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Anonymous #2
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19195119 - 11/27/13 05:13 AM (10 years, 2 months ago) |
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Quote:
Anonymous said:
It turns out in the US there are very few parasite specialist doctors and the ones that are sometimes charge hundreds of dollars to be seen and treatment, etc...
Peace
So check this out - go to a communicable disease specialist. They may not be parasitologists but they will do double time to find something because they love testing people. I had a communicable disease specialist for a PCP and he was always wanting to test me for stuff, just his speciality.
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Anonymous #2]
#19196834 - 11/27/13 02:41 PM (10 years, 2 months ago) |
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Quote:
Anonymous said: So check this out - go to a communicable disease specialist. They may not be parasitologists but they will do double time to find something because they love testing people. I had a communicable disease specialist for a PCP and he was always wanting to test me for stuff, just his speciality.
That sounds interesting. Didn't find anything local from that online though. Regardless I'm trying to get all serology blood tests possible for parasites here. I don't know how reliable they are considered but what the hell. At least insurance covers them, an id doctor mailed me a prescription for 4 tests but that isn't nearly enough lol and he didn't give me ones for flukes like I requested. I may bring a list to my neurologist appointment and see if we can get everyone possible that can be related to gastro and neuro issues.
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Anonymous #3
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19198869 - 11/28/13 12:03 AM (10 years, 2 months ago) |
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Edited by Anonymous (12/19/14 05:47 PM)
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Anonymous #3]
#19200970 - 11/28/13 01:57 PM (10 years, 2 months ago) |
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Quote:
Johnny Depp said: It's kind of difficult to weigh in with an opinion here. You never mentioned if you traveled anywhere before this started. That's crucial. Also, I have no clue how old you are.
Did you really have lyme disease? Because that can really mess you up for a long time. Including GI problems.
Just taking a wild stab at what type of parasite, maybe, Entamoeba histolytica. IDK. Sometimes certain types of parasites only show up in stools cyclically. So it is possible that some tests came back negative. The colonoscopy should have found something. Unless they aren't doing anything. Maybe they're just hanging out in there.
I would suggest getting another stool and urine test.
But the thing is, that one day treatment you got should have killed any parasites. It's basically a massive dose of a neurotoxin for parasites.
You did those herbal remedies.. damn.. hmm
Well, here's what I really think, and you're not going to want to read it: Sounds a bit like Somatoform disorder. Your tests are coming back negative. You are obsessing about it. paranoid, posting anonymously, getting a lot of BS info from online. I was actually hesitant to respond, as it's just feeding your problem.
Stop getting weird about doctors and labs man. Believe it or not, doctors actually want to believe their patient. If you are getting multiple MDs to second guess the reality of your illness, then you are probably giving off a bit of the old "crazy" vibe (like in your posts). Labs aren't a scam either, I mean, come on.
Just to give you the benefit of the doubt I would say get more labs run. Sort of like that "shady" doctor who probably only prescribed you that treatment to make you feel better.
My real advice: Chill out dude. Stop reading shit online. Stop obsessing about this. Obviously, you have had it for a long time now and it hasn't killed you yet. So it looks like it's not going to kill you anytime soon. Try not worrying about it for a while. Like I said, lyme disease can seriously mess you up for a while, and give you lingering symptoms like this. Write it off as that.
Go and see a psychiatrist if you still can't take you mind off it
Ok I am 25 and I haven't traveled much, I was in Israel a couple of years back but not much else than that. Honestly I don't think you have to travel to catch parasites - I know that is the mantra of a lot of people in the US, but I don't buy that at all. My neurologist told me about a Jewish family that caught tapeworm because their cleaning lady didn't wash her hands and eggs was spread on their food - tapeworm is usually caught from pork and this family didn't even eat that.
Also yes I did have lyme disease, blood tests showed it and still do in fact but my lyme specialist who I saw recently agreed my issues now are likely more parasites than lyme disease. Back when my lyme was heavy I had a lot of strange headaches and neurological issues but I haven't had those kind of lyme headaches since I took antibiotics for a couple of months.
A little after starting lyme treatment the parasite symptoms/issues such as black dots showing up in stool back then started to unfold. It makes me think that maybe I have had these things for a long time and it was just dormant in my body. Maybe when the immune system is strong some parasites can simply be in ones body without symptoms. I can say that I used to bite my nails for years- my lyme doctor actually said she thinks I could have parasites from biting my nails- she noticed that they looked chewed on. I did stop that habit a couple years ago though.
EH certainly sounds like a possibility. A protozoa would make sense since they can be microsopic and I imagine harder to find than some other parasites. The only thing is the doctor I saw in the city is notorious for finding EH but he didn't claim that with me so I don't know. That doesn't prove anything though- I find the doctor pretty shady honestly.
http://www.vitals.com/doctors/Dr_Kevin_Cahill/reviews
I do have to say though a few things - I am not obsessed - I simply want to finish treating it so I don't have to think about it anymore. The online forums have honestly saved my life - I have incorporated many things into my diet like pineapple that I think help with whatever I have.
If I had originally listened to my regular doctor who kept telling me I was ok even though I had to go to the ER multiple times from symptoms I would likely be much worse off now and who knows what else. It was my persistence that helped me get a lyme diagnosis thankfully and treat it up to a certain point. I think once the parasites are dealt with I can take anti lyme herbs and finish with what is left of that. Many in lyme forums have said treating it gets a lot easier when parasites are dealt with - luckily my lyme symptoms aren't that much now.
Also I can't actually prove it to you but without even looking it up myself I bet if you search online for - testing for parasites I bet you can find countless people saying that the insurance labs like Quest and Labcorp don't find shit with parasites. I'm not joking. People have literally sent samples with worms in them and the lab would say they found nothing.
Think about how insurance companies make money, I wouldn't find it hard to believe that the people looking at stool samples in these labs aren't that scientifically advanced. There are labs that have very good reputations for being able to diagnose stool.
Again this can simply be googled to see what people from all over say about them- labs like Matametrix are know to be some of the best at lab testing for parasites. Again, I'm not obsessed though and maybe there is some solace that my blood results don't look abnormal now but this is still something I am working on to continue fixing.
Edited by Anonymous (11/28/13 02:11 PM)
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Anonymous #3
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19204990 - 11/29/13 01:58 PM (10 years, 2 months ago) |
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Edited by Anonymous (12/19/14 05:48 PM)
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Anonymous #3]
#19206546 - 11/29/13 09:26 PM (10 years, 2 months ago) |
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Quote:
Johnny Depp said: World travel you say? Of course you can catch parasites in the US. It's just that the more you travel the more likely you are to pick up new parasites. A lot of other countries have parasite issues too. Like untreated people who have nasties and spreading them around via contaminated food and water etc. It's just a really important factor to know when getting a history on a patient complaining of possible parasite infection.
It could be that you've had it for a while. Actually, every single person has millions of parasites living in their body. Bacteria, protozoans, viruses. Just hope you don't get HIV because usually none of the parasites take hold and cause health issues. So yes, you are right about a strong immune system keeping you from getting sick from parasites.
I'm still thinking this could all be a part of your lyme disease/treatment. Maybe even the antibiotics killed off some good bacteria allowing some other parasite to take hold. Or just threw off your previous GI floura/fauna balance.
Your gastroscope would have found crohn's disease and other stuff like ulcerative colitis if that was the issue. Have you thought about celiec's disease? Have you tried cutting out gluten? a gastroscope would not find celiac. Or also, Whipple's disease?
Or another allergy. The itching and rashes are clues of maybe histamine if your liver is fine. Have you had your liver tested? Have you ever been jaundiced? It could be some type of food allergy.
Another theory: The black dots and rubbery things could just be undigested material, fiber. If you body is having a hard time digesting food then that would also explain all the symptoms you are having. There could be a lot of different things causing that too.
I am just saying, I wouldn't be so adamant that it has to be some parasite if tests keep coming back that it's not that. I believe you are having a problem. I also believe you are worrying about it too much. You may need some anti-anxiety medication hahaha. Seriously, the mind is a powerful thing. If you stop worrying about it so much you'll probably start feeling better. But I understand your desire to get to the bottom of it. It's just that you may never figure it out. Just try to be more relaxed about it. Try some things systematically. just make a doctor's appointment to get another stole/urine sample. Stop buying into the lab conspiracy theory. It's not that I don't believe you. It's just one step over the crazy line. The meter is reading higher every time you bring it up, hahah. Maybe labs do shoddy work sometimes. Just get another lab. What are the odds they screwed it up twice? See what I'm saying? At some point you have to admit you're getting a little weird about it. I mean, why don't you build your own lab and do it yourself fer chisakes!? Get you liver numbers done if you haven't already. And start fooling around with stopping eating certain foods. Celiac and other allergies can develop at any age. Maybe you are allergic to a food now. Just systematically start cutting out foods you normally eat, and see if you feel much better suddenly. And most of all, stop worrying so much! When you go to the doctor get some anti-anxiety med or something hahaha. Honestly, the Dr can both believe you have a problem and also believe you need anti-anxiety medication. They are not mutually exclusive.
Hi. I guess the title of this topic might sound dramatic so I could see how it comes off as worrying lol. Honestly there are times where I feel fine so like I said before it's about getting to the bottom of it I guess.
Anyway if I test with any more labs it will be ones that specify in parasite testing, that way the odds are much better that if something is there they could hopefully find it. I actually heard of one called Parawellness that is supposed to be very good. Their specialty is parasites so it seems like if something from parasites is showing up in stool they may find it. Also ya by shoddy lab work I mean labs like Quest Diagnostics lol.
About liver enzymes - they do fluctuate from time to time but a doctor said my most recent test it came back normal. I have had yellow appear on my hand from time to time mostly when I was taking meds for parasites though. I'm pretty sure I may have liver flukes which tend to blend in with the immune system from what I have read and I think they can lay dormant until provoked pretty much. I saw a few of them back when I took the herbs - creepy orange globs - some with black string like tenticles on them. If you google rolled up tomato skins that's what it was- and fluke pictures will probably come up - I don't eat tomatoes either lol.
I have tried all kinds of diets and that wasn't the answer in the long run although definetely - when I'm careful about diet it does help but it isn't the answer. I actually thought a while back maybe my problems where candida so I tried cutting out sugar and gluten for weeks and the issues still remained.
I got a celiacs blood test from the gastro doctor as well and nothing came from that. Also interestingly enough - the labs I have tested with that check for yeast and other issues said that my flora was good so I don't think that is a issue too. I take tons of probiotics as well.
I haven't heard of whipple's disease but it looks like from googling it an endoscopy is a way it can be diagnosed and I think I may have actually gotten an endoscopy a while ago before my colonscopy and that is besides that I saw parasite stuff back when I took the anti parasite herbs. ;]
Also it is funny you say build your own lab because that is kind of the situation with this stuff for alot of people apparently. Someone actually told me something like that recently, people are basically going need to learn to id the parasites themselves.
The thing about that too is I almost feel like I could become a parasitologist from all the information about infections and even medications for them I have learned. There are apparently very few of them around here that are doctors but I don't want to go to medical school so I don't know lol, but that would be quite the profession. Anyway going forward I hope to try a parasite lab sometime soon and see what happens, as well as broad spectrum treatment and go through with it. I do have half a bottle of albendazole left and a doctor from vietnam is sending me meds that target tapeworm and flukes so right there covers a bit. May see what the neurologist says about that too, he was one doctor here that was in agreement with me that you can get parasites even in the U.S.
Again I guess this whole thing is a bit of an experience but I'm not really worrying about it so much just to reiterate. I'm doing plenty of other stuff stuff too. Honestly the topic is even a little interesting to me since learning about this stuff too even from an outside perspective.
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moonrockmushy
High on Spite



Registered: 07/01/05
Posts: 19,067
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19209692 - 11/30/13 06:46 PM (10 years, 1 month ago) |
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I just wanted to say that there is a definite lack of credible data and a ton of misinformation out there on lyme disease.
I was diagnosed limey two seperate times. Not sure if it was a reinfection or a recurrence of the same strain. In my search for information I have encountered websites that claim to be medical experts who say that everyone who complains about chronic lyme symptoms is a hypochondriac or liar. I have also encountered even more sites that are authored by self-diagnosed chronic lyme sufferers who swear up and down that there are little lyme bugs and worms peeking out of their skin at them. They believe there is a massive coverup or negligence by the government and medical community.
Both sides are ridiculous. Just be careful not to believe everything you read. We can easily diagnose ourselves terminally ill if we put in the right symptomson google, 99.99% of the time we're wrong.
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DirtyTomFlint
( ಥـْـِـِـِـْಥ)




Registered: 11/26/13
Posts: 1,879
Loc: United Kingdom
Last seen: 1 year, 1 month
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All I'm going to say is that everyone I know who has wiki'd up their symptoms and diagnosed themselves have been wrong.
I sincerely hope you find an end to your problems.
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   Know Your Body, Know Your Mind, Know Your Substance, Know Your Source
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Anonymous #1
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Thanks. I also definitely agree about looking up symptoms. Its easy to think you have all kinds of diseases by looking up symptoms online but my symptoms are very parisitic tho it isn't so much a question at this point but I do have medicinal options thanks to the help of people online that are experienced in parisitology.
I may try testing with one more lab tho called parawellness which I have heard good things about.
Maybe one day I'll write a book about all of this. If I ever do I'll try to let you all know. ¥
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#20541288 - 09/09/14 12:53 AM (9 years, 4 months ago) |
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Throwing an update out there - but still working on trying to figure this out.
It is unbelievable how there is no parasite test that can find everything and some doctors think you have mental issues if you say the word parasite. Some of them do recognize the problem but admit/say that testing can be tricky.
Also if you get something that isn't commonly seen in the U.S. blood test may not even be available for it here and then there is even off the book type stuff such as different types of species that may not have a clear test for. I got a filariasis blood test tho after seeing a tropical doctor and pushing him for it. Some say ticks can carry these and it seems treating lyme again may be a next step soon.
Ct scan of chest also revealed small thyroid nodule apparently and now waiting on thyroid ultrasound to see what they say about that.
Anyway thought I'd vent for a second and maybe others have similar issues too.
Peace
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koods
Ribbit



Registered: 05/26/11
Posts: 106,053
Loc: Maryland/DC Burbs
Last seen: 7 minutes, 59 seconds
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#20541334 - 09/09/14 01:14 AM (9 years, 4 months ago) |
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Why do you think you have parasites? I don't understand. You seem to be convinced of this based on nothing and refuse to accept that nobody can find evidence of them.
Honestly, you could probably benefit from a psychiatrist more than anything.
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NotSheekle said “if I believed she was 16 I would become unattracted to her”
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Couperj



Registered: 06/05/11
Posts: 611
Loc: Umerika
Last seen: 3 years, 4 months
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Re: Doctors here have failed me.... [Re: koods]
#20541346 - 09/09/14 01:21 AM (9 years, 4 months ago) |
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What's your diet look like? Your stool sounds more like poor diet than parasites. Have you tried Syrian Rue or Mimosa bark?
-------------------- (¯`'·.¸(♥)¸.·'´¯) But suddenly you're ripped into being alive. And life is pain, and life is suffering, and life is horror, but my god you are alive and it is spectacular!
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Couperj



Registered: 06/05/11
Posts: 611
Loc: Umerika
Last seen: 3 years, 4 months
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Re: Doctors here have failed me.... [Re: Couperj]
#20541351 - 09/09/14 01:25 AM (9 years, 4 months ago) |
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P.S. Diet is incredibly important!!!
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Couperj]
#20541365 - 09/09/14 01:42 AM (9 years, 4 months ago) |
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Agreed on diet but I do eat pretty healthy. I don't eat junk food. I've tried no gluten diets, eat minimal dairy and have had a food allergy test too. Some doctors I see like a lyme doctor here thinks I have parasites but they are not easy to treat. Some people can take a long time to treat.
Honestly how I know I have them is cause I did a herbal parasite cleanse and passed some very weird stuff that smelled awful and nothing I could have possibly eaten.
One was a huge black thing. At the time I was disgusted and just flushed it. Can google 'ropeworm' for what it looked like. People aren't sure if it's an actual parasite or something made in the body - not actually alive, etc. There was at least one scholarly paper on it.
Another reason is I passed what looked exactly like a fluke parasite if you google it. But this was only on the parasite cleanse herbs and I learned these herbs can make them scatter in the body so I prefer meds now. Also if I never passed this I probably would have never learned so much about it.
And for medical proof I had a stool test done by a private lab that showed protozoa - microscopic parasites and a blood test by a doctor that also showed positive for amoeba - which could be what the other test showed too.
Also diet wise I feel best eating minimal fat and vegetables but energy is imporant of course from food but it pretty much comes out as gobbled up stuff later on and feels like it backs up around my upper body which is weird.
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Anonymous #3
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#20541567 - 09/09/14 04:35 AM (9 years, 4 months ago) |
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Edited by Anonymous (12/20/14 02:46 AM)
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Anonymous #3]
#20542781 - 09/09/14 11:35 AM (9 years, 4 months ago) |
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That's why I'm getting a filarial test - it seems to be one associated with lyme. People on lyme/health forums report passing all kinds of parasites though. I realize it sounds crazy and also when I'm doing other stuff I don't always think about this - but I guess ultimately getting healthy is a goal of mine if it is possible. 
Someone on a health forum that I visit said something like this but this stuff is kind of like the Twilight Zone of medicine.
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koods
Ribbit



Registered: 05/26/11
Posts: 106,053
Loc: Maryland/DC Burbs
Last seen: 7 minutes, 59 seconds
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#20542797 - 09/09/14 11:39 AM (9 years, 4 months ago) |
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You aren't going to see most parasites most in your crap.
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NotSheekle said “if I believed she was 16 I would become unattracted to her”
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Anonymous #1
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Re: Doctors here have failed me.... [Re: koods]
#20542896 - 09/09/14 12:06 PM (9 years, 4 months ago) |
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I know, that is also why stool tests can be a joke sometimes. The microscopic stuff unless examined carefully by someone with a microscope wont find anything.
http://curezone.com/forums/fm.asp?i=2167282
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moonrockmushy
High on Spite



Registered: 07/01/05
Posts: 19,067
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#20555869 - 09/12/14 12:31 AM (9 years, 4 months ago) |
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I was going to give you some advice about lyme disease and similar illnesses but I'll sum it down to this: Lyme can cause damage to several parts of your body including brain and other organs which can have long term effects. That doesn't mean your body didn't develop antibodies to Lyme. That doesn't mean you are still suffering from an acute case. If your doctor discourages you from extended antibiotics or other treatments you request he may have good reason. Those treatments can do harm themselves.
You sound paraniod to me. Lyme and pinworms are very different. I have had both.
I mean I can see how doctors look at you like you're crazy if you say stuff like this:
Quote:
I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.
You have to realize that their education is based on science and you are pulling shit out of your ass. Are doctors perfect, surely not, but a step up from herbs.
I'm curious, what did your parasites look like?nvm you did... Also do you take any stimulants or been diagnosed with anything that might cause delusions?
I really don't mean to offend, but I've seen this all before. You very well could be right but I just want to give some other options as to whats happening here.
Edited by moonrockmushy (09/12/14 12:39 AM)
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Dr.Dankhead
Uhh...doctor gonzo?



Registered: 03/29/13
Posts: 5,187
Loc: Breathing down your neck
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Quote:
moonrockmushy said: I was going to give you some advice about lyme disease and similar illnesses but I'll sum it down to this: Lyme can cause damage to several parts of your body including brain and other organs which can have long term effects. That doesn't mean your body didn't develop antibodies to Lyme. That doesn't mean you are still suffering from an acute case. If your doctor discourages you from extended antibiotics or other treatments you request he may have good reason. Those treatments can do harm themselves.
You sound paraniod to me. Lyme and pinworms are very different. I have had both.
I mean I can see how doctors look at you like you're crazy if you say stuff like this:
Quote:
I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.
You have to realize that their education is based on science and you are pulling shit out of your ass. Are doctors perfect, surely not, but a step up from herbs.
I'm curious, what did your parasites look like?nvm you did... Also do you take any stimulants or been diagnosed with anything that might cause delusions?
I really don't mean to offend, but I've seen this all before. You very well could be right but I just want to give some other options as to whats happening here.
I believe 100 that you are likely right.
O.P, You may just have i.b,s or some abdominal issue. Have you had your gallbladder removed?
What are your symptoms again?
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**need a check up?** **im a Doctor**
         i sometimes wish I was a wormy, wiggling all in the cold dirt...tickle tackle pickle dickle think a mackshift thought of broken words broken gears and words of conundrums..I'm not a weiner doctor so take that shit to dr. Gonz free boob inplant consultations.. Photo required
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