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enesi
On the Bus


Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Diagnosed with brain tumor...
#14034957 - 02/27/11 09:39 AM (12 years, 10 months ago) |
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So i was recently diagnosed with a brain tumor...WTF?!
It made itself known by way of seizures. I was working for one of the top cell providers, and we were having to training on some new programs. About ten of us on a team were in a classroom type setting. All of a sudden I lost conciseness and was out cold.. When I wake up the room is empty except for some paramedics and two of my co-workers. I must have been out awhile, long enough for the am ambulance to arrive. I had a gash on my head and arm from hitting the table as I fell out of my chair.
I was taken to the hospital and went through all kinds of tests and scans. I was deferred to a specialist at the Mayo clinic in rochester Minnesota. I underwent brain surgery and they did a biopsy on the mass. They said it was non-diagnostic, basically they couldnt tell me exactly what it was. The diagnosis isn't certain, but my neurologist thinks it's a low grade glioma. I also had to endure a lumbar puncture to rule out MS..boy did that hurt! I now have to have MRI scans every few months, and if any noticable changes are found, it may have to be removed. The major downside is the location of the tumor is in a part of the brain that controls vision and coordination, and removing it I would most likely lose a large part of my visual field, and my motor skills could be impacted negatively...not cool.
Another possible diagnois I was given was toxic induced Leukoencephalopathy. I was up front about my prior drug use. I started to really question my usage if research chemicals...MDMA and all it's weird analogues I've done. I did a little googling and came across this article-
http://kpssctoxicology.com/pdf/Review%20Toxic%20Encephalopathy%20NEJM.pdf
I can't copy and paste, but if you read on page five, it talks about MDMA, cocaine, heroin, and even psilocybin as causes of toxic Leukoencephalopathy.
This has really changed my life, I now suffer from major seizures pretty frequently and have to take medication twice a day for it. I've been taken to the hospital several times from bad seizures, even an hour after a seizure my body was stl locked up, and I've dislocated my jaw sitting in the ER from clenching so tight. And they gotta force it back into place by hand, not fun. I even had a seizure in the car, but luckily my wife had driven that day, if j had been driving I would have probably killed all of us. So now I'm scared to even drive anymore.
So i have no idea what caused this to happen, either I've had it since I was a kid, and it sat dormant for 27 years, or else it was possibly caused from all the drugs I've done. Sucks it knowing the cause, and it's stressful not knowing when I could seize out, or when this thing could just start growing and causing me some really major problems.
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joshisstoned
Motorcycle Enthusiast


Registered: 05/24/09
Posts: 3,544
Loc: Ohio
Last seen: 9 years, 5 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14034995 - 02/27/11 09:49 AM (12 years, 10 months ago) |
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damn. that sucks. i hope it gets better for you. live as best you can and find some joy where you can. love furiously. be well.peace.
p.s here's the part about mdma...
MDMA has been reported as a cause of toxic leukoencephalopathy, putatively related to serotonergic axonal injury and secondary myelin damage from oxidative stress. Intravenous heroin causes hypoxic–ischemic leukoencephalopathy, and the inhalation of “heroin” pyrolysate, which is generated by heating the drug on aluminum foil, produces evidence of toxic leukoencephalopathy on MRI that correlates with neuropathological evidence of spongiform changes in white matter and the degeneration of multivacuolar oligodendrocytes.The hallucinogen psilocybin has been tentatively linked with multifocal cerebral demyelination.
Edited by joshisstoned (02/27/11 09:54 AM)
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Hakim0777
aka RACKBONE!!!




Registered: 08/25/06
Posts: 8,071
Loc: PNW
Last seen: 1 year, 3 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14035605 - 02/27/11 12:08 PM (12 years, 10 months ago) |
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Quote:
enesi said: So i was recently diagnosed with a brain tumor...WTF?!
It made itself known by way of seizures. I was working for one of the top cell providers, and we were having to training on some new programs. About ten of us on a team were in a classroom type setting. All of a sudden I lost conciseness and was out cold.. When I wake up the room is empty except for some paramedics and two of my co-workers. I must have been out awhile, long enough for the am ambulance to arrive. I had a gash on my head and arm from hitting the table as I fell out of my chair.
I was taken to the hospital and went through all kinds of tests and scans. I was deferred to a specialist at the Mayo clinic in rochester Minnesota. I underwent brain surgery and they did a biopsy on the mass. They said it was non-diagnostic, basically they couldnt tell me exactly what it was. The diagnosis isn't certain, but my neurologist thinks it's a low grade glioma. I also had to endure a lumbar puncture to rule out MS..boy did that hurt! I now have to have MRI scans every few months, and if any noticable changes are found, it may have to be removed. The major downside is the location of the tumor is in a part of the brain that controls vision and coordination, and removing it I would most likely lose a large part of my visual field, and my motor skills could be impacted negatively...not cool.
Another possible diagnois I was given was toxic induced Leukoencephalopathy. I was up front about my prior drug use. I started to really question my usage if research chemicals...MDMA and all it's weird analogues I've done. I did a little googling and came across this article-
http://kpssctoxicology.com/pdf/Review%20Toxic%20Encephalopathy%20NEJM.pdf
I can't copy and paste, but if you read on page five, it talks about MDMA, cocaine, heroin, and even psilocybin as causes of toxic Leukoencephalopathy.
This has really changed my life, I now suffer from major seizures pretty frequently and have to take medication twice a day for it. I've been taken to the hospital several times from bad seizures, even an hour after a seizure my body was stl locked up, and I've dislocated my jaw sitting in the ER from clenching so tight. And they gotta force it back into place by hand, not fun. I even had a seizure in the car, but luckily my wife had driven that day, if j had been driving I would have probably killed all of us. So now I'm scared to even drive anymore.
So i have no idea what caused this to happen, either I've had it since I was a kid, and it sat dormant for 27 years, or else it was possibly caused from all the drugs I've done. Sucks it knowing the cause, and it's stressful not knowing when I could seize out, or when this thing could just start growing and causing me some really major problems. 
is it gonna get taken out...?
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: Hakim0777]
#14035667 - 02/27/11 12:16 PM (12 years, 10 months ago) |
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Well, as I get scanned every few months, they will monitor it. If there is no change, then no action will be taken. If it gets larger, or my symptoms worsen then they will have to remove it. They said it could change at any time...could be a year, or could be ten years.
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Hakim0777
aka RACKBONE!!!




Registered: 08/25/06
Posts: 8,071
Loc: PNW
Last seen: 1 year, 3 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14035798 - 02/27/11 12:46 PM (12 years, 10 months ago) |
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wtf! why cant they just remove it now?
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: Hakim0777]
#14035836 - 02/27/11 12:56 PM (12 years, 10 months ago) |
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Well, I would be blind for one. I would rather deal with seizures than lose my vision and motor skills. Removing it is a last option, I would be pretty fucked up since it's in such a difficult place in the brain. Believe me, I would love for it to be removed, but the risks are pretty great.
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BothHands
Dog Coffee



Registered: 10/28/09
Posts: 13,177
Loc:
Last seen: 4 years, 10 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14035890 - 02/27/11 01:06 PM (12 years, 10 months ago) |
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Wow, fuck... So the seizures only started recently, and are now a common occurrence? Sounds like it has changed.
That sounds like a terrible situation. I really wish you the best.
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AlphaFalfa
imagine


Registered: 06/16/08
Posts: 3,857
Loc: 3 Seconds Ago.
Last seen: 9 years, 10 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14035922 - 02/27/11 01:12 PM (12 years, 10 months ago) |
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Quote:
enesi said: So i was recently diagnosed with a brain tumor...WTF?!
It made itself known by way of seizures. I was working for one of the top cell providers, and we were having to training on some new programs. About ten of us on a team were in a classroom type setting. All of a sudden I lost conciseness and was out cold.. When I wake up the room is empty except for some paramedics and two of my co-workers. I must have been out awhile, long enough for the am ambulance to arrive. I had a gash on my head and arm from hitting the table as I fell out of my chair.
I was taken to the hospital and went through all kinds of tests and scans. I was deferred to a specialist at the Mayo clinic in rochester Minnesota. I underwent brain surgery and they did a biopsy on the mass. They said it was non-diagnostic, basically they couldnt tell me exactly what it was. The diagnosis isn't certain, but my neurologist thinks it's a low grade glioma. I also had to endure a lumbar puncture to rule out MS..boy did that hurt! I now have to have MRI scans every few months, and if any noticable changes are found, it may have to be removed. The major downside is the location of the tumor is in a part of the brain that controls vision and coordination, and removing it I would most likely lose a large part of my visual field, and my motor skills could be impacted negatively...not cool.
Another possible diagnois I was given was toxic induced Leukoencephalopathy. I was up front about my prior drug use. I started to really question my usage if research chemicals...MDMA and all it's weird analogues I've done. I did a little googling and came across this article-
http://kpssctoxicology.com/pdf/Review%20Toxic%20Encephalopathy%20NEJM.pdf
I can't copy and paste, but if you read on page five, it talks about MDMA, cocaine, heroin, and even psilocybin as causes of toxic Leukoencephalopathy.
This has really changed my life, I now suffer from major seizures pretty frequently and have to take medication twice a day for it. I've been taken to the hospital several times from bad seizures, even an hour after a seizure my body was stl locked up, and I've dislocated my jaw sitting in the ER from clenching so tight. And they gotta force it back into place by hand, not fun. I even had a seizure in the car, but luckily my wife had driven that day, if j had been driving I would have probably killed all of us. So now I'm scared to even drive anymore.
So i have no idea what caused this to happen, either I've had it since I was a kid, and it sat dormant for 27 years, or else it was possibly caused from all the drugs I've done. Sucks it knowing the cause, and it's stressful not knowing when I could seize out, or when this thing could just start growing and causing me some really major problems. 
Research the Raw food diet.
Seriously bro, it might be able to help you.
-------------------- if you ever feel lost, just remember, life is not a journey, it is entertainment, all 4 fun...
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ManianFH
living in perverty


Registered: 07/06/04
Posts: 14,748
Last seen: 6 hours, 43 minutes
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Re: Diagnosed with brain tumor... [Re: enesi]
#14035962 - 02/27/11 01:19 PM (12 years, 10 months ago) |
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That is a rough deal man. Keep on the anti seizure medications, and maybe look up some holistic ways of dealing with brain tumors, such as diet change, meditation..
A guy I know kind of went through the same things, he had a grand mal at work and was diagnosed with a tumor in his prefrontal cortex. They operated that week, and hopefully hes doing well. I saw him post op and he was tired and a bit out of sorts shit but at least cognizant. I think his recovery is going well.
I would choose not to operate either; especially with something like vision/motor control on the table. Its hard attribute it to drug use, I know so many people who have used so many drugs and they dont have these issues, but who knows.
Good luck man, youre still kickin, I guess we gotta enjoy what we got while we have it.
-------------------- notapillow said: "you are going about this endeavor all wrong. clear your mind of useless fear and concern. buy the ticket, take the ride, and all that.... " ChrisWho said: "It's all about the journey, not the destination."
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Cannashroom
Smoke two Joints



Registered: 10/25/07
Posts: 2,141
Loc: Everywhere
Last seen: 6 years, 10 months
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Re: Diagnosed with brain tumor... [Re: ManianFH] 1
#14036518 - 02/27/11 03:14 PM (12 years, 10 months ago) |
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Check out "run from the cure" on youtube or google video.
If you have access to good pot, you should start self medicating, it shows promise for treating gliomas, and is very helpful in keeping food down for other healing processes.
You need to be getting a high dose, close to 7gs a day in the form of oil though.
www.phoenixtears.ca
-------------------- "A human being is part of the whole, called by us 'Universe'; a part limited in time and space. He experiences himself, his thoughts and feelings as something separated from the rest -- a kind of optical delusion of his consciousness. This delusion is a kind of prison for us, restricting us to our personal desires and affection for a few persons nearest us. Our task must be to free ourselves from this prison by widening our circle of compassion to embrace all living creatures and the whole nature in its beauty. Nobody is able to achieve this completely but striving for such achievement is, in itself, a part of the liberation and a foundation for inner security." Albert Einstein
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: BothHands]
#14036647 - 02/27/11 03:46 PM (12 years, 10 months ago) |
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Quote:
BothHands said: Wow, fuck... So the seizures only started recently, and are now a common occurrence? Sounds like it has changed.
That sounds like a terrible situation. I really wish you the best. 
The seizures started, but they havent changed in frequency. The seizures did just start suddenly at the age of 27...the medication has helped keep them under control. I was on Dilantin at first, but it made me feel very fucked up, like I was in a drunken stupor all the time. They couldn't dial in the proper dosage so I was switched to keppra, and it's been working a lot better, not 100% though, I still have seizures maybe two to three times a month. Sometimes small ones, other times large one.
And having a seizure is the oddest thing, it's like if your brain was a switchboard, and having a seizure is like someone unplugged all the wires, and put them back in but all mixed up. I remeber when I had one in the car, I woke up and the paramedic were there. I got out of the car, walked and got into the ambulance. They were asking me questions like my name, the date, etc. and I had no clue who I was or anything, even forgot my wifes name and called her by my ex wifes name, lol.
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: Cannashroom]
#14036805 - 02/27/11 04:14 PM (12 years, 10 months ago) |
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Quote:
Cannashroom said: Check out "run from the cure" on youtube or google video.
If you have access to good pot, you should start self medicating, it shows promise for treating gliomas, and is very helpful in keeping food down for other healing processes.
You need to be getting a high dose, close to 7gs a day in the form of oil though.
www.phoenixtears.ca
I live in Indiana, we don't and probably never will have medical marijuana. My area is flooded with dirt weed. I used to have a friend in a medical state that would help me out, but not anymore. I know it helps with seizures, and I also get very severe headaches that last for hours that I'm sure herb would help ease the pain, but unfortunately I have no access to any.
Anyone in the southern area of IN, OH, IL feel free to pm me if you can help a brother in pain, lol
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circastes
Big Questions Small Head


Registered: 01/14/10
Posts: 8,781
Loc: straya
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Re: Diagnosed with brain tumor... [Re: enesi]
#14036906 - 02/27/11 04:32 PM (12 years, 10 months ago) |
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Just have the pure intent of getting better. The unconscious mind and its innate physiological intelligence might know where to go from here.
-------------------- My solitude... My shield... My armour... TESTED WITH FULL FORCE
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Hakim0777
aka RACKBONE!!!




Registered: 08/25/06
Posts: 8,071
Loc: PNW
Last seen: 1 year, 3 months
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Re: Diagnosed with brain tumor... [Re: circastes] 2
#14037336 - 02/27/11 05:55 PM (12 years, 10 months ago) |
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Quote:
circastes said: Just have the pure intent of getting better. The unconscious mind and its innate physiological intelligence might know where to go from here.
I would be so annoyed if someone told me this and I had a tumor.
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: Hakim0777] 2
#14037382 - 02/27/11 06:03 PM (12 years, 10 months ago) |
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Lol. I had the pure intent of getting worse...I'll try your way and see if it helps.
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joshisstoned
Motorcycle Enthusiast


Registered: 05/24/09
Posts: 3,544
Loc: Ohio
Last seen: 9 years, 5 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14043411 - 02/28/11 04:45 PM (12 years, 10 months ago) |
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so, i'm not trying to put you out there, but what types of research chemicals are we talking about here? don't answer if you don't want to enesi?
Good Vibes!
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: joshisstoned]
#14044606 - 02/28/11 07:24 PM (12 years, 10 months ago) |
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I've tried a number of Tryptamines and phens..nothing that's very rare as far as rc's go though, all the usuals
Here's the ones I can recall off the top of my head
2-c b, c, d, e, I, p, t-2, t-7, t-21 Dob, doc, doi, Dom Most of the variants of MDMA/mda Ibogaine 4-ho-dipt, dmt, mipt
And several other variants of those that I can't remember. Some were done once, some were done extensively. That doesn't even account for all the ketamine, lsd, cactus, mushrooms, etc I've done, and other pharms throughout the past decade or so.
I'm hardpressed to blame the drugs, but I'm not ruling it out as a real possibility. Not everyone who uses chemicals will have problems, just like not everyone who walks across the street gets hit by a car. It very well could be the cause.
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Edited by enesi (02/28/11 07:45 PM)
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joshisstoned
Motorcycle Enthusiast


Registered: 05/24/09
Posts: 3,544
Loc: Ohio
Last seen: 9 years, 5 months
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Re: Diagnosed with brain tumor... [Re: enesi]
#14044959 - 02/28/11 08:15 PM (12 years, 10 months ago) |
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ok. I admire your openness. I hope that you are able to carry on with as little pain and loss as possible. Good vibes dude
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coAsTal
Friend


Registered: 04/04/06
Posts: 2,970
Loc: 8a
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Re: Diagnosed with brain tumor... [Re: joshisstoned]
#14045732 - 02/28/11 10:09 PM (12 years, 10 months ago) |
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I wish you the best brother.
I will add to Cannashroom's mention of the phoenix tears site and information-- cannabinoids have been proven to reduce tumors-- seeds and groundspace are all you need, not friends.
Also, please look into Vitamin D3 supplements, Selenium, and Iodine.
There has been work done on several studies showing that inadequate D3 can contribute to a number of cancers. You should take between 5-10K IU/daily to maintain an optimal blood level. Available in any pharmacy. (you get this much D3 from your skin with a half-hour of summer sun)
Selenium 200mcg/day- any pharmacy
Iodine 12.5mg/day (Iodoral pills or Lugol's solution, widely available)
Eat only clean, unprocessed foods- you gotta think extra hard about your diet, as there is now a known target for junkfood to exploit-- tumors benign and malignant react to your diet just like every other cell.
Peace and love my friend--
-------------------- I am certain of nothing but the holiness of the Heart's affections and the truth of Imagination-- John Keats Spore Trading List
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enesi
On the Bus



Registered: 04/23/06
Posts: 1,408
Loc: Erf
Last seen: 12 years, 5 months
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Re: Diagnosed with brain tumor... [Re: coAsTal]
#14072105 - 03/05/11 06:03 PM (12 years, 10 months ago) |
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Thanks for the kind words, I will talk with my neurologist about the supplements you mentioned.
I try to keep positive, but it's been getting me depressed a bit lately. Seems to be all I think about. Causes a lot of anxiety I tell ya...
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