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Anonymous #1
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Doctors here have failed me....
#19192742 - 11/26/13 03:54 PM (10 years, 2 months ago) |
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There isn't so much point of posting this here more than to vent. I also imagine some people here will think I'm crazy or full of shit but that's ok I don't need to prove my illness to anyone.
Basically my problems started around a year to two years ago after I started treating lyme disease, I started getting tons of black dots in my stool. The standard doctor answer here is to check for blood, lo and behold no blood! What else causes black dots, I learnt fromg going on forums for lyme disease and from searching online that parasites can do that. Logically a lot of dots seem like eggs.
Fast forward a few weeks/months I get a colonscopy from a gasterentologist, they find nothing. Fast forward to now after a year since then I have been to tons of doctors - both the lyme and neurologist doctor seem to believe me cause of my clinical symptoms but they are not parasite experts.
It turns out in the US there are very few parasite specialist doctors and the ones that are sometimes charge hundreds of dollars to be seen and treatment, etc...
I saw one parasite specialist in the city that diagnosed me hookworm and gave me a one day medication which in the long run didn't do shit, and the next time I saw him he said he found nothing even though my problems persist. He is a very shady person also I should add, he barely speaks more than a few sentences when he sees you. His procedure is interesting though, he does a sigmoidoscopy to get a fresh stool sample which most doctors do not do but besides for that he is pretty shady and even his office seems pretty unsanitary, which is ironic considering he is a parasite doctor - I saw someone else say in another forum if you see him you are likely to leave with more parasites lol !!
I know I have parasites though because I've seen fluke parasites come out in the toilet when I took anti parasite herbs but after a while the herbs just seemed to irritate them and it gave me feelings of biting in my liver and galbladder.
Other symptoms i have gotten are - random scratches on occasion such as in my upper arm or by liver area, biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!! Fatigue, bad headaches more so when there's a full moon out, itchy feelings throughout the body, random rashes and the list can go on really. Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.
The sad thing is that most doctors will think I'm crazy and likely advise to take a xanax or tyleol but that doesn't cure an ongoing problem like this. The one good thing is I talk to tons of people online and have access to parasite forums where people have gone through this or are going through it so there are still a few advanaced labs I can try testing with as well a drug protocols to try to cure this. It is bothersome though that I can't be treated by a doctor here so far and they'd rather deal with simple issues than something advanced like this. That said I have a neurologist I may go back to soon that worked with me last time and see if we can get all the cdc lab tests and anything that might help give more specific diagnosis.
Also I realise some parasites might be easy to diagnose like a new case of pinworms might not be a big deal but some parasites can live in the tissue and be hard to diagnose especially when they are in your body for so long - some of them have also basically evolved to invade the immune system so that's what makes them tricky but with a proper diagnosis they can be targeted easier with a drug protocol that goes after them. There are still protocols to try as well even if not 100% sure which types they are. If you think this story is made up that is your right to think so..... but it's not. I don't crave attention from this story or anything but simply hope to be cured from it sooner rather than later. A funny thing too is that I almost feel like coming a parisitologist after all this and in a way have become my own researcher since that is the best option available really. Maybe some others here have heard similar stories too or something.
Peace
Edited by Anonymous (11/26/13 04:02 PM)
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TheFakeSunRa
Bitch Splitter



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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19192772 - 11/26/13 04:02 PM (10 years, 2 months ago) |
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Have you ever just brought in your own stool sample and said what the fuck are these dots?
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19192795 - 11/26/13 04:08 PM (10 years, 2 months ago) |
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I didn't actually bring it in but told the gastro doctors and my regular doctors and the regular doctor said to go to the gastro doctor and the gastro doctor's answer was that a colonscopy is how he can diagnose it. He didn't find anything though. He did send a sample to check for parasites but what I have found it is that most insurance covered labs don't find parasites at all when they check. People have sent them samples with a worm put in the sample cups and have come back negative for parasites. It's a scam really.
I did go back to the doctor a few months ago and told him my whole predicament and how I've seen flukes and still have gastro problems over a year after his colonscopy and he basically ended up saying to go to a parasite lab that is in the city - but this lab actually has really bad reviews and they over charge like crazy so I wouldn't even bother going there. I am saving up for a lab test from metametrix labs though as they are considered one of the best. Instead of just eggs they also check for parasite material in the test.
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jack_straw2208
Doctor



Registered: 02/12/07
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19192893 - 11/26/13 04:27 PM (10 years, 2 months ago) |
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eat raw garlic
-------------------- If you can’t tell what you desperately need, it’s probably sleep.
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Anonymous #1
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I have and it helps but at this point it could make things worse. I'm pretty much looking to do meds now that will kill them directly. The problem with garlic and herbs - natural remedies, etc. is if its not strong enough it can cause parasites to scatter so im kind avoiding that route now.
Edited by Anonymous (11/26/13 04:47 PM)
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TheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19193449 - 11/26/13 06:22 PM (10 years, 2 months ago) |
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I'm not saying you're right or wrong about the parasites but I will say I think you're on thin ice reading on forums and kind of coming up with a self-diagnosis and then spending a lot of money trying to get your own diagnosis verified instead of just being happy when they tell you they've ruled it out. I mean, if you pay enough somebody will tell you what you want/expect to hear but that doesn't make it true either. I also wouldn't put too much stock in online reviews and all that. Anyway, good luck.
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19193718 - 11/26/13 07:16 PM (10 years, 2 months ago) |
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Quote:
TheFakeSunRa said: I'm not saying you're right or wrong about the parasites but I will say I think you're on thin ice reading on forums and kind of coming up with a self-diagnosis and then spending a lot of money trying to get your own diagnosis verified instead of just being happy when they tell you they've ruled it out. I mean, if you pay enough somebody will tell you what you want/expect to hear but that doesn't make it true either. I also wouldn't put too much stock in online reviews and all that. Anyway, good luck.
Well, to add that I agree, what people say online could be sketchy at times but I've done a lot of research and simply put I have all these symptoms daily and the clincher being what I see in the bathroom and half the doctors simply writing it off.
Before I got diagnosed with lyme disease 2-3 years ago my regular doctor kept telling me I'm perfectly fine until finally another type of doctor recommended a lyme disease blood test and bam she was on the money with her suggestion.
So I agree but I'm not gonna let doctors ruin my life either. Also I have seen some sketchy doctors that I've ruled out like one that did muscle testing and gave me a diagnosis without any blood tests. The CDC's own website says diagnosing parasites can take multitudes of tests and even different labs sometimes.
The labs will say they find nothing if they don't find anything - basically the specialty ones (with reputations at least) check for multitudes of types of parasites and whatever the test is looking for and report their findings. I've tried some that came back with nothing too.
Thanks.
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TheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19193831 - 11/26/13 07:45 PM (10 years, 2 months ago) |
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When you wipe your ass can you look at it and see a parasite or eggs?
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19193991 - 11/26/13 08:18 PM (10 years, 2 months ago) |
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Not really. There also aren't eggs like there used to be but the stool itself is not formed normal and can be different than normal colors. Sometimes orange stuff comes out with. There also stringy stuff in it lately which can be possibly intestinal lining or something related to it. On occasion fluke like material comes out too - rubbery orange things.
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TheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19194048 - 11/26/13 08:28 PM (10 years, 2 months ago) |
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Are lethargic or nauseous or anything else? I remember you mentioned weight loss.
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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TheFakeSunRa
Bitch Splitter



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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19194057 - 11/26/13 08:30 PM (10 years, 2 months ago) |
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Oh sorry. I see fatigue mentioned above and all your symptoms.
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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TheFakeSunRa
Bitch Splitter



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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19194093 - 11/26/13 08:37 PM (10 years, 2 months ago) |
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Quote:
Other symptoms i have gotten are - random scratches on occasion such as in my upper arm or by liver area, biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!! Fatigue, bad headaches more so when there's a full moon out, itchy feelings throughout the body, random rashes and the list can go on really. Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.
The body is weird and malfunctions. I've had all sorts of physical manifestations of depression and anxiety. Health care sucks so bad in America. Maybe the Lyme Disease has got you worked up and you know maybe you're kind of freaking yourself out.
Definitely NOT trying to dis you.
Good luck again.
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19194096 - 11/26/13 08:37 PM (10 years, 2 months ago) |
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Yes. Fatigue is part of it. Also cause it's hard to sleep at night sometimes so I end up falling asleep later in the am hours. Not neasua but headaches sometimes too. Netflix helps for those times of taking a long time to get to sleep tho.
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TheFakeSunRa
Bitch Splitter



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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19194104 - 11/26/13 08:38 PM (10 years, 2 months ago) |
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Ambien has been a Godsend for me.
-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19194115 - 11/26/13 08:41 PM (10 years, 2 months ago) |
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Quote:
TheFakeSunRa said:
Quote:
Other symptoms i have gotten are - random scratches on occasion such as in my upper arm or by liver area, biting in my liver area at night (they say flukes reside in liver and bile ducts), weight loss - which is noticeable to everyone - yet I wont bother trying to explain thwt I eat tons of food but my body doesn't absorb anything so I look malnourished!! Fatigue, bad headaches more so when there's a full moon out, itchy feelings throughout the body, random rashes and the list can go on really. Also messed up stools all the time - and lately strings in stool - they don't move so I don't think they're worms but it's possible they can be related to intestinal strings.
The body is weird and malfunctions. I've had all sorts of physical manifestations of depression and anxiety. Health care sucks so bad in America. Maybe the Lyme Disease has got you worked up and you know maybe you're kind of freaking yourself out.
Definitely NOT trying to dis you.
Good luck again.
I hear that. I'm not depressed tho. I have stuff I enjoy doing. I'd like to be healthy and just go around playing music, and working on stuff which I'm doing but it cost a lot of money and time trying to figure things like this. It isn't mental though. That's why I said earlier taking a xanax wont magically make the thing go away. Also I have seen at times when I got a parasite load out my body felt healthier but it is on and off with this so that's why I'm still trying out different tests. In the meantime tho there are still treatment options to try tho. Will see what happens tho.
Thanks
Edited by Anonymous (11/26/13 08:42 PM)
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Dr.Dankhead
Uhh...doctor gonzo?



Registered: 03/29/13
Posts: 5,187
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19194136 - 11/26/13 08:45 PM (10 years, 2 months ago) |
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I would suggest getting the highest proof alcohol, and drink yourself completely stupid, not lethal stupid, just healthy stupid..
Kill everything in ya, you'll be shittin fire
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**need a check up?** **im a Doctor**
         i sometimes wish I was a wormy, wiggling all in the cold dirt...tickle tackle pickle dickle think a mackshift thought of broken words broken gears and words of conundrums..I'm not a weiner doctor so take that shit to dr. Gonz free boob inplant consultations.. Photo required
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Dr.Dankhead
Uhh...doctor gonzo?



Registered: 03/29/13
Posts: 5,187
Loc: Breathing down your neck
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Re: Doctors here have failed me.... [Re: Dr.Dankhead]
#19194162 - 11/26/13 08:49 PM (10 years, 2 months ago) |
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And i eat LOTs of food, i have an eating schedule to keep from getting too skinny because my metabolism is so high, my body digests food and the nutrients pass right through me..
Leading to my pale, skinny, vampire like vibe.. This could be the same for you, who knows..
But the shit thing is weird.. Get out of your city and get to some good doctors.
--------------------
**need a check up?** **im a Doctor**
         i sometimes wish I was a wormy, wiggling all in the cold dirt...tickle tackle pickle dickle think a mackshift thought of broken words broken gears and words of conundrums..I'm not a weiner doctor so take that shit to dr. Gonz free boob inplant consultations.. Photo required
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Anonymous #1
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Re: Doctors here have failed me.... [Re: Dr.Dankhead]
#19194307 - 11/26/13 09:21 PM (10 years, 2 months ago) |
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Quote:
Dr.Dankhead said: And i eat LOTs of food, i have an eating schedule to keep from getting too skinny because my metabolism is so high, my body digests food and the nutrients pass right through me..
Leading to my pale, skinny, vampire like vibe.. This could be the same for you, who knows..
But the shit thing is weird.. Get out of your city and get to some good doctors.
Yeah I don't have money to go looking for doctors altho honestly if I did I might even go somewhere like Brazil or London, I've heard they actually have parisitology clinics there. Unlike US, that is weird though - it makes no sense there are so few parasite clinics in US. Regardless a doctor from vietnam is sending me a drug that is supposed to kill off the hardest to get rid of fluke parasites, then I have more treatments to do. On the forum I visit it seems a common thing is that a small amount of doctors in US have extensive knowledge on parasites and dealing with them, etc.
I'm looking to order a test soon from a reputable lab and see if it comes up with anything. There's someone that wrote out very detailed parasite protocols online that could help too (I think she is a doctor and makes jokes how doctors here thing people claiming to have parasites are crazy). I realize how out there this all sounds but it is how it is. If you do searching into it online there are tons of similar stories.
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TheFakeSunRa
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Re: Doctors here have failed me.... [Re: Anonymous #1]
#19194486 - 11/26/13 10:21 PM (10 years, 2 months ago) |
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-------------------- [quote]Asante said: You constantly make posts thatr fling middle school insults at people you don't like mixed in with maladjusted psychopathic comments about wanting to beat up the other poster with a crowbar. You know how shit you are, you just don't give a fuck for precisely that reason. I disendorse you.[/quote]
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Anonymous #1
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Re: Doctors here have failed me.... [Re: TheFakeSunRa]
#19194611 - 11/26/13 11:03 PM (10 years, 2 months ago) |
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It's easy to see how there are so many species. I made an appointment with the neurologist that worked with me last time and might try to see if we can somehow get all the cdc tests since diagnosing has been hard so far.
This is the person that has posts on parasite drug protocols online and some funny ones about US doctors and parasites -
http://curezone.com/forums/fm.asp?i=1592951
http://curezone.com/forums/fm.asp?i=1625158
Edited by Anonymous (11/26/13 11:05 PM)
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