-infections are common with parasites - can Google it - parasite co infections.

Also right now some lyme doctors consider parasites to be one of the biggest co infections in lyme disease.  If you know about lyme you may know how much controversy there is around it.  It is a lot to go in to but can easily be searched online as well. 

There are a lot of websites that talk about how bad parasite testing is in the U.S. Also btw I'm working with a lyme doctor on trying some treatments that can cover a wide range of infections, but she even told me a while ago that testing is not easy for them.  Her husband had parasites and got a lot out with medicine - she said he met with parisitologists in Mexico (may have been a doctor or researcher)

Also Hulda Clark is the doctor who did research on the herbs that kill parasites -
Some of her work is out there but I think she is on point about parasites being an overlooked cause of health issues in U.S.

This is one of the best resources I have seen online that someone put together about testing for parasites  - http://patrickrambling-pb.blogspot.com/2012/12/lessons-from-parasites.html

Never had galbladder removed nor any family history relating to galbladder or liver issues.  Symptoms are fatigue, headaches that cover the right side of my head sometimes, itching in neck, scratches sometimes show up in my back and upper shoulders, stay about 140 lbs and 6 ft tall - some have commented that I look skinny - yet I eat plenty of calories but it doesn't add up, gastro issues always - don't digest properly.  I used to be able to eat hershey bars all day with no problem.

And again a post by someone who knows a lot on the subject about testing for them - http://curezone.info/forums/fm.asp?i=2179046

Also I realize this thread title might sound a little dramatic but I'm still hopeful and working to get better. :sun: :peace:


Edited by Anonymous (09/12/14 10:51 PM)


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Anonymous #4

Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20560281 - 09/12/14 11:00 PM (9 years, 4 months ago)

Can we uh...can we get close up shots of these black dots and strings? Just spoiler it so no ones subjected to something they dont wanna see.


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Anonymous #1

Re: Doctors here have failed me.... [Re: Anonymous #4]
    #20560358 - 09/12/14 11:21 PM (9 years, 4 months ago)

Black dots haven't shown up since I took those herbs a year ago but other stuff persists.  I can try to get a pic of bathroom stuff next time, it could be nasty but can show that it is not normal looking.


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Invisiblemoonrockmushy
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #20560797 - 09/13/14 02:32 AM (9 years, 4 months ago)

Yeah I'm not trying to give you a hard time, I do know a little about the theories of parasites and different strains of Lyme.  It just seems to be one of those diseases that people latch onto and run with.  When people start talking about things crawling out of their skin and anus I can't help but be reminded of stimulant psycosis.

I will say that when I had pinworms when I was a kid I could see the little worms wriggling in my poo, it freaked me the fuck out at the time.  I actually tested negative for parasites even when I gave a stool sample.  They treated me anyway because I had the symptoms and a cousin who had recently had pinworms.  The treatment worked, as it does in most cases.

The same thing with Lyme.  I tested negative but the tests are notoriously unreliable.  A/b treatment killed the major symptoms.  I have a bit of arthritis and also weird anxiety and appetite problems, but I'm not sure what to attribute that to.

The treatment for pinworms and Lyme are both known to be effective in most cases.  If you're extremely sick to the point where you need to get hospitalized you can get more intensive treatments like I/V antibiotics, but usually doctors won't provide prolonged a/b treatment just on the word of a patient.  They're not failing you they are looking out for your best interests because antibiotics and antiparasitic drugs can both have serious side effects.  The risk can outweigh the potential benefits.

Good luck figuring this all out, but at some point you've got to just stop worrying and enjoy life.

O and I am curios to see your fecal dwellers if you could come up with a clear picture somehow.  There are natural explanations for why certain herbal treatments could produce irregular stool.  Unless you see something wriggling around and can have a third party verify that I would be very careful about jumping to conclusions.


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Anonymous #1

Re: Doctors here have failed me.... [Re: moonrockmushy]
    #21051053 - 01/01/15 01:45 AM (9 years, 30 days ago)

The thing is I haven't  passed any obvious  parasites since two summers ago when I was taking the anti parasite  herbs. Now I rotate some meds but they don't seem to kill the stuff so much.

The messed up thing is I've  got tests that hint at them but the typical doctors are too ignorant  to help with themy. Thyroid  neck scan showshowed small nodules (where I have a lot of symptoms-tightness, tickling  sensations, rashes) and a liver CT scan showed a riedels lobe - coincidence what I passed looked lIke 'liver flukes' how absurd.

I'm  not the only one dealing with this either. The mainstream  in US for whatever reason knows little about this stuff. My Lyme doctor also thinks this is my biggest issue but she can't  do much more than me and others dealing with this can- try meds and protocols, etc.

If it didn't  physically effect me like it does I could care less. At this point if I have money for it sometime soon I'd consider going overseas where they know how to treat this stuff and try to get surgery or something.


Edited by Anonymous (01/01/15 01:45 AM)


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Offlinecharles manson
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #21051056 - 01/01/15 01:51 AM (9 years, 30 days ago)

What the heck??  You are liable to take a bunch of xanax, or tylenol???@op

I dont.get it.


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Anonymous #1

Re: Doctors here have failed me.... [Re: charles manson]
    #21051064 - 01/01/15 01:58 AM (9 years, 30 days ago)

Quote:

charles manson said:
What the heck??  You are liable to take a bunch of xanax, or tylenol???@op

I dont.get it.




Parasite meds to keep them down. I don't  take tylenol  or xanax.


Edited by Anonymous (01/01/15 02:09 AM)


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Invisiblemoonrockmushy
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Re: Doctors here have failed me.... [Re: Anonymous #1]
    #21052956 - 01/01/15 04:12 PM (9 years, 29 days ago)

Who told you that Reidel's Lobe is a sign of liver flukes or other illness?  From what I can find it seems to be a normal variant in human anatomy. 

Lots of people have thyroid problems, I have been diagnosed with that myself as well.  That doesn't necessarily indicate serious parasites, I think there are much more likely, such as stress from an anxiety disorder related to stimulant abuse.

I just want to make sure you are not fooling yourself and wasting your resources and potentially your well-being pursuing the wrong course of treatment.

I probably have said this already but except in cases with improper treatment or comprimised immune system Lyme is treatable.  That doesn't mean it won't cause auto-immune type disorders or long-term chronic problems, but there is good evidence that aggressively treating the perceived source of these issues (Lyme pathogens) based on the desire of a patient isn't going to be the right thing for a doctor to do in many cases.

Doctors cannot solve all of our issues, that is for sure.  Think of Andy Kaufman's story at the end of his life when he was convinced that western doctors had failed him in his cancer treatment, so he went to some foreign country to receive "traditional" medicine which turned out to be even more quackish.

Just remember not to be close-minded in either way.  If you refuse to even consider their advice and be realistic then the doctors are not failing you, you are failing yourself.

Be well friend!  :peace:


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Anonymous #1

Re: Doctors here have failed me.... [Re: moonrockmushy]
    #21053414 - 01/01/15 06:07 PM (9 years, 29 days ago)

Thanks moonrock. I will  say I explore both sides - alternative and regular medicine and will keep an open mind to both sides - whoever offers legit answers.

Regards :shineon:


Edited by Anonymous (01/02/15 02:51 AM)


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* depressed =( going to doctor tomorrow for help
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swiftrance 17,793 130 10/28/05 03:09 PM
by Deviate
* Pot Triggers Psychotic Symptoms Life_of_a_Cell 1,872 11 05/04/07 08:03 AM
by Liquid_Dimension
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Tasty_Smurf_House 5,819 26 10/09/08 04:38 PM
by MarkostheGnostic
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by NIDcommand
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by Catalysis
* Intestinal/bowel cleansing...
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PDU 4,947 34 03/19/08 05:04 PM
by PDU

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