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Sheekle
FREE BURKE



Registered: 01/11/10
Posts: 53,153
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mom got diagnosed with lupis
#18748988 - 08/23/13 08:55 PM (10 years, 5 months ago) |
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First she got rhumitoid arthritis and now lupis too
So the RA will eat her bones as the lupis eats her organs
Shes 50-55 years old about
First we thought the stuff on her skin that was popping up was ringworm but nope, incurable degenerative disease
She seems to be semi in denial about how much it's effected her. She says she doesn't care and she's glad it wasnt ringworm so other people didnt get effected too, i guess it takes some time for her to fully absorb it. Its made me kinda sad knowing about it
I can hope she doesnt feel too crappy i guess
Send some good vibes or talk about lupis or do whatever
-------------------- "Ur cat died because he hated u" - Koods "I hope JSB kicks your ass one day." - Vandago "you are the biggest 'internet guy' I have ever come across"- Jokeshopbeard "The more I see you post the more I realize you're just this fuckin tie dye loser who trolls the Shroomery 24/7." - Herbologist "Sheekle you cannot vile the dice of bullshit you have posted on this forum over the years, I like databases" - thelastoneleft "or maybe i just come from a blood line of superior intelligence" - trees R.I.P Kelsy, ?/?/?? - 6/11/16
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Dark_Star
train driver pervading a desktop


Registered: 08/20/04
Posts: 31,859
Loc: Uranus
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749002 - 08/23/13 08:58 PM (10 years, 5 months ago) |
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That's rough man. My mom was diagnosed with it probably 25 years ago. It's a terrible disease. She still gets a lot of joy out of life though. Her attitude about things rocks. So keep your head up man, and be there for her. She can get through this.
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Malcolm_Xtasy
Oh baby what Is you doin??



Registered: 04/04/12
Posts: 13,851
Loc:
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749005 - 08/23/13 08:59 PM (10 years, 5 months ago) |
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Sorry to hear that Sheek. I wish the best for you and your mom!
-------------------- I'm stupid, Enlil is smart. I'm ugly, Enlil is beautiful. I'm a loser, Enlil is a winner. Someday, I hope to be like Enlil but secretly know I never will.
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Dawks
Jolly African Potato


Registered: 06/09/10
Posts: 4,935
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749009 - 08/23/13 09:00 PM (10 years, 5 months ago) |
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That's too bad man. Good vibes incoming.
On the bright side she has a good excuse to be high on opiates for the rest of her life. Hard to feel sad when you've got fentanyl patch on each arm while smoke a nice, fat, medicinal joint.
--------------------
date ; unzip ; strip ; touch ; grep ; finger ; mount ; fsck ; more ; yes ; umount ; sleep
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Ballerium
Little Black Spot on the Sun



Registered: 10/03/10
Posts: 11,025
Loc: GA
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Re: mom got diagnosed with lupis [Re: Dark_Star]
#18749010 - 08/23/13 09:01 PM (10 years, 5 months ago) |
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Damn that's got to be a hard thing to go through. Definitely try to be there for her and make the most of the time that you have with her right now.
-------------------- Beats and waves will take me to my grave and when I go there I know that I won't be alone 'cause I've been spotted, blotted, many many times before.
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nicechrisman
Interdimensional space wizard



Registered: 11/07/03
Posts: 33,241
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749011 - 08/23/13 09:01 PM (10 years, 5 months ago) |
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Sorry to hear that brother 
Enjoy your times together
-------------------- "Cosmic Love is absolutelely ruthless and highly indifferent: it teaches its lessons whether you like/dislike them or not." John C. Lily
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pcplease
Salame

Registered: 09/02/11
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Re: mom got diagnosed with lupis [Re: Dawks]
#18749059 - 08/23/13 09:10 PM (10 years, 5 months ago) |
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My cousin was diagnosed at 13-14?? and she was not expected to finish high school. Shes now almost thirty and looks great, works a regular job (and a tattoo artist at that) and lives a "regular" life (though I know she has bad days).
I guess my point in mentioning that is that theres no way of knowing what life will be like (and I'm sure staying positive helps a ton) a few years from now, But you CAN do everything possible to be the best kid a parent could ever dream of having.

p.s. I'm sure a late Mother's Day gift couldn't hurt either
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Sheekle
FREE BURKE



Registered: 01/11/10
Posts: 53,153
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Re: mom got diagnosed with lupis [Re: Dark_Star] 2
#18749143 - 08/23/13 09:30 PM (10 years, 5 months ago) |
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Quote:
pcplease said: My cousin was diagnosed at 13-14?? and she was not expected to finish high school. Shes now almost thirty and looks great
Quote:
Dark_Star said: My mom was diagnosed with it probably 25 years ago. She still gets a lot of joy out of life though. Her attitude about things rocks
Well hey I guess these add some good vibes to the situation. I don't really know much about lupis, I'll have to do some research. All I know is she told me it eats away at ur organs.
We shared a big hug after she vented to me for a little. She was ranting about her half-denial about not caring about the lupis among other things.
This was kind of a wake up call to appreciate what I have with her.
No matter what happens in life everything is always going to be okay in the end
Thanks for the good wishes guys, you're all great
-------------------- "Ur cat died because he hated u" - Koods "I hope JSB kicks your ass one day." - Vandago "you are the biggest 'internet guy' I have ever come across"- Jokeshopbeard "The more I see you post the more I realize you're just this fuckin tie dye loser who trolls the Shroomery 24/7." - Herbologist "Sheekle you cannot vile the dice of bullshit you have posted on this forum over the years, I like databases" - thelastoneleft "or maybe i just come from a blood line of superior intelligence" - trees R.I.P Kelsy, ?/?/?? - 6/11/16
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TweakFromSouthPark
Stranger
Registered: 08/22/13
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749152 - 08/23/13 09:33 PM (10 years, 5 months ago) |
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I knew a guy who got diagnosed with lupis and had a second opinion which confirmed he had no lupis.
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Patlal
You ask too many questions



Registered: 10/09/10
Posts: 44,812
Loc: Ottawa
Last seen: 10 hours, 45 minutes
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I hate when a shroomerite has to go through this kind of pain...
Theres nothing I can say that will alievate OPs pain
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Sheekle
FREE BURKE



Registered: 01/11/10
Posts: 53,153
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Re: mom got diagnosed with lupis [Re: Patlal] 1
#18749248 - 08/23/13 09:57 PM (10 years, 5 months ago) |
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Quote:
Patlal said: I hate when a shroomerite has to go through this kind of pain...
Theres nothing I can say that will alievate OPs pain
It's alright
I'd think the pain is more with my mom but it's okay
I just made this thread during the little initial shock after she told me. But things will be how they go
-------------------- "Ur cat died because he hated u" - Koods "I hope JSB kicks your ass one day." - Vandago "you are the biggest 'internet guy' I have ever come across"- Jokeshopbeard "The more I see you post the more I realize you're just this fuckin tie dye loser who trolls the Shroomery 24/7." - Herbologist "Sheekle you cannot vile the dice of bullshit you have posted on this forum over the years, I like databases" - thelastoneleft "or maybe i just come from a blood line of superior intelligence" - trees R.I.P Kelsy, ?/?/?? - 6/11/16
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dontknow
It's all in the reflex


Registered: 07/05/13
Posts: 3,889
Last seen: 7 years, 4 months
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749319 - 08/23/13 10:13 PM (10 years, 5 months ago) |
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i'm sorry man. i hope she doesn't feel any/much pain
--------------------
The discerning heart seeks knowledge, but the mouth of a fool feeds on folly. -Proverbs 15:14
“Imagination is everything. It is the preview of Life’s coming attractions.” Albert Einstein
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goldcaphunter
EMS Medic



Registered: 07/29/12
Posts: 7,432
Loc: Massachusetts
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749330 - 08/23/13 10:15 PM (10 years, 5 months ago) |
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Man,that's some serious he stuff. My mother is about that age and thankfully she's very healthy. The only thing you can do for her is to make her as comfortable as possible in her last days.
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  The picture to the far left is a reminder to our users to stay safe and healthy, that's my third open heart surgery due to over use of amps. Stay safe kiddos
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ShroomPuncher
The FunGuy



Registered: 10/30/12
Posts: 988
Loc: Mother Earth
Last seen: 7 months, 11 days
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I don't know much about diseases, but I'll keep you and your mother in my thoughts. I wish the best for you, your mother, and your family.
-------------------- Hunting Psillies? Want a sig or avatar made? Message me. [Prints in exchange would be nice, but not required]
Disclaimer: I in no way engage in violent acts against mushrooms, nor do I support or advocate such behavior.
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LuxLuthier
agnosticator

Registered: 08/20/13
Posts: 42
Last seen: 7 years, 6 months
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Just remember, Lupus is not a death sentence. It is a disorder which can be debilitating at times and may potentially have peripheral detrimental effects, but should not be viewed as a terminal illness. Lupus is a condition that usually manifests as flares; spontaneous outbreaks of symptoms and a series of remissions where the person may feel completely better. The flares may seem like the body is allergic to itself, and certain parts are attacked by the immune system. Sometimes this leads to serious damage in the long term, sometimes its just a serious nuisance that needs careful management. I'm no expert on the subject by any means, but someone close to me does have this disorder and lives a happy life in spite of the illness.
My advice is to research, research, research. If able, have your mom join some online Lupus groups. Talking with others is always a great help, especially when your symptoms make you feel isolated and alone.
Good luck man, and best wishes to you and your mom.
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keyohnah
the proverbial mind spread



Registered: 10/18/10
Posts: 2,054
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Re: mom got diagnosed with lupis [Re: Sheekle] 2
#18749553 - 08/23/13 11:13 PM (10 years, 5 months ago) |
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I can completely relate to this, both personally and because of my mother.
Please know that as tough as it will be at times, not everything will be bleak from here on out. She'll have her bad days, bad weeks, but more importantly then those she'll have her great days, and great weeks. Take pride in knowing that you are a source of love and happiness for someone going through something tough.
About her denial: remember that we all deal with things differently. Just because it doesn't seem like she's accepting/dealing with it, doesn't mean she isn't. I don't have lupus but I do have something very similar and I don't often talk about it. When I do, I usually just say that I'm feeling sick without getting into the details. Just be comforting and be there for her while not losing yourself.
I've had friends and one guy that I dated recently who would react negatively when I would cancel plans because of it which was probably the worst part. Someone with a chronic pain disorder, especially one that isn't physically obvious, already deals with guilt for not being able to do everything everyone else can and those who add to that guilt only worsen the situation. That being said, that does not mean that you can't express how you're feeling to her. It may be imperative to your own sanity. She knows that no matter what, you love her and that's the most important thing.
This is going to be a journey for her, one that will change her life but that doesn't have to be all bad and it won't be. Not with understanding and loving people around. You guys will get through this, no matter what that means. Keep your head up .
My phone had been acting up but I just fixed it yesterday so feel free to call me or text me ANYTIME that you're feeling down, need to vent, or just need to forget. & I can always hop on webcam too. You're not alone, not by a long shot.
Everything will be okay, that I know more then anything else in this world. Everything is always temporary and everything will be okay.
-------------------- "Go placidly amid the noise and haste, and remember what peace there may be in silence. As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story."
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Sheekle
FREE BURKE



Registered: 01/11/10
Posts: 53,153
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Re: mom got diagnosed with lupis [Re: keyohnah]
#18749578 - 08/23/13 11:22 PM (10 years, 5 months ago) |
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damn keyonah that was a good well thought out stream of thought there for u 
once again thank you all an stuff ur all loving and beautiful
-------------------- "Ur cat died because he hated u" - Koods "I hope JSB kicks your ass one day." - Vandago "you are the biggest 'internet guy' I have ever come across"- Jokeshopbeard "The more I see you post the more I realize you're just this fuckin tie dye loser who trolls the Shroomery 24/7." - Herbologist "Sheekle you cannot vile the dice of bullshit you have posted on this forum over the years, I like databases" - thelastoneleft "or maybe i just come from a blood line of superior intelligence" - trees R.I.P Kelsy, ?/?/?? - 6/11/16
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Soulidarity
With Your Halo Slippin . . .



Registered: 07/15/12
Posts: 17,617
Loc: Atlantis
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749706 - 08/24/13 12:05 AM (10 years, 5 months ago) |
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hey man sorry to hear about this. it sucks to have to go through shit like this when our loved ones fall ill, but its a part of life and something we all will have to go through eventually!
just gotta stay positive and make the most of things!
my advice is to not put things off. tell her you love her and do nice things for her and all that
--------------------
  R.I.P. WoodRuss67, Todcasil, TheMerryIguana, The Rompus, Lord Senate. [/url]
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SattvaBodhi
nobody

Registered: 08/09/13
Posts: 392
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Re: mom got diagnosed with lupis [Re: Sheekle]
#18749764 - 08/24/13 12:20 AM (10 years, 5 months ago) |
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I feel your pain brother. My aunt has RA, MS, and Lupus. It sucks. I'm sorry. Sending good vibrations her way.
-------------------- My ETSY shop .. stop by and look ***Disclaimer*** Everything I say in my posts is false. I have never done any drugs nor will I ever. Drugs are bad mmkay.
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watermelon mon
Willow Trees


Registered: 04/05/13
Posts: 7,800
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Re: mom got diagnosed with lupis [Re: SattvaBodhi]
#18749928 - 08/24/13 01:41 AM (10 years, 5 months ago) |
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sorry to hear sheekle I hope she fells better I think my mom is sick as well diagnosed with cancer she doesn't talk about it but she don't look to good and wont take help I feel like I coped with death but its upsetting that so many people have to go thru things like sickness and bullshit take it easy man
Edited by watermelon mon (08/24/13 01:44 AM)
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